Graphomotor skills in children with prenatal alcohol exposure and fetal alcohol spectrum disorder: A population‐based study in remote Australia

Doney, Robyn; Lucas, Barbara R.; Jirikowic, Tracy; Tsang, Tracey W; Watkins, Rochelle; Sauer, Kay; Howat, Peter; Latimer, Jane; Fitzpatrick, James; Oscar, June; Carter, Maureen; Elliott, Elizabeth J

doi:10.1111/1440-1630.12326

Cited by 17 publications

(12 citation statements)

References 48 publications

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“…Similar to the findings of Miller et al. (2017) who reviewed consumer engagement in health and medical research, the very limited Australian instances of comprehensive consumer engagement in health‐related research were with Indigenous communities (Doney et al., 2017; Wagner et al., 2017). These exemplars addressed the Meeting the challenge—being diverse and inclusive theme as the Indigenous communities initiated and led the research processes with the researchers acting as a resource throughout the research cycle.…”

Section: Discussionsupporting

confidence: 56%

“…Culturally safe engagement strategies included community leadership in project development and approval, employment of local Aboriginal community researchers to recruit and support participants, and collaboration between community members and researchers to translate findings. High levels of community engagement were also incorporated into a study which aimed to describe the graphomotor performance of Aboriginal children from a remote community (Doney et al., 2017).…”

Section: Thematic Analysismentioning

confidence: 99%

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Consumer engagement in occupational therapy health‐related research: A scoping review of the Australian Occupational Therapy Journal and a call to action

Cox

Kendall

Molineux

et al. 2020

Aus Occup Therapy J

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Introduction Consumer engagement in research is becoming an ethical, political, and moral imperative. The aim of this scoping review was to provide a snapshot of the current status of the emerging area of consumer engagement in occupational therapy health‐related research, as published in the Australian Occupational Therapy Journal. Methods A scoping review was conducted of all health‐related original research published in the Australian Occupational Therapy Journal for 5½ years, plus Early View, as at June 2019. Eligible papers were examined for consumer engagement content which included any active choice or control by consumers, beyond being a research participant. A recognised six stage methodology was used with quantitative and qualitative data analysed. Two consumers collaborated in interpreting the data including finalising themes, leading theme naming, developing key discussion points, and producing recommendations. Results Of the 123 eligible papers, 48 (39.02%) included consumer engagement. However, only two incorporated consumer engagement across all research phases—preparation, execution and translation. A total of 103 consumer engagement activities were charted and categorised across all papers. There were limited instances of consumer collaboration (14/103, 13.59%) or consumer‐led research processes (15/103, 14.56%) reported. Four themes emerged: Parity in research partnerships; It's important to know the Who, What, When, How and So What of consumer involvement; Consumer engagement must be a two‐way process—not a dead end street; and Meeting the challenge—being diverse and inclusive. Conclusion Comprehensive consumer‐researcher partnerships may not be common‐place in health‐related occupational therapy research in the Australian Occupational Therapy Journal. This paper is a call to action. Occupational therapists must embrace consumer research partnerships as a demonstration of the key philosophies of enabling and empowering consumers and communities. Collaboration with two consumers in finalising data analysis, results interpretation and reporting added a diverse and valuable perspective.

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Section: Discussionsupporting

confidence: 56%

Section: Thematic Analysismentioning

confidence: 99%

Consumer engagement in occupational therapy health‐related research: A scoping review of the Australian Occupational Therapy Journal and a call to action

Cox

Kendall

Molineux

et al. 2020

Aus Occup Therapy J

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“…It is interesting to note that Australian Aboriginal individuals with FASD have been found to have motor skill impairments (Doney et al, 2017; Lucas et al, 2016a; Lucas et al, 2016b). However, in our study, 66% of Aboriginal participants did not have this impairment when compared with 20.1% of non‐Aboriginal participants.…”

Section: Discussionmentioning

confidence: 99%

The Demographic and Neurocognitive Profile of Clients Diagnosed With Fetal Alcohol Spectrum Disorder in PATCHES Paediatrics Clinics Across Western Australia and the Northern Territory

Connor

Tan

Pestell

et al. 2020

Alcoholism Clin & Exp Res

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Background: Fetal alcohol spectrum disorder (FASD) is a diagnosis relating to neurocognitive impairments associated with prenatal alcohol exposure. A key aspect of improving FASD diagnostic processes and management is understanding the demographic and neurocognitive profile of those living with FASD. The aim of this study was to describe the demographic and neurocognitive profile of the first 199 individuals diagnosed with FASD in PATCHES Paediatrics clinics.Methods: A retrospective cross-sectional descriptive study design was conducted with individuals diagnosed with FASD between 2013 and 2018 through a multidisciplinary team according to the Australian FASD Diagnostic Guidelines.Results: Participants were primarily male 133 (66.8%) and Aboriginal Australian 147 (73.9%), aged 2 to 31 (mean 10.5), with 94 (47.3%) from remote or very remote parts of Western Australia. Participants came from low 119 (59.8%), medium 48 (24.1%), and high 32 (16.1%) socioeconomic (SE) backgrounds. Low SE background was found to be a predictor of number of sentinel facial features (Wald v 2 (1) = 4.03, p < 0.05). Most received a diagnosis of FASD with <3 sentinel features 165 (82.9%). Participants either had 6 or more 46 (23.1%), 5 44 (22.1%), 4 55 (27.6%), or 3 (27.1%) neurodevelopmental domains impaired. Executive functioning was the most commonly impaired neurodevelopmental domain 158 (79.4%), and 31 (61%) reported sleep disturbance. ADHD was the most observed comorbid condition (41.7%).Conclusions: This study improves our current understanding of neurocognitive and demographic profiles in individuals with FASD that have been clinically referred for diagnosis within Western Australia and the Northern Territory, and highlights the importance of prevention and early assessment/diagnosis as well as guidance regarding more targeted interventions. FASD affects individuals from all cultural and SE backgrounds. Individuals from middle to higher SE groups are at risk of FASD with prevention efforts needing to target these sectors of society. Suggestions for future research directions are also provided.

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“…As the child grows, other deficits may emerge. Fine motor impairment [105] with subnormal graphomotor skills [106] and disturbance of visual‐motor integration and visual perception [107] have been noted. Gross motor impairment [108] with gait abnormalities [109] may develop.…”

Section: Fetal Alcohol Spectrum Disorder (Fasd)mentioning

confidence: 99%

Alcohol use in pregnancy and its impact on the mother and child

Oei

2020

Addiction

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Aims To review the impact of prenatal alcohol exposure on the outcomes of the mother and child. Design Narrative review. Setting Review of literature. Participants Mothers and infants affected by prenatal alcohol use. Measurements Outcomes of mothers and children. Findings Prenatal alcohol exposure is one of the most important causes of preventable cognitive impairment in the world. The developing neurological system is exquisitely sensitive to harm from alcohol and there is now also substantial evidence that alcohol-related harm can extend beyond the individual person, leading to epigenetic changes and intergenerational vulnerability and disadvantage. There is no known safe level or timing of drinking for pregnant or lactating women and binge drinking (> four drinks within 2 hours for women) is the most harmful. Alcohol-exposure increases the risk of congenital problems, including Fetal Alcohol Spectrum Disorder (FASD) and its most severe form, Fetal Alcohol Syndrome (FAS). Conclusion The impact of FASD and FAS is enduring and lifelong with no current treatment or cure. Emerging therapeutic options may mitigate the worst impact of alcohol exposure but significant knowledge gaps remain. This review discusses the history, epidemiology and clinical presentations of prenatal alcohol exposure, focusing on FASD and FAS, and the impact of evidence on future research, practice and policy directions.

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Graphomotor skills in children with prenatal alcohol exposure and fetal alcohol spectrum disorder: A population‐based study in remote Australia

Cited by 17 publications

References 48 publications

Consumer engagement in occupational therapy health‐related research: A scoping review of the Australian Occupational Therapy Journal and a call to action

Consumer engagement in occupational therapy health‐related research: A scoping review of the Australian Occupational Therapy Journal and a call to action

The Demographic and Neurocognitive Profile of Clients Diagnosed With Fetal Alcohol Spectrum Disorder in PATCHES Paediatrics Clinics Across Western Australia and the Northern Territory

Alcohol use in pregnancy and its impact on the mother and child

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