Grief, Loss, and Depression in Latino Caregivers and Families Affected by Dementia

Rosa, Dinelia; Fuentes, Milton A.

doi:10.1007/978-1-0716-0132-7_14

Cited by 5 publications

(5 citation statements)

References 79 publications

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“…However, it is important to note that the impact of culture on bereavement adjustment also lies at the intersection of acculturation, with those who are less acculturated exhibiting a stronger adherence to traditional Latino/a cultural beliefs. 21 Thus, to enhance the ability to develop targeted interventions to support the wellbeing of bereaved Latino/a persons, a more granular understanding is needed focused on what is known regarding the influence of the Latino/a culture on grief.…”

Section: Resultsmentioning

confidence: 99%

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

et al. 2022

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Introduction: Bereavement and grief are social phenomena influenced by a multitude of cultural factors. Prior studies of bereavement adjustment have primarily focused on bereaved survivors who identify racially as white; knowledge of the experience of grief and bereavement among racial/ethnic and other minority groups, particularly among Latino/a groups, in the United States is limited. Objective: The purpose of this review is to synthesize the literature documenting the bereavement experiences of the Latino/a community, evaluate the strength of the current evidence, and provide recommendations to guide future research. Method: A narrative review of research on grief and bereavement in the Latino/a community published between 1990 and 2021. Two authors used a thematic, deductive approach to categorize emergent prevalent themes from the literature and used The Grading of Recommendations Assessment, Development, and Evaluation (GRADE) and The Oxford Center for Evidence-Based Medicine—Evidence Quality Rating Scale (OCEBM) approaches to evaluate the strength of the qualitative and quantitative reports reviewed. Results: Searches revealed 26 reports that were categorized into six themes: cultural values, mourning rituals, immigration, spirituality, disparities related to the COVID-19 pandemic, and the effects of COVID-19 on Latino/a communities. Our evaluation concludes that the evidence in this area is weak, with limited methodologically rigorous research examining the influence of culture on bereavement among Latino/a groups. Conclusion: Research is needed to identify Latino/a groups' mental health, cultural, social, and family needs and how fulfillment of mourning rituals and other cultural factors may promote or impede bereavement adjustment. Investigation into factors that may protect bereaved survivors against adverse mental health outcomes is also needed. A better understanding of Latino/a grief and bereavement is a step toward the development of culturally competent interventions designed to promote the mental health and psychosocial adjustment of Latino/a mourners.

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Section: Resultsmentioning

confidence: 99%

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

et al. 2022

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“…In addition, a carer from a diverse background who cared for a person with early onset dementia expressed that the animation was not useful or relevant. Studies have demonstrated that individuals from diverse cultural backgrounds experience and express grief in different ways (Rosa & Fuentes, 2020;Stroebe et al, 2008;Sun, Ong, & Burnette, 2012), and this may have impacted the way the participant received the animation. Additionally, it is also possible that early onset dementia may be a different carer experience that could have also influenced how this participant received the animation (Kobiske, Bekhet, Garnier-Villarreal, & Frenn, 2019).…”

Section: Discussionmentioning

confidence: 99%

Usefulness and acceptability of an animation to raise awareness to grief experienced by carers of individuals with dementia

et al. 2021

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Aim Many carers of individuals with dementia experience high levels of grief before and after the death of the person with dementia. This study aimed to determine the usefulness, acceptability, and relevance of an animation developed to raise awareness to grief experienced by carers of people with dementia. Methods This research had a cross-sectional survey design. We contacted carers of people with dementia over the phone or email. Participants evaluated the animation through an online or paper-based survey. We used descriptive statistics and analysed qualitative data using thematic analysis. We required a sample of 40 carers to adequately power the study with a target of 75% of carers finding the animation useful, acceptable, and relevant. Results 31/78 carers approached evaluated the animation. Ninety-four percent of participants found the animation relevant to their situation, meeting our target. However, we fell short of this target for usefulness (68%) and acceptability (73%). The qualitative responses suggested that participants felt the animation could help improve the understanding of grief among carers, family, friends, and healthcare professionals. Carers also shared that the animation would be most useful for carers of newly diagnosed people with dementia. Conclusion Most carers of people with dementia in this study reported that the animation was useful, acceptable, and relevant. Dissemination of the resource may be useful for the majority of carers, with the caveat that a few carers may find it distressing and need to be referred for further support.

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“…Extant literature highlights the ubiquity of these values in research with Latinx communities. For example, Adames et al (2014) considered the role of Latinx cultural values in palliative health care, Rosa and Fuentes (2020) reviewed these values in the well-being of Latinx caregivers affected by dementia, and Adames and Chavez-Dueñas (2017) considered the application of these values in mental health care. In yet another example, Miville et al (2017) examined how these values aligned with liderazgo, a culturally congruent leadership style that informed the inception and evolution of the National Latinx Psychological Association (NLPA).…”

Section: Latinx Cultural Valuesmentioning

confidence: 99%

Applying critical consciousness through the use of testimonios to rethink Latinx cultural values.

Fuentes,

Consoli,

Rosario

et al. 2024

Journal of Latinx Psychology

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Latinx communities are not a monolith and should not be reduced to a constellation of value systems. In this article, we identify some of the values associated with Latinx communities. We provide an overview regarding the ubiquity of Latinx cultural values and how they have been conceptualized and utilized within the field. We also specify some of the criticisms and shortcomings leveled in the professional literature as it relates to these values. Subsequently, we discuss critical consciousness in an effort to examine the values frequently ascribed to Latinx communities using personal testimonios, reflection questions, and a community movement. We take ourselves to task by employing a critical consciousness lens to consider the potential colonial roots of the few, specific values reflected in the testimonios, and how these values may be oppressive while perpetuating stereotypes. We end by discussing the importance of not leaving Latinx cultural values unexamined by educators, researchers, and practitioners and encouraging readers to consider the roots and implications of Latinx cultural values while striving for liberation from oppressive colonial narratives. Public Significance StatementThe Latinx communities are among the fastest growing in the United States. The psychological study of Latinx communities has focused on cultural values assuming their universality and centrality to all Latinxs. This article examines often-cited Latinx cultural values (e.g., familismo, marianismo, respeto) through a critical consciousness lens with the aim of exposing problematic elements and fostering liberation within the diverse Latinx communities in the United States.

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Grief, Loss, and Depression in Latino Caregivers and Families Affected by Dementia

Cited by 5 publications

References 79 publications

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

Grief and Bereavement in the Latino/a Community: A Literature Synthesis and Directions for Future Research

Usefulness and acceptability of an animation to raise awareness to grief experienced by carers of individuals with dementia

Applying critical consciousness through the use of testimonios to rethink Latinx cultural values.

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