Grado de conocimiento sobre la ley de voluntades anticipadas entre los familiares de los pacientes ingresados en un servicio de medicina intensiva

Arauzo, Vanessa; Trenado, Josep; Busqueta, Gloria; Quintana, Salvador

doi:10.1016/j.medcli.2009.05.021

Cited by 31 publications

(7 citation statements)

References 13 publications

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“…One study found that having a relative or friend admitted to an ICU causes people to think more about ADs. 21 Relatives of chronically ill patients, most commonly women and younger people, showed better knowledge of illness and ADs than did the patients themselves. 22 There is only one study 23 conducted on patient representatives, which was carried out on Catalonia's AD Registry.…”

Section: Knowledge and Perspectives Of Relatives And Patient Represen...mentioning

confidence: 99%

Improving the Implementation of Advance Directives in Spain

Herreros

Gella

Valenti

et al. 2023

Camb Q Healthc Ethics

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Since 2002, legislation in Spain has allowed for the creation and documentation of end-of-life decisionmaking. Over the intervening years, the actual implementation of such documents is very low. Through extensive analysis of the literature, this article explores the current status of the use of and attitudes toward advance directives in Spain and then proposes strategies for improvement in their implementation.

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Section: Knowledge and Perspectives Of Relatives And Patient Represen...mentioning

confidence: 99%

Improving the Implementation of Advance Directives in Spain

Herreros

Gella

Valenti

et al. 2023

Camb Q Healthc Ethics

View full text Add to dashboard Cite

show abstract

“…Our study and the article do not follow the methodology of systematic reviews, instead the bibliographic search was used to establish the debate. Some of the articles found have focused on patients (Tables 1, 2, 3) [5,6], and others on their relatives and representatives (Table 4) [7], while there has also been a significant number of studies exploring the role played by health care professionals (Table 5) [8][9][10][11]. All of them show that, despite the positive attitude towards ADs in Spain, the Spanish people possess insufficient knowledge about them, including both professionals and the public, and their use in clinical practice is very infrequent.…”

Section: Introductionmentioning

confidence: 99%

Why have Advance Directives failed in Spain?

et al. 2020

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Background In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain. Main body The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult. Conclusion Due to the four reasons mentioned above, AD have not been a useful tool to help honor patients’ autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future.

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“…The implementation of national legislation regulating ADs in Spain has increased the number of empirical studies in the last decade across the country. Some of them have explored the role of patients (Llordés et al 2014;Antolín et al 2010;Monzón et al 2008) and family (Arauzo et al 2010), and others the role of healthcare professionals (Velasco Sanz and Rayon Valpuesta 2016;Navarro Bravo et al 2011;Champer Blasco, Cartig Monfort, and Marquet Palomer 2009;Simón Lorda et al 2008;Mateos Rodríguez, Huerta Arroyo, and Benito Vellisca 2007). All these studies show an insufficient knowledge of ADs among both professionals and patients, as well as an infrequent use of them in Spain, especially in Madrid.…”

Section: Introductionmentioning

confidence: 99%

The Use of Advance Directives in Specialized Care Units: A Focus Group Study With Healthcare Professionals in Madrid

et al. 2020

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Eight focus groups were conducted in four public hospitals in Madrid to explore healthcare professionals' perceptions of advance directives (ADs) in order to improve the understanding of their lack of success among physicians and patients. A purposive sample of sixty healthcare professionals discussed ADs and reasons for their infrequent use. Three main themes were identified: perceptions about their meaning, appraisals of their use in clinical practice, and decision-making about them. Healthcare professionals perceived a lack of clarity about their definition and implementation. There is insufficient awareness of their efficacy in improving the quality of clinical relationships and decision-making, and they are often perceived only as a bureaucratic procedure. Advance directives are not integrated in the clinical practice of Madrid's healthcare specialist services because their application is exceedingly complex, because of insufficient education about them (for both professionals and citizens), and because of lack of procedural clarity. Consequently, healthcare professionals are not aware of how ADs could improve clinical decision-making, of when and for whom their use is appropriate, and of who has responsibility for providing ADs-related information to patients. These

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Grado de conocimiento sobre la ley de voluntades anticipadas entre los familiares de los pacientes ingresados en un servicio de medicina intensiva

Cited by 31 publications

References 13 publications

Improving the Implementation of Advance Directives in Spain

Improving the Implementation of Advance Directives in Spain

Why have Advance Directives failed in Spain?

The Use of Advance Directives in Specialized Care Units: A Focus Group Study With Healthcare Professionals in Madrid

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