Health Care System Accessibility.

Steinberg, Annie G.; Barnett, Steven; Meador, Helen E.; Wiggins, Erin A.; Zazove, Philip

doi:10.1111/j.1525-1497.2006.00340_1.x

Cited by 5 publications

(10 citation statements)

References 12 publications

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“…Sign Language is a nonverbal, gestural language that uses hand and body movements and facial expressions, fully exploiting the capacities of vision, spatial relations, and visual-kinetic memory (Allen et al 2002). Within Deaf culture, deafness is not considered a disease or disability and status within the community is based on signing ability, not on hearing status (Stebnicki and Coeling 1999;Steinberg et al 2006). The Deaf community empowers Deaf people, and encourages the view that it is society that disables and not that people who are Deaf or deaf are 'disabled' (Canadian Association for the Deaf 2010).…”

Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

“…The Deaf population reports poorer health status than the hearing population (Steinberg et al 2006;Zazove et al 1993;Barnett 1993). This may be partly explained by difficulties in communication with health care providers and lack of adequate accommodations in health care facilities (e.g.…”

Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

“…A study of Deaf people's experiences with the health care system in the United States determined a number of challenges, including poor understanding of clinicians' instructions, difficulty using the TTY (telephone base communication), voice mail systems and lack of availability of medically experienced certified interpreters (Stebnicki and Coeling 1999). A US qualitative study of 91 deaf adults who communicate with American Sign Language found that many of the participants, which included Deaf, deaf, hard of hearing, and late-deafened cultural identities, expressed emotions such as fear, mistrust and frustration due to poor communication with health care providers and felt that some health care workers disliked working with deaf people (Steinberg et al 2006). The Canadian Association for the Deaf reports that only a handful of Canadian hospitals have visual alarm systems or visual communication safety systems, and reports there is only one deaf doctor and one deaf psychologist in all of Canada (CAD 2010).…”

Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

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Access to genetic testing and genetic counseling in vulnerable populations: the d/Deaf and hard of hearing population

Cooke-Hubley

Maddalena

2011

J Community Genet

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Genetic testing holds great potential for preventing morbidities and mortalities for a number of diseases through early detection and effective intervention. As the number of genetic tests expand, so will public demand for these services. Therefore, it is essential to evaluate access to genetic testing and genetic services to ensure that all Canadians, including vulnerable groups, have equitable access to all forms of health care, in keeping with the mandate of the Canadian Health Act. The purpose of this paper is to examine the literature to determine if and how the Deaf community, as a vulnerable group, is at an increased risk of inequitable access to genetic services in Canada and to discuss how those who are deaf and hard of hearing are subject to the same risks. First, we define vulnerability and describe why the Deaf community, as a social group, can be considered a vulnerable group, followed by a description of the benefits of genetic testing. Second, we describe the barriers to accessing genetic testing, and how the d/Deaf and hard of hearing population experience additional barriers. Third, we examine the difficulties incorporating genetic testing into medical practice, and how this creates additional barriers to those already at risk. Finally, we discuss the steps necessary to promote equitable access to genetic testing among the d/Deaf and hard of hearing populations within Canada, and provide recommendations for further research in this topic area. Lastly, we comment on how barriers to genetic testing vary among the d/Deaf and hard of hearing is dependent upon the type of health care system available (whether public or private).

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Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

Section: The Deaf As a Vulnerable Population For Poor Health Statusmentioning

confidence: 99%

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Access to genetic testing and genetic counseling in vulnerable populations: the d/Deaf and hard of hearing population

Cooke-Hubley

Maddalena

2011

J Community Genet

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“…The questions included what current services were being provided by the organisation; what are the general and health needs of the Deaf community and how are they being met; what the main challenges encountered by the Deaf community; and how and in what ways do the Deaf community cope. The interview and focus group questions were adapted from a study conducted among the Deaf community in the United States by Steinberg, et al (2006). These questions were specifically designed for the Deaf with consideration given to English is a second language and possible English literacy issues.…”

Section: Data Collection and Proceduresmentioning

confidence: 99%

“…The Deaf share a distinct culture. However, this reality is not widely understood within the hearing community, nor within most mainstream health services (Steinberg, Barnett, Meador, Wiggins, & Zazove, 2006).…”

Section: Introductionmentioning

confidence: 99%

Misconceptions of the Deaf: Giving voice to the voiceless

Terry

Lê²,

Nguyen

et al. 2017

hcs

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The Deaf usually do not see themselves as having a disability; however, discourses and social stereotyping continue to portray the Deaf rather negatively. These discourses may lead to misconceptions, prejudice and possibly discrimination. A study was conducted to identify the challenges members of the Deaf community experience accessing quality health care in a small Island state of Australia. Using a qualitative approach, semi-structured interviews and focus groups were conducted with service providers and the Deaf community. Audist discourses of deafness as deficiency, disability and disease remain dominant in contemporary society and are inconsistency with the Deaf community's own perception of their reality. Despite the dominant constructions of deafness and their affect on the Deaf's experience of health service provision, many Deaf have developed skills, confidence and resilience to live in the hearing world. The Deaf were pushing back on discourses that construct deafness as a disempowering impairment.

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