Health Care Interactions with Deaf Culture

Meador, Helen E.; Zazove, Philip

doi:10.3122/jabfm.18.3.218

Cited by 305 publications

(103 citation statements)

References 17 publications

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“…A diminuição da percepção auditiva faz com que necessitem de atendimento diferenciado e suporte clínico sistematizado, caso queiram adquirir habilidades de comunicação lato sensu na modalidade oral (Wrigley, 1996;Meador, Zazove, 2005). A abordagem oralista trabalha com a aprendizagem da fala para a função de emissão e o treino da leitura labial para a recepção da mensagem.…”

Section: Historical Social and Cultural Aspects Of The Deaf Populationunclassified

“…A população de surdos constitui grupo heterogêneo e inclui pessoas que têm vários graus de perda auditiva, utilizam diversos meios para se comunicar e pertencem a diferentes culturas (Meador, Zazove, 2005). A cultura é "onde se define não apenas a forma que o mundo deve ter, mas também a forma como as pessoas e os grupos devem ser, sendo, portanto, um campo de lutas em torno da significação do social" (Silva, 1999, p.143).…”

Section: A História Dos Surdos No Brasilunclassified

“…A lei garante a acessibilidade comunicativa, mas as pesquisas encontradas não confirmam melhoras de interações comunicativas nos sistemas de saúde (Ralston, Zazove, Gorenflo, 1996;Hudson, 2004;Meador, Zazove, 2005).…”

Section: Implicações Da Surdez No Atendimento à Saúdeunclassified

“…A comunicação é um elemento fundamental nas relações paciente/profissional da saúde e precisa ter sua qualidade assegurada, pois sem ela a interação pode ficar prejudicada, comprometendo a compreensão e adesão ao tratamento; a ausência de clareza dos procedimentos de cuidados com a saúde pode gerar riscos (Ralston, Zazove, Gorenflo, 1996;Meador, Zazove, 2005;Chaveiro, Porto, Barbosa, 2008).…”

Section: Implicações Da Surdez No Atendimento à Saúdeunclassified

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Aspectos históricos e socioculturais da população surda

Duarte

Chaveiro

Freitas

et al. 2013

Hist. cienc. saude-Manguinhos

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Section: Historical Social and Cultural Aspects Of The Deaf Populationunclassified

Section: A História Dos Surdos No Brasilunclassified

Section: Implicações Da Surdez No Atendimento à Saúdeunclassified

See 2 more Smart Citations

Aspectos históricos e socioculturais da população surda

Duarte

Chaveiro

Freitas

et al. 2013

Hist. cienc. saude-Manguinhos

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“…Furthermore, they are in general reluctant to contact healthcare personnel (Barnett & Franks, 2002;Meador & Zazove, 2005). There is therefore a lack of knowledge about older deaf sign language users health status, activity repertoires and social contacts and about the actual relationships between these variables.…”

Section: Introductionmentioning

confidence: 99%

Everyday activities and social contacts among older deaf sign language users: Relationships to health and well‐being

Werngren-Elgström

Brandt²,

Iwarsson

2006

Occupation Therapy Intl

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The purpose of this study was to describe the everyday activities and social contacts among older deaf sign language users, and to investigate relationships between these phenomena and the health and wellbeing within this group. The study population comprised deaf sign language users, 65 years or older, in Sweden. Data collection was based on interviews in sign language, including open-ended questions covering everyday activities and social contacts as well as self-rated instruments measuring aspects of health and subjective wellbeing. The results demonstrated that the group of participants was homogeneous in their productive and leisure activities, regardless of gender and age. The number of productive activities was related to all aspects of health, while the number of leisure activities was related to perceived health and subjective wellbeing. No significant relationship was found between aspects of health and subjective wellbeing and the frequency of social contacts with family/relatives or of visits at the deaf club meeting friends. It is concluded that the variety of activities at the deaf clubs are important for the subjective wellbeing of older deaf sign language users. Further research should investigate the importance and perceived value of the various activities at the deaf clubs. When evaluating the results of this study, the fact that the total number of participants was small, and the dropout rate was high, has to be borne in mind.

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Association of Patient Comorbid Conditions With Cancer Clinical Trial Participation

et al. 2019

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the US Food and Drug Administration recently recommended modernizing criteria related to comorbidities routinely used to exclude patients from cancer clinical trials. The goal was to design clinical trial eligibility such that trial results better reflect real-world cancer patient populations, to improve clinical trial participation, and to increase patient access to new treatments in trials. Yet despite the assumed influence of comorbidities on trial participation, the relationship between patients' comorbidity profile at diagnosis and trial participation has not been explicitly examined using patient-level data.OBJECTIVES To investigate the association between comorbidities, clinical trial decision-making, and clinical trial participation; and to estimate the potential impact of reducing comorbidity exclusion criteria on trial participation, to provide a benchmark for changing criteria. DESIGN, SETTING, AND PARTICIPANTSA national survey was embedded within a web-based cancer treatment-decision tool accessible on multiple cancer-oriented websites. Participants must have received a diagnosis of breast, lung, colorectal, or prostate cancer. In total, 5499 surveyed patients who made a treatment decision within the past 3 months were analyzed using logistic regression analysis and simulations.EXPOSURES Cancer diagnosis and 1 or more of 18 comorbidities. MAIN OUTCOMES AND MEASURESPatient discussion of a clinical trial with their physician (yes vs no); if a trial was discussed, the offer of trial participation (yes vs no); and, if trial participation was offered, trial participation (yes vs no). RESULTSOf the 5499 patients who participated in the survey, 3420 (62.6%) were women and 2079 (37.8%) were men (mean [SD] age, 56.63 [10.05] years). Most patients (65.6%; n = 3610) had 1 or more comorbidities. The most common comorbid condition was hypertension (35.0%; n = 1924). Compared with the absence of comorbidities, the presence of 1 or more comorbidities was associated with a decreased risk of trial discussions (44.1% vs 37.2%; OR, 0.86; 95% CI, 0.75-0.97; P = .02), trial offers (21.7% vs 15.7%; OR, 0.82; 95% CI, 0.70-0.96; P = .02), and trial participation (11.3% vs 7.8%; OR, 0.76; 95% CI, 0.61-0.94; P = .01). The removal of the ASCO-recommended comorbidity restrictions could generate up to 6317 additional patient trial registrations every year.CONCLUSIONS AND RELEVANCE Independent of sociodemographic variables, the presence of comorbidities is adversely associated with trial discussions, trial offers, and trial participation itself. Updating trial eligibility criteria could provide an opportunity for several thousand more patients with well-managed comorbidities to participate in clinical trials each year.

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Health Care Interactions with Deaf Culture

Cited by 305 publications

References 17 publications

Aspectos históricos e socioculturais da população surda

Aspectos históricos e socioculturais da população surda

Everyday activities and social contacts among older deaf sign language users: Relationships to health and well‐being

Association of Patient Comorbid Conditions With Cancer Clinical Trial Participation

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