Health Disparities among Children with Autism Spectrum Disorders: Analysis of the National Survey of Children’s Health 2016

Listening to parents to understand their priorities for autism research

“…Research to support children’s health and well-being was the highest priority for research in the home from the online questionnaire results. This is an unsurprising finding given co-occurring physical and psychological conditions are frequently reported for children on the spectrum, with almost 40% of children on the spectrum experiencing between one and four co-occurring conditions, and 53.9% of children impacted by four or more co-occurring conditions compared to 11.5% and 0.3% of children without disabilities, respectively [ 37 ]. Some of the most frequently reported co-occurring conditions which affect health and well-being have been shown to impact upon not only the child’s, but also the parent’s, quality of life [ 38 , 39 ], a factor which may be contributing to the desire for more research in this area.…”

Cancer Care of Children, Adolescents and Adults With Autism Spectrum Disorders: Key Information and Strategies for Oncology Teams

“…A recent study based on the United States National Survey of Children’s Health identified an approximately four times higher odds of unmet health care needs in children with ASD when compared to children without disabilities, disproportionately to children with other disabilities ( 36 ). Compiling data from research across the last decade, two recent reviews underline the limited availability of specific healthcare services for families with a child with ASD, and the lack of ASD-specific training in healthcare providers ( 37 , 38 ).…”

Availability of Services for Families Raising Children With Autism as a Purpose of Social Work

“…А от інші дослідники (Chiri, Warfield, 2012) зазначають, що медичному персоналу бракує навичок роботи із дітьми з РСА, наявна стереотипізація сімей, які виховують дитину з РАС, і в такому випадку діагноз стає бар'єром на шляху до отримання медичних послуг. Схожі висновки про відповідність медичних послуг потребам дитини з аутизмом можна зустріти і у інших розвідках (Karpur et al, 2019). В Україні, з впровадженням медичної реформи, більшість населення мало змогу обирати сімейного лікаря, який здійснює регулярний медичний супровід сім'ї.…”