Growing Health Disparities for Persons Who Are Aging With Intellectual and Developmental Disabilities: The Social Work Linchpin

Robinson, Laura M.; Dauenhauer, Jason; Bishop, Kathleen M.; Baxter, Joanne

doi:10.1080/01634372.2011.644030

Cited by 29 publications

(30 citation statements)

References 40 publications

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“…At the micro level, social workers may have a variety of responsibilities and a key role in assessing, coordinating care, counseling, and negotiating services (Khalaila, 2014;Parish & Lutwick, 2005;Robinson, Dauenhauer, Bishop, & Baxter, 2012). At this point, there are variances in support from healthcare professionals.…”

Section: Implications For Social Work Practicementioning

confidence: 97%

Psychological Trauma and LGBT Caregivers: A Conceptual Framework to Guide Practice

Glaesser

Patel

2016

Journal of Evidence-Informed Social Work

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LGBT adults face unique risk factors such as social isolation, discrimination, and victimization, and occasionally th ey engage in detrimental behaviors like high alcohol and drug use and risky sexual activity that negatively impacts psychological/physical health. These risks can affect their overall health and stress the relationship with an older caregiver/recipient-partner following exposure to acute medical event. The experience of an acute medical event among a LGBT caregiving partner can result in psychological trauma. In this article the authors present a conceptual framework involving stress process theory, life course theory, and family systems perspective to understand the effect of stressors on LGBT caregiving partners. Implications for social work practice include assessing, coordinating care, counseling and negotiating services at micro level, engaging family-centered approaches to support positive transition to caregiving role at mezzo level, and advocating for policy and cultural shifts to supports and diminish stigma of this group.

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Section: Implications For Social Work Practicementioning

confidence: 97%

Psychological Trauma and LGBT Caregivers: A Conceptual Framework to Guide Practice

Glaesser

Patel

2016

Journal of Evidence-Informed Social Work

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“…Caregiver awareness of symptoms and familiarity with the adult's life history are important starting points in assembling information to share at the healthcare interview (Bishop et al, 2013;Bishop & Lucchino, 2010;Moran et al, 2013;Perkins, 2007;Robinson et al, 2012;Service et al, 2006) Thus, the NTG recommends that whenever possible caregivers document and retrieve life histories to ensure that this information is available as part of dementia-related health advocacy (see Table 1Guideline 3).…”

Section: Information and Awareness (Caregivers)mentioning

confidence: 97%

“…Lack of adequate information about the implications of changes in function and behavior and inability to differentiate between expected and unexpected changes are additional impediments. Also, the degree of lifelong cognitive impairment and myths and stereotypes about those impairments may impede early recognition of changes (Bishop & Lucchino, 2010;Robinson et al, 2012). Severity of cognitive impairment may also be a factor.…”

Section: Information and Awareness (Caregivers)mentioning

confidence: 98%

“…Given the nature of the problems encountered, it may fall on family, friends, and staff to become advocates. Being alert to suspicions, noting the areas of concern, locating the appropriate practitioner to make an assessment, arranging for assessment visits, and following through on dementia care and support recommendations all fall under the concept of dementia-related health advocacy (Bishop et al, 2013;Keller, 2013;Robinson, Dauenhauer, Bishop, & Baxter, 2012). The NTG posits that the aims of health advocacy related to dementia and intellectual disability include the following: (a) representing the interests of adults suspected of having or being impacted by dementia; (b) aiding in ensuring that all health matters, irrespective of the presence of dementia, receive attention; and (c) initiating and following through on contacts with the health system.…”

Section: Dementia and Health Advocacymentioning

confidence: 99%

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Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and Dementia: National Task Group on Intellectual Disabilities and Dementia Practices

Bishop

Hogan

Janicki³

et al. 2015

Intellectual and Developmental Disabilities

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Increasing numbers of adults with intellectual disabilities (ID) are living into old age. Though this indicates the positive effects of improved health care and quality of life, the end result is that more adults with ID are and will be experiencing age-related health problems and also exhibiting symptoms of cognitive impairment and decline, some attributable to dementia. Early symptoms of dementia can be subtle and in adults with ID are often masked by their lifelong cognitive impairment, combined with the benign effects of aging. A challenge for caregivers is to recognize and communicate symptoms, as well as find appropriate practitioners familiar with the medical issues presented by aging adults with lifelong disabilities. Noting changes in behavior and function and raising suspicions with a healthcare practitioner, during routine or ad hoc visits, can help focus the examination and potentially validate that the decline is the result of the onset or progression of dementia. It can also help in ruling out reversible conditions that may have similar presentation of symptoms typical for Alzheimer's disease and related dementias. To enable caregivers, whether family members or staff, to prepare for and advocate during health visits, the National Task Group on Intellectual Disabilities and Dementia Practices has developed guidelines and recommendations for dementia-related health advocacy preparation and assistance that can be undertaken by provider and advocacy organizations.

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“…Consequently, the number of individuals aging with IDD is also expected to increase, twofold from 2000 to 2030 reaching nearly 1.28 million adults aged 60 years or older (Robinson, Dauenhauer, Bishop, & Baxter, 2012). Data from the U.S. Census Bureau (2012) indicate that nearly one fifth of the noninstitutionalized U.S. population is currently living with some form of disability and that prevalence of disability also rises with age.…”

Section: Introductionmentioning

confidence: 98%

Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities

et al. 2015

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While end-of-life issues are increasingly gaining more attention, people with intellectual and developmental disabilities (IDD) continue to receive significantly less consideration in research, education, and clinical practice compared with the general population. This is a growing concern especially since the sheer number of persons aging with IDD is expected to double in the next 17 years. Furthermore, policies are shifting to reflect a preference for home and community-based services as an alternative to institutionalization, and it becomes evident that adult day services (ADS) may be ideal settings for receipt of end-of-life care, especially among individuals with IDD. However, end-of-life care and advance planning most commonly occur in long-term care settings for the general population and have historically been less of a priority in ADS and residential services for people with IDD. This article discusses the attitudes of, and collaboration between, ADS and end-of-life providers for aging adults including persons with IDD and explores how ADS may be a great pathway for delivering end-of-life care to the IDD population. Implications and recommendations will also be examined.

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Growing Health Disparities for Persons Who Are Aging With Intellectual and Developmental Disabilities: The Social Work Linchpin

Cited by 29 publications

References 40 publications

Psychological Trauma and LGBT Caregivers: A Conceptual Framework to Guide Practice

Psychological Trauma and LGBT Caregivers: A Conceptual Framework to Guide Practice

Guidelines for Dementia-Related Health Advocacy for Adults With Intellectual Disability and Dementia: National Task Group on Intellectual Disabilities and Dementia Practices

Promoting Collaboration Between Hospice and Palliative Care Providers and Adult Day Services for Individuals With Intellectual and Developmental Disabilities

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