Health Literacy: A Survey of the Issues and Solutions

Schnitzer, Anna Ercoli; Rosenzweig, Merle; Harris, Bethany

doi:10.1080/15398285.2011.573347

Cited by 20 publications

(23 citation statements)

References 4 publications

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“…We found that our revised graphic helped participants understand the concept of a biobank, consistent with prior research showing the value of graphics and illustrations in informational brochures[22, 44-46]. We also found that explanatory captions used within the graphic improved comprehension of the information, consistent with guidelines from Doak and colleagues[39].…”

Section: Discussionsupporting

confidence: 86%

“…Incorporating another strategy to make our graphics clear, we developed a graphic with brief, explanatory captions to clarify biobank concepts and procedures[22, 39]. We found that using cognitive interviews to assess the graphic was important, as particular images did not resonate with participants and required revisions.…”

Section: Discussionmentioning

confidence: 99%

“…The National Institutes of Health recommends writing consent documents at an eighth grade reading level[21]. Other guidelines have emphasized the use of plain language strategies such as graphics and images to supplement text, presenting topics in a clear and descriptive way, and providing adequate white space throughout the document[20, 22]. …”

Section: Introductionmentioning

confidence: 99%

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Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process

et al. 2016

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The U.S. Department of Health and Human Services addresses clear communication in the informed consent process as part of the Notice of Proposed Rulemaking for revisions to the Common Rule. However, prior research has shown that participants may not fully comprehend research studies despite completion of an informed consent process. Our main goal was to provide plain language information about donation processes to a cancer biobank to supplement an informed consent form. We developed and conducted cognitive testing with supplemental brochures that clearly communicated information about three different models for consent (notice, broad and study-specific) to future use of biospecimens. During the brochures development process, we conducted qualitative, semi-structured, individual, in-person cognitive interviews among 14 women to examine participants’ perceptions of the brochures. Each participant provided feedback regarding the understandability, graphics and layout, and cultural appropriateness of the brochures. Our findings demonstrate that these methods may be used to tailor consent form brochures, such as the ones developed here, to other populations. This study therefore adds to our understanding of how best to present content to help women from two different racial groups make informed decisions about participation in a cancer biobank.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process

et al. 2016

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“…High or low literacy levels have different impacts, notably on the individual"s health. There is an increasing scientific evidence that the general health status of the people, whose health literacy is at a low level, is lower [11][12][13][14], their living is less healthy [15,16], they have a lower preventive measures and services take-up [15,17], their capacities to manage chronic diseases and to remember or to understand the information presented by the medical personnel are insufficient [18,19]; such people are more prone to make mistakes when taking their medicines or to adhere to other instructions of the doctors [12,20,21].…”

Section: Health Literacy As a Multidimensional Concept In Health Educmentioning

confidence: 99%

Young adult health literacy on health promotion as social determinant of health: Challenges for health education practice in Lithuania

2018

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Abstract.A synthesis of theory, research, and practice shows that education is linked to better health through individuals" increased health knowledge and healthy behaviour. Health literacy is put forward as the central mediator between education and health. Scientific studies have shown a strong association between the levels of health literacy and health outcomes. The aim of the study is to identify the levels of health literacy on health promotion among Lithuania"s young adults. The anonymous selfreported questionnaire survey was carried out in the period of 2014-2015. The research sample involved 842 young adults aged 18-29. Health literacy was measured using an HLS-EU-Q-47 questionnaire. The research studies suggest that less than half of Lithuanian young adults have sufficient or excellent health literacy on health promotion, which is essential in maintaining good health and the quality of life. These findings are important evidence that health education should become a priority area at all levels of educational process at every stage of the life: from childhood through adulthood.

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“…Moreover, people with low HL do not possess a good perception of their health and strategies they can use to ensure an optimal wellbeing. They cannot manage their chronic conditions due to lack of knowledge; they overuse emergency rooms; and they are usually inpatients for longer periods (Public Health England 2015, Schnitzer et al 2011.…”

Section: Introductionmentioning

confidence: 99%

Functional Health Literacy of Asylum Seekers and Refugees – A Pilot Study in Italy

Marchetti¹,

Sorrentino²,

Marucci³

et al. 2018

AJH

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Literature shows how some groups of populations, among which are people seeking international protection and refugees, find it difficult to access services in national health systems. Usually, asylum seekers have limited Health Literacy (HL), which makes understanding the appropriate health information difficult. The objective of this research is to consider the relationship between how people requesting international protection and refugees approach the Italian Health System to request health services and their level of Functional Health Literacy (FHL). These relationships are examined through mixed methods. Data were obtained using several tools: a self-administered questionnaire in which the subjects revealed social and demographic data and a face-to-face interview together with the S-FHL Scale fulfillment in order to identify the functional level of HL. Twenty-one subjects were interviewed in two Centers of Protection System for Asylum Seekers and Refugees (SPRAR). Results show a picture of the actual situation. Data report a problematic or insufficient FHL level. Some factors, such as gender, age and health perceptions, play a role in the FHL levels. Some racial prejudices were reported. Language barriers had the most impact on the communication gap. Nevertheless, none of the subjects were denied health services. In conclusion, although this study is a pilot, we have experienced difficulty in obtaining asylum seekers' trust to be open about their experience. This explains the number of the sample that should be more indicated for a qualitative study. Our results are in accordance with literature for inadequate level of FHL and lack of knowledge of the Italian Health System. This study highlighted several other issues to be taken into consideration for future research on the subject.

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Health Literacy: A Survey of the Issues and Solutions

Cited by 20 publications

References 4 publications

Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process

Development of Plain Language Supplemental Materials for the Biobank Informed Consent Process

Young adult health literacy on health promotion as social determinant of health: Challenges for health education practice in Lithuania

Functional Health Literacy of Asylum Seekers and Refugees – A Pilot Study in Italy

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