“…We believe that these results can also be useful in clinical practice, because a deeper understanding of patients’ experience of haemophilia can help the HCPs to consider the subjective, developmental, and cultural aspects that often remain unstated within interactions, thus fostering therapeutic alliance with them (Khair, 2013 ; Sorrentino, Guglielmetti, Gilardi, & Marsilio, 2015 ). In particular, this explorative study suggests the following considerations: - counselling for PWH should address social and family relations including the fear of stigma, the fear of rejection, lack of confidence, and communication with carers who tend to overprotect PWH;
- HCPs should take into account that the fear of HIV/HCV infection through blood can still be present, even in rich developed countries;
- the interpersonal relationships with HCPs, economic concerns, and the perceived costs of the illness should also be addressed, particularly in the context of private health care systems, as in the USA;
- psychosocial interventions and HCPs should take into account the issue of pain management to help PWH to manage frustration and avoid becoming psychologically dependent on painkillers (Elander & Barry, 2003 ; Montali, et al, 2011 ); and
- finally, it is important to analyse the explanations that people give themselves about being ill, identifying models that refer to faith, fate, and/or genetics.
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