Haemophilia Joint Health Score in healthy adults playing sports

Sluiter, D.; Foppen, Wouter; Kleijn, P. de; Fischer, Kathelijn

doi:10.1111/hae.12290

Cited by 36 publications

(46 citation statements)

References 20 publications

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“…The Hemophilia Joint Health Score (HJHS), which was recently developed by a consensus of experts, is sensitive to early changes such as mild stage arthropathy [17]. Although originally created for the paediatric population, it has been used in adults, although this use has not been validated [18–20]. The HJHS has demonstrated excellent inter-rater and intra-rater reliability, even in inexperienced assessors in a country with limited access to haemophilia services [21,22].…”

Section: Resultsmentioning

confidence: 99%

Evaluation of early musculoskeletal disease in patients with haemophilia

Seuser¹,

Khayat

Négrier³

et al. 2018

Blood Coagulation &Amp; Fibrinolysis

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Early joint damage in patients with haemarthrosis often escapes diagnosis because of insufficient investigation of biomechanical changes. Arthropathy in haemophilia requires complex assessment with several tools. Considering the increased emphasis on an integrated approach to musculoskeletal (MSK) outcomes, re-evaluation of MSK assessment to address individual patient needs is warranted. To advise on the optimal use of current assessment tools and strategies for tailored MSK evaluation in patients with haemophilia. A panel of experts in haemophilic arthropathy evaluated internationally recognized assessment tools through published literature and personal expertise. Each tool was considered, scored and ranked for their utility in the clinical assessment of MSK damage. Subsequently, a patient evaluation table detailing advice on type and frequency of assessments for different patient populations was constructed. To obtain a complete MSK assessment, multiple tools must be used to ensure each criterion is evaluated. For patients with haemophilia, clinical examination of the joint, disease-specific structure/function scores, and activity/participation scores including quality of life are important, and should be performed on a regular basis according to age and clinical condition. Joint imaging is recommended in the prevention, diagnosis and follow-up of haemophilic arthropathy and should be used in conjunction with joint structure and function scores. An integrated approach to MSK assessment using combinations of tools will allow earlier management of dysfunction and may improve long-term outcomes. This approach could be used in long-term follow-up of all patients independent of age and disease stage, especially in children to prevent arthropathy.

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Section: Resultsmentioning

confidence: 99%

Evaluation of early musculoskeletal disease in patients with haemophilia

Seuser¹,

Khayat

Négrier³

et al. 2018

Blood Coagulation &Amp; Fibrinolysis

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show abstract

“…Cut‐off points for clinical relevant changes were ≥|4| for the HJHS‐total score and ≥|2| on joint level. Cut‐off points were based on expert opinion (KF, MT) and a published range of 0‐3 points on the HJHS‐total score in young adults without haemophilia . Differences in HJHS‐total scores between T0 and T1 were tested by the non‐parametric Wilcoxon signed‐rank test.…”

Section: Methodsmentioning

confidence: 99%

Monitoring joint health in haemophilia: Factors associated with deterioration

et al. 2017

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“…It is unlikely that joint bleeding caused by competitive sports explains our findings. Sluiter et al evaluated 120 joints in 30 healthy adult men with frequent sports participation (≥4 times a week), and found no instances of abnormal IPSG MRI scores [5]. Similarly, Di Minno et al reported normal joint findings utilizing both ultrasound and MRI in their normal healthy volunteers [6].…”

mentioning

confidence: 99%