Health disparities or data disparities: sampling issues in hepatitis B Virus infection among Asian American Pacific Islander studies

Lee, Haeok; Baik, Seong-Yi

doi:10.1016/j.apnr.2009.12.005

Cited by 12 publications

(9 citation statements)

References 32 publications

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“…A combination of network and targeted sampling methods that were culturally and scientifically appropriate for CA was used to recruit to the study. AAPIs are a hard‐to‐reach ethnic group and difficult targets for subject recruitment due to linguistic barriers, lack of insurance, low utilization of health care systems, dispersion of the population, and attitudes and knowledge about research participation (Lee & Baik, ; Lo, ; Presto, ; U.S. Census Bureau, ). CAs are difficult to locate, and accurate, comprehensive lists of CAs do not exist.…”

Section: Methodsmentioning

confidence: 99%

“…CAs are difficult to locate, and accurate, comprehensive lists of CAs do not exist. However, targeted‐AAPI community studies have shown that good sample coverage of minority groups can be achieved through well‐planned convenience sampling in concentrated, targeted areas or in AAPI community locations where group members can be found (Islam et al., ; Lee & Baik, ; Lee & Cheng, ; Park & Sha, ).…”

Section: Methodsmentioning

confidence: 99%

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Factors Associated with HPV Vaccination among Cambodian American Teenagers

Lee

Kim

Kiang

et al. 2016

Public Health Nursing

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Background Parents have general influence over their children’s health and health behavior. However, given the dearth of specific literature regarding knowledge level and social and cultural factors influencing HPV vaccination behaviors among Cambodian American (CA) parents, it is difficult to develop an effective, evidence-based public health HPV vaccination program for this particular population without further investigation. Methods CA mothers (n=130) completed a health survey through face-to-face interviews in either English or Khmer language. Results Girls vaccination rates were 29% while that of boys was 16%. Awareness and knowledge of HPV among CA mothers was very low, and many believed that their daughters, who speak English and were educated in the U.S., had more knowledge about health than they did. Logistic regression analysis showed that Cambodian American girls had significantly higher odds of vaccination when their mothers possessed a higher level of English reading ability and had greater awareness and knowledge of HPV. Conclusions The strikingly low rates of HPV vaccination among CA girls and boys underscore the need to improve vaccination outreach, education, and uptake. The findings can be used to develop targeted public health HPV vaccination programs for CAs which will reduce cervical cancer disparities.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Factors Associated with HPV Vaccination among Cambodian American Teenagers

Lee

Kim

Kiang

et al. 2016

Public Health Nursing

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“…However, existing studies usually focus on the treatment of chronic hepatitis B itself [17] and mostly consist of survey on knowledge level [18], survey on infection rate and vaccination rate [19], studies on the correlation between some variables [20], and studies on prevention programs [21]. It is difficult to find studies that have developed and applied a self-care promotion program in consideration of multidimensional factors so that lifelong health management can be internalized.…”

Section: Introductionmentioning

confidence: 99%

Development and Validation of an Online Program for Promoting Self-Management among Korean Patients with Chronic Hepatitis B

Yang

2013

Nursing Research and Practice

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The hepatitis B virus is second only to tobacco as a known human carcinogen. However, chronic hepatitis B usually does not produce symptoms and people feel healthy even in the early stages of live cancer. Therefore, chronically infected people should perceive it as a serious health problem and move on to appropriate health behaviour. The purpose of this paper is to develop and validate an online program for promoting self-management among Korean patients with chronic hepatitis B. The online program was developed using a prototyping approach and system developing life cycle method, evaluated by users for their satisfaction with the website and experts for the quality of the site. To evaluate the application of the online program, knowledge and self-management compliance of the subjects were measured and compared before and after the application of the online program. There were statistically significant increases in knowledge and self-management compliance in the user group. An online program with high accessibility and applicability including information, motivation, and behavior skill factors can promote self-management of the patient with chronic hepatitis B. Findings from this study allow Korean patients with chronic hepatitis B to engage in proactive and effective health management in the community or clinical practice.

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“…However, in Healthy People 2020, as in most other national health reports, ADRD data about Asian Americans is absent. The main reasons for the omission of Asian Americans in healthcare studies are the barriers present in Asian American communities that include mistrust of outsiders, lack of knowledge, language barriers, lack of health insurance and sociocultural barriers 9–12 16–19. It is difficult to gain access to Asian Americans because they are dispersed throughout the country and tend to have a low level of contact with the healthcare system.…”

Section: Introductionmentioning

confidence: 99%

Using community-based geographical information system (GIS) to recruit older Asian Americans in an Alzheimer’s disease study

Lee

Yim

et al. 2023

BMJ Open

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ObjectiveThis study aims to show the usefulness of incorporating a community-based geographical information system (GIS) in recruiting research participants for the Asian Cohort for Alzheimer’s Disease (ACAD) study for using the subgroup of Korean American (KA) older adults. The ACAD study is the first large study in the USA and Canada focusing on the recruitment of Chinese, Korean and Vietnamese older adults to address the issues of under-representation of Asian Americans in clinical research.MethodsTo promote clinical research participation of racial/ethnic minority older adults with and without dementia, we used GIS by collaborating with community members to delineate boundaries for geographical clusters and enclaves of church and senior networks, and KA serving ethnic clinics. In addition, we used socioeconomic data identified as recruitment factors unique to KA older adults which was analysed for developing recruitment strategies.ResultsGIS maps show a visualisation of the heterogeneity of the sociodemographic characteristics and the resources of faith-based organisations and KA serving local clinics. We addressed these factors that disproportionately affect participation in clinical research and successfully recruited the intended participants (N=60) in the proposed period.DiscussionUsing GIS maps to locate KA provided innovative inroads to successful research outreach efforts for a pilot study that may be expanded to other underserved populations across the USA in the future. We will use this tool subsequently on a large-scale clinical genetic epidemiology study.Policy implicationThis approach responds to the call from the National Institute on Aging to develop strategies to improve the health status of older adults in diverse populations. Our study will offer a practical guidance to health researchers and policymakers in identifying understudied and hard-to-reach specific Asian American populations for clinical studies or initiatives. This would further contribute in reducing the health and research disparity gaps among older minority populations.

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Health disparities or data disparities: sampling issues in hepatitis B Virus infection among Asian American Pacific Islander studies

Cited by 12 publications

References 32 publications

Factors Associated with HPV Vaccination among Cambodian American Teenagers

Factors Associated with HPV Vaccination among Cambodian American Teenagers

Development and Validation of an Online Program for Promoting Self-Management among Korean Patients with Chronic Hepatitis B

Using community-based geographical information system (GIS) to recruit older Asian Americans in an Alzheimer’s disease study

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