Growing in Adversity: A Narrative Study of Resilience Generation in Chinese Families of Children with ASD

Abstract

Referring to Walsh’s theoretical framework of family resilience while taking into account China’s own cultural and institutional context, this study discussed the process of resilience generation in Chinese families of children with ASD. A qualitative approach was taken, using narrative research on 10 Chinese families of children with ASD. Category-content analysis of the data suggests that the generation of resilience in Chinese families of children with ASD is influenced by four factors: (A) cultivating positive family beliefs; (B) adjustment of the family’s organizational pattern; (C) extending external resources positively; and (D) optimizing family communication. Unlike family resilience generation mechanisms in Western countries that emphasize religious beliefs, intrinsic traits, and resources, the resilience of Chinese families of children with ASD is based on a family value system based on a sense of responsibility and the application of internal and external family resources, which is undoubtedly related to China’s long-standing emphasis on collectivist culture. This study has theoretical reference value for the implementation of related social work services.

Interplay between Tradition and Modernity: Stress and Coping Experiences among Parents of Children with Autism in Beijing, China

“…In line with the previous studies [39,40], the traditional Chinese parenting approach, characterized by its authoritarian nature, remains prevalent among parents. This authoritarian style emphasizes discipline as a primary means of addressing children's behavioral challenges, often using tactics such as behavioral reinforcement and, at times, punishment [74].…”

“…Within a collectivist culture that places a high value on social responsibilities, personal obligations, and family unity, familial ties often grow stronger. Grandparents often contribute significantly to daily parenting activities [39], and parents demonstrate remarkable self-sacrifice by altering their personal lives for the well-being of their children [32,40,41].…”

“…An unexpected finding is that grandparents of the child with autism often resist acknowledging the diagnosis and are hesitant to embrace early interventions. While their active involvement in caregiving reflects the deep-rooted familial bonds inherent in Chinese culture [39], these differences in attitudes toward autism treatment contribute to increased parenting stress among the younger generation. Addressing this issue presents a complex task.…”

Resilience and family quality of life in parents of children with autism spectrum disorders

“…A narrative study conducted in China explored resilience in families of children with ASD and found that cultivating positive family beliefs, adjusting the family's organizational pattern, actively expanding external resources, and optimizing family communication enhanced family resilience and coping with adversity (Gao et al, 2023). Acceptance of the diagnosis was identified as a crucial step for families to develop resilience and adapt to the changes they face together (Frye, 2016).…”