Grandparents of children with cancer: a controlled comparison of perceived family functioning

Kelada, Lauren; Wakefield, Claire E.; Doolan, Emma L.; Drew, Donna; Wiener, Lori; Michel, Gisela; Cohn, Richard J.

doi:10.1007/s00520-018-4468-7

Cited by 21 publications

(20 citation statements)

References 37 publications

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“…Families experience enormous upheaval when a child is diagnosed with cancer 1‐4 . Along with the physical and psychological effects of childhood cancer, families also face challenging impacts on finances and employment.…”

Section: Introductionmentioning

confidence: 99%

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Kelada

Wakefield

Vetsch

et al. 2020

Pediatric Blood & Cancer

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Objective: Childhood cancer can have short-and long-term impacts on parents' finances and employment. It is important to understand how families adjust to the financial and employment changes caused by childhood cancer, the ongoing impacts after treatment completion, and which families need more targeted support. Qualitative research is necessary to facilitate an in-depth understanding of the employment and financial impacts on families and to capture parents' complex and nuanced experiences and perspectives. Methods:We interviewed 56 parents of childhood cancer survivors (M = 2.13 years after treatment completion; 89% mothers) using the vocational and financial impact section of the Psychosocial Adjustment to Illness Scale-Carer Interview Form. We analyzed interviews using content analysis.

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Section: Introductionmentioning

confidence: 99%

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Kelada

Wakefield

Vetsch

et al. 2020

Pediatric Blood & Cancer

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show abstract

“…A literatura indica que os avós sofrem de forma multiplicada e emudecida quando um de seus netos adoece. (15)(16)(17)(18) Os avós carecem de suporte, mas não o encontram na equipe multiprofissional, temem sobrecarregar os filhos com suas demandas e, diante disso, abafam o próprio sofrimento para tentarem ajudar a família do filho da melhor forma possível. (15,17,18) Os discursos dos participantes deste estudo, tanto sobre experiências vividas quando crianças quanto sobre o que testemunharam nas atividades práticas, trazem aspectos semelhantes de sofrimento e falta de suporte oferecido aos avós.…”

Section: Discussionunclassified

Percepções de estudantes de enfermagem sobre os relacionamentos intergeracionais em pediatria

Silva¹,

Amador²,

Mendes-Castillo³

2022

Revista Da Sociedade Brasileira De Enfermeiros Pediatras

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Objetivo: Conhecer as percepções de acadêmicos de Enfermagem referentes aos relacionamentos intergeracionais em pediatria. Métodos: Estudo qualitativo. Os dados foram coletados com uma amostra de 32 estudantes do terceiro e do quarto anos de graduação em Enfermagem, através de questionários e entrevistas. Os dados foram analisados à luz do Interacionismo Simbólico, por análise qualitativa de conteúdo. Resultados: Foi possível elencar três categorias: descrevendo e atribuindo significado aos avós; vivenciando experiências de ser cuidado pelos avós; e refletindo sobre a presença dos avós da criança no hospital. É fundamental que o ensino do cuidado centrado na criança e sua família traga conteúdos que abordem essa geração, para que os futuros enfermeiros sejam capacitados a enxergá-los como parte da experiência, para que os avós sejam incluídos nas ações de cuidado. Conclusão: Consideramos essencial a ampliação da perspectiva do cuidado centrado na criança e sua família, para que os futuros enfermeiros sejam capacitados a realizar a inclusão dos avós nas ações de cuidado.

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“…Based on an exhaustive literature review, a list of 10 topics constituting potential areas of need in parents of children with cancer was devised [ 3 , 10 , 20 , 23 , 24 , 25 ]. From there, ad hoc interview questions were considered (see Table 1 ).…”

Section: Methodsmentioning

confidence: 99%

“…In addition to informational support, parents commonly require social support, both informal—from family members, including grandparents and siblings [ 25 ]—and formal (health personnel, bosses, etc.). It has been demonstrated that perceived social support provides health and well-being benefits [ 19 , 26 ].…”

Section: Introductionmentioning

confidence: 99%

Needs Assessment in Parents of Children Affected by Cancer: A Qualitative Perspective

2022

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Background: Childhood cancer is a “stressful experience” for parents in their role as caregivers. The aim of this study is to analyze the needs of a group of parents who have children diagnosed with cancer. The assessment looks at all areas of their daily life using a qualitative content analysis approach. Methods: This study uses open questions designed to investigate the main problems faced by the parents of children with cancer. All the answers were analyzed using MAXQDA 20 software. The study was conducted according to the Consolidated Criteria for Reporting Qualitative Research (COREQ). Results: The content analysis of the answers from 13 mothers and 7 fathers is presented. The main themes as priority areas of need were: “informal social support”, “coping”, “stressors/imbalances” and “health problems”. Dissatisfaction with the support provided from the informal network was detected. Although the participants expressed active coping, they also exhibited helplessness, as well as concerns regarding possible sequelae and the impact of this situation on the family’s economic/work context. Conciliation problems were a source of stress. All this is consistent with the participants suffering from a variety of health issues. Conclusions: the results show the effect of childhood cancer on different aspects of family life. They provide essential information for designing psychosocial interventions.

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Grandparents of children with cancer: a controlled comparison of perceived family functioning

Cited by 21 publications

References 37 publications

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Financial toxicity of childhood cancer and changes to parents’ employment after treatment completion

Percepções de estudantes de enfermagem sobre os relacionamentos intergeracionais em pediatria

Needs Assessment in Parents of Children Affected by Cancer: A Qualitative Perspective

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