Hard to reach families—A methodological approach to early recognition, recruitment, and randomization in an intervention study

Neuhauser, Alex; Ramseier, Erich; Schaub, Simone; Burkhardt, Susan C. A.; Templer, Franziska; Lanfranchi, Andrea

doi:10.1016/j.mhp.2015.07.002

Cited by 18 publications

(13 citation statements)

References 33 publications

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“…We controlled for the mothers’ proficiency in German in the analyses, but we cannot exclude the possibility that the language heterogeneity led to additional error variance. At the same time, however, we see the intercultural makeup of the sample and the demonstrated psychosocial risk of the families as unique strengths of the ZEPPELIN study (Neuhauser et al., ). Finally, validation of the German version of the Bayley‐III is still in its infancy.…”

Section: Discussionmentioning

confidence: 82%

“…Using these criteria, 587 families were identified as potentially risk‐exposed during the recruitment phase. Of these, 251 families (264 children, 26 twins) participated in the project and baseline data collection (Neuhauser et al., ). Data on 3 families were excluded because of a diagnosis of severe disability after the baseline data collection, and 4 families were excluded from the analyses due to lack of a psychosocial stress constellation (the score on the HBS was <20, which indicated “insufficient” psychosocial stress for the study).…”

Section: Methodsmentioning

confidence: 99%

“…After enrollment, families were assigned to the IG and CG by stratified block randomization (Neuhauser et al., ). Stratification aspects were (a) study site (three sites), (b) cumulative risk factors (high vs. low), (c) single parent (yes/no), and (d) German language skills (needs translation: yes/no).…”

Section: Methodsmentioning

confidence: 99%

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Mediating Role of Maternal Sensitivity: Enhancing Language Development in At‐risk Families

Neuhauser

Ramseier

Schaub

et al. 2018

Infant Mental Health Journal

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Home-visiting programs have gained increasing importance in family-centered prevention and intervention. However, few studies have examined the mechanisms underlying early intervention treatment effects. The goal of this study is to analyze the mediating role of maternal sensitivity in enhancing language development with the home-visiting program Parents as Teachers (PAT). Data were collected and analyzed within the ongoing, long-term ZEPPELIN study, a randomized controlled trial with 251 participating at-risk families. Via longitudinal mediation analysis, we examined whether effects of the PAT on receptive and expressive language outcomes at 24 and 36 months were mediated by maternal sensitivity at 12 months. Within a moderated mediation framework, we investigated whether the level of family psychosocial stress affects this mediation. Results showed that intervention effects on language outcomes are mediated by maternal sensitivity-weakly and through specific pathways. Moderation and moderated mediation analyses indicated that effects of the PAT and also specific mediation effects increase with the level of psychosocial stress. Implications of the results for practice are discussed.

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Section: Discussionmentioning

confidence: 82%

Section: Methodsmentioning

confidence: 99%

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Mediating Role of Maternal Sensitivity: Enhancing Language Development in At‐risk Families

Neuhauser

Ramseier

Schaub

et al. 2018

Infant Mental Health Journal

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“…The data stems from a survey by the Swiss Federation of Midwives (SHV/FSSF). A list of familial psychosocial risk factors has been derived from three German-language screening instruments applied in practice: the 'Ludwigshafener peripartaler Erhebungsbogen (LupE)' (Filsinger, Gehrmann, Bechtold, Ziegenhein, & Kindler, 2007;Schürmann-Ebenfeld & Kindler, 2015), the 'KINDEX' interview (Spyridou et al, 2015) and the short screening 'ZEPPELIN' (Neuhauser et al, 2014). All items that were present in at least one of the three screening instruments have been chosen for the list of risk factors for this study.…”

Section: Methodsmentioning

confidence: 99%

Postpartum midwifery care and familial psychosocial risk factors in Switzerland: A secondary data analysis / Hebammenbetreuung im Wochenbett und familiäre psychosoziale Risikofaktoren in der Schweiz: eine Sekundäranalyse

Erdin

Iljuschin

Pehlke-Milde

2017

International Journal of Health Professions

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Introduction: Psychosocial resources of parents are vital for the health and development of their children. Families in stressful circumstances should receive early seamless care to strengthen their parental resources. Independent midwives provide ambulant postpartum care in most families in Switzerland, and hence could play an important role in the early assessment and care of families at risk. Methods: Comprehensive routine data of Swiss independent midwives were used for secondary analysis. Frequencies of known psychosocial risk factors were derived and compared to other data sources. Group comparisons were made with respect to family characteristics and midwifery care. Results: Only some of the considered risk factors are representable in the midwives' data. 18.6% of all families have one and 6.25% have multiple such representable risk factors. Immigrant mothers from developing and emerging countries, very young or older mothers and large families are thereby particularly often affected. Burdened families receive more home visits, but have a later onset of ambulant postpartum care. They suffer more often from breast-feeding problems and are more frequently referred to other disciplines. Discussion: Independent midwives in Switzerland document some of the known psychosocial risk factors and adapt their care in routine practice. The collection of data with a better coverage of the known psychosocial risk factors, ideally using validated assessment instruments, is recommended, and further research is required for a more in-depth understanding of the current interdisciplinary collaboration and the needs of families and care providers.

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“…A solution favoured by many is to develop recruitment procedures that target underrepresented groups. However, even then, many researchers fail to meet their targets, either because under-representative groups are less likely to sign up to research, or because they are more likely to drop-out before the end (Justice, Logan, & Damschroder, 2015;Lengua et al, 1992;Neuhauser et al, 2015). Such groups are traditionally described as 'hard to reach'.…”

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confidence: 99%

Barriers and solutions to participation in family-based education interventions

Lingwood

Levy

Billington

et al. 2019

International Journal of Social Research Methodology

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The fact that many sub-populations do not take part in research, especially participants from lower socioeconomic (SES) backgrounds, is a serious problem in education research. To increase the participation of such groups we must discover what social, economic and practical factors prevent participation, and how to overcome these barriers. In the current paper, we review the literature on this topic, before describing a case study that demonstrates four potential solutions to four barriers to participation in a shared reading intervention for families from lower SES backgrounds. We discuss the implications of our findings for familybased interventions more generally, and the difficulty of balancing strategies to encourage participation with adhering to the methodological integrity of a research study. ARTICLE HISTORY

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Hard to reach families—A methodological approach to early recognition, recruitment, and randomization in an intervention study

Cited by 18 publications

References 33 publications

Mediating Role of Maternal Sensitivity: Enhancing Language Development in At‐risk Families

Mediating Role of Maternal Sensitivity: Enhancing Language Development in At‐risk Families

Postpartum midwifery care and familial psychosocial risk factors in Switzerland: A secondary data analysis / Hebammenbetreuung im Wochenbett und familiäre psychosoziale Risikofaktoren in der Schweiz: eine Sekundäranalyse

Barriers and solutions to participation in family-based education interventions

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