Health care providers’ and patients’ perspectives on care in HIV ambulatory clinics across Ontario

Laschinger, Susan; Manen, Lori Van; Stevenson, T. H. C.; Fothergill‐Bourbonnais, Frances

doi:10.1016/j.jana.2004.11.004

Cited by 8 publications

(19 citation statements)

References 14 publications

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“…Seventeen (74%) of studies lacked detail on one or more aspects of the methodology used. For qualitative studies there was little information on the interaction between the researcher and participants [15–17, 20–25, 27–29] and how findings related to the context in which the data were collected [15, 22–24, 27, 28]. …”

Section: Resultsmentioning

confidence: 99%

“…Patients emphasised the importance of building a good relationship with their HIV doctor [27], with trust being a key feature of the relationship [20, 25]. Continuity was important – patients preferred to see the same HCP at each appointment to avoid having to repeat their story to someone who did not fully understand their needs [24, 27]. …”

Section: Resultsmentioning

confidence: 99%

“…Important personal qualities of HCPs included being caring, compassionate, approachable, friendly, familiar, respectful, understanding, supportive and having a positive attitude [15, 20, 21, 24, 26–28]. Valued behaviours included making eye contact, smiling, showing concern, spending time talking to the patient and speaking kindly to the patient [15, 16, 24, 26].…”

Section: Resultsmentioning

confidence: 99%

“…Valued behaviours included making eye contact, smiling, showing concern, spending time talking to the patient and speaking kindly to the patient [15, 16, 24, 26]. Patients highlighted the importance of being treated as an individual [24–26]. One paper highlighted the importance to patients of being treated as a ‘normal’ person with a ‘normal’ illness [16].…”

Section: Resultsmentioning

confidence: 99%

“…However, it was suggested that primary care physicians in rural settings should be provided with training in HIV in order to combat perceived stigma and isolation among patients in these communities [24]. …”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Which aspects of health care are most valued by people living with HIV in high-income countries? A systematic review

Cooper

Clatworthy

Youssef

et al. 2016

BMC Health Serv Res

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BackgroundIncreasing numbers of people with HIV are living into older age and experiencing comorbidities. The development of new models of care to meet the needs of this population is now a priority. It is important that the views and preferences of patients inform the development of services in order to maintain high levels of patient satisfaction and engagement. The aim of this systematic review was to determine which aspects of healthcare are particularly valued by people living with HIV.MethodsWe searched electronic databases and reference lists of relevant articles. The search strategy was developed to identify articles reporting on HIV positive patients’ perceptions, evaluations or experiences of healthcare services and factors associated with satisfaction with care. Peer-reviewed papers and conference abstracts were included if the study reported on aspects of health care that were valued by people living with HIV, data were collected during the era of combination therapy (from 1996 onwards), and the paper was published in English. A thematic approach to data synthesis was used.ResultsTwenty-three studies met the inclusion criteria. Studies used both qualitative and quantitative methods. Six studies specifically reported on relative importance to patients of different aspects of care. The valued aspects of care identified were grouped into seven themes. These highlighted the importance to patients of: a good health care professional-patient relationship, HIV specialist knowledge, continuity of care, ease of access to services, access to high quality information and support, effective co-ordination between HIV specialists and other healthcare professionals, and involvement in decisions about treatment and care. We were unable to determine the relative importance to patients of different aspects of care because of methodological differences between the studies.ConclusionsThis review identified several attributes of healthcare that are valued by people living with HIV, many of which would be relevant to any future reconfiguration of services to meet the needs of an ageing population. Further research is required to determine the relative importance to patients of different aspects of care.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Which aspects of health care are most valued by people living with HIV in high-income countries? A systematic review

Cooper

Clatworthy

Youssef

et al. 2016

BMC Health Serv Res

View full text Add to dashboard Cite

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The Nature of Multidisciplinary HIV Care in the Ambulatory Setting: A Synthesis of the Literature

Manen¹,

Laschinger²,

Stevenson³

et al. 2005

Journal of the Association of Nurses in AIDS Care

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The purpose of this article is to provide a critical appraisal and synthesis of the literature relating to the provision of multidisciplinary HIV care in the ambulatory setting. As more people are living with HIV infection, and living longer, the demand for chronic care is great. Knowing what optimal care and treatment for people living with HIV/AIDS is and how to provide that care is an ongoing challenge. The literature suggests that the provision of care for HIV-infected individuals varies across and within HIV/AIDS clinics. This variability in care practices may influence the health and well-being of patients, and negatively impact on access to such care by people with HIV/AIDS. The goal of reviewing the literature on HIV-ambulatory clinics was to provide a description of a typical clinic, its staffing components, the care practices carried out at such a clinic (and by whom), and some barriers to providing optimal care. The ultimate goal of this review is to establish what is currently known about the provision of these services so that this information may build on existing knowledge and thereby standards of care for HIV-ambulatory clinics can be developed that could be implemented on a wide-scale basis.

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Met and unmet palliative care needs of people living with HIV/AIDS in Rwanda

Uwimana

Struthers

2007

SAHARA-J: Journal of Social Aspects of HIV/AIDS

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The rising number of people living with HIV/AIDS (PLWHA) worldwide has made health care professionals and policy makers search for accessible health care that will meet the needs of people who are suffering from the disease and enhance their quality of life (QoL). This study investigated met and unmet palliative care needs of PLWHA in selected areas in Rwanda. The study sample included 306 participants: PLWHA, health care professionals and coordinators of HIV/AIDS units. Quantitative and qualitative methodologies were used. The data were analysed separately and then triangulated. In the findings, over 50% of PLWHA had symptoms related to HIV/AIDS most of the time, with the most common symptom being pain. Participation in activities of daily living was significantly associated with the health status of PLWHA (p<0.001). The most common perceived palliative care needs of PLWHA were medical needs, psychosocial needs and the need for financial assistance (77%); home-based care (47%); nutritional support (44%); and pain relief and management of other symptoms (43%). Most PLWHA indicated these palliative care needs were unmet, in particular the need for pain relief, symptom management, financial assistance and nutritional support. Over 50% of health care professionals reported they were not trained in palliative care. They indicated that inadequate policy and resources were the main obstacles to the provision of optimal palliative care. Addressing unmet palliative care needs would enhance the QoL of PLWHA. In addition, developing policy related to the provision of palliative care and building the capacity of health care providers is essential for the provision of adequate palliative care services in Rwanda.

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Health care providers’ and patients’ perspectives on care in HIV ambulatory clinics across Ontario

Cited by 8 publications

References 14 publications

Which aspects of health care are most valued by people living with HIV in high-income countries? A systematic review

Which aspects of health care are most valued by people living with HIV in high-income countries? A systematic review

The Nature of Multidisciplinary HIV Care in the Ambulatory Setting: A Synthesis of the Literature

Met and unmet palliative care needs of people living with HIV/AIDS in Rwanda

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