GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research

Abstract

GRIPP2 (short form and long form) is the first international guidance for reporting of patient and public involvement in health and social care research. This paper describes the development of the GRIPP2 reporting checklists, which aim to improve the quality, transparency, and consistency of the international patient and public involvement (PPI) evidence base, to ensure that PPI practice is based on the best evidence

Stakeholder engagement to informHIVclinical trials: a systematic review of the evidence

“…Table 4 summarizes the results of our assessment of reporting quality, indicating the number of studies meeting seven criteria adapted from the GRIPP2 checklist to improve reporting of stakeholder involvement in health research 21. We also disaggregated our analysis of stakeholder engagement reporting quality by the type of HIV‐related trial that the stakeholder engagement was meant to inform (see Appendix 1).…”

“…Finally, to address gaps identified in reporting quality, HIV research journals should consider implementing policies about reporting stakeholder engagement. Checklists for reporting on stakeholder engagement 21, 133 may help to promote greater transparency as to what engagement efforts are undertaken in trials and how this engagement shapes the research process. This information will be particularly valuable for undertaking future research to evaluate the quality of stakeholder engagement.…”

“…It is possible that more engagement takes place “behind the scenes” of clinical trial research without making its way into published accounts of trial results. Improved reporting standards in accordance with guidance documents such as those used in our analysis of reporting quality 21 may help to provide further evidence for all research teams seeking to enhance their own engagement approaches, regardless of HIV trial type.…”

“…To assess reporting quality, we adapted the short form of a checklist on Guidance for Reporting Involvement of Patients and the Public (GRIPP) in health research 21 into a reporting quality assessment tool. All studies were assessed by one reviewer per study for inclusion of the following information: (1) description of stakeholder engagement purpose; (2) explanation for choice of stakeholder engagement method; (3) description of the development of stakeholder engagement methods used; (4) the number of stakeholders engaged; (5) the results of stakeholder engagement; (6) the impact of stakeholder engagement on trial design/conduct; and (7) discussion of limitations to the stakeholder engagement method used.…”

Research priority setting in childhood chronic disease: a systematic review

“…However, the involvement of children and parents/caregivers appears to be limited, and reporting of the priority setting process is incomplete at best. We recommend the use of the Guidance for Reporting Involvement of Patients and the Public checklist, which was developed to help improve the quality, consistency and transparency of reporting patient and public involvement in research 118. Research priority setting partnerships need to be more transparent and involve patients and parents/caregivers to help ensure that resources are directed towards the shared priorities of children with chronic disease, their families and clinicians involved in their care.…”