Group-based patient education via videoconference: A scoping review

Vaagan, André; Haaland-Øverby, Mette; Eriksen, Alison Axisa; Fredriksen, Kari; Stenov, Vibeke; Varsi, Cecilie; Ingadóttir, Brynja; Cleal, Bryan Richard; Alvheim, Anita Røyneberg; Westermann, Karl Fredrik; Strømme, Hilde; Kristjansdottir, Olöf Birna

doi:10.1016/j.pec.2023.108026

Cited by 2 publications

(1 citation statement)

References 77 publications

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“…The attrition rates of 24% for the intervention group and 40% for the control group are relatively higher than our expectation, and the typically observed dropout rates reported in other telehealth caregiver training programs ( Akemoglu et al, 2020 ; Vaagan et al, 2023 ). Telepractice has the advantages of saving commute time and hence supporting more flexible training schedule.…”

Section: Discussioncontrasting

confidence: 61%

Empowering Hong Kong Chinese families with autism: A preliminary study of the online Hanen More Than Words Program

Qi,

Zhao,

2024

Autism & Developmental Language Impairments

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Purpose Parent involvement is crucial for tailored early intervention programs. The Hanen More Than Words (HMTW) program is a parent-implemented language intervention for autistic children. The current study examined the effectiveness of the HMTW program delivered online among Chinese families. Methods Using a randomized controlled trial design, 22 Chinese families of autistic children in Hong Kong completed the trial. Baseline and post-intervention assessments were conducted to measure changes in parent-child interaction, parents’ use of linguistic facilitation techniques (LFTs), and children's communication skills. Additionally, the influence of parental self-efficacy and parenting stress on treatment outcomes was explored. Results The intervention group demonstrated significant improvements in parent-child attention synchrony. Although the treatment effect on children's spontaneous communication was not significant, the intervention group showed a larger effect size compared to the controls. The treatment outcomes were mainly influenced by the parents’ initial levels of self-efficacy but not by parenting stress. Conclusion These findings provide preliminary evidence of the effectiveness of the online-delivered HMTW program for Chinese parents of autistic children. Further research involving a larger sample and focusing on long-term effects is needed.

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Section: Discussioncontrasting

confidence: 61%

Empowering Hong Kong Chinese families with autism: A preliminary study of the online Hanen More Than Words Program

Qi,

Zhao,

2024

Autism & Developmental Language Impairments

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An Evidence-Based Nurse-Led Intervention to Reduce Diabetes Distress Among Adults With Type 1 Diabetes and Diabetes Distress (REDUCE): Development of a Complex Intervention Using Qualitative Methods Informed by the Medical Research Council Framework

Stenov,

Cleal,

Willaing

et al. 2024

JMIR Form Res

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Background Diabetes distress refers to the negative emotional reaction to living with the demands of diabetes; it occurs in >40% of adults with type 1 diabetes (T1D). However, no interventions to reduce diabetes distress are specifically designed to be an integral part of diabetes care. Objective This study aims to modify and adapt existing evidence-based methods into a nurse-led group intervention to reduce diabetes distress among adults with T1D and moderate to severe diabetes distress. Methods The overall framework of this study was informed by the initial phase of the Medical Research Council’s complex intervention framework that focused on undertaking intervention identification and development to guide the adaptation of the intervention. This study took place at 2 specialized diabetes centers in Denmark from November 2019 to June 2021. A total of 36 adults with T1D participated in 10 parallel workshops. A total of 12 diabetes-specialized nurses were interviewed and participated in 1 cocreation workshop; 12 multidisciplinary specialists, including psychologists, educational specialists, and researchers, participated in 4 cocreation workshops and 14 feedback meetings. Data were analyzed by applying a deductive analytic approach. Results The intervention included 5 biweekly 2.5-hour small group sessions involving adults with T1D and diabetes distress. Guided by a detailed step-by-step manual, the intervention was delivered by 2 trained diabetes specialist nurses. The intervention material included visual conversation tools covering seven diabetes-specific sources derived from the 28-item Type 1 Diabetes Distress Scale for measuring diabetes distress: (1) powerlessness, (2) self-management, (3) fear of hypoglycemia, (4) food and eating, (5) friends and family, (6) negative social perception, and (7) physician distress. The tools are designed to kick-start awareness and sharing of diabetes-specific challenges and strengths, individual reflections, as well as plenary and peer-to-peer discussions about strategies to manage diabetes distress, providing new perspectives on diabetes worries and strategies to overcome negative emotions. Diabetes specialist nurses expressed a need for a manual with descriptions of methods and detailed guidelines for using the tools. To deliver the intervention, nurses need increased knowledge about diabetes distress, how to support diabetes distress reduction, and training and supervision to improve skills. Conclusions This co-design study describes the adaptation of a complex intervention with a strong evidence base, including detailed reporting of the theoretical underpinnings and core mechanisms.

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Group-based patient education via videoconference: A scoping review

Cited by 2 publications

References 77 publications

Empowering Hong Kong Chinese families with autism: A preliminary study of the online Hanen More Than Words Program

Empowering Hong Kong Chinese families with autism: A preliminary study of the online Hanen More Than Words Program

An Evidence-Based Nurse-Led Intervention to Reduce Diabetes Distress Among Adults With Type 1 Diabetes and Diabetes Distress (REDUCE): Development of a Complex Intervention Using Qualitative Methods Informed by the Medical Research Council Framework

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