Health literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease

Bhatt, Nidhi; Calhoun, Cecelia; Longoria, Jennifer; Nwosu, Chinonyelum; Howell, Kristen; Varughese, Taniya; Kang, Guolian; Jacola, Lisa M.; Hankins, Jane S.; King, Allison A.

doi:10.1002/pbc.30281

Cited by 1 publication

(1 citation statement)

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“…Efforts to address neurocognitive deficits should also be considered, as these deficits might have a negative impact on engaging in adult care and are associated with low health literacy. 35 , 36 , 37 …”

Section: Discussionmentioning

confidence: 99%

Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease

Howell,

Kayle,

Smeltzer

et al. 2024

Blood Advances

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Guidelines recommend transfer to adult healthcare within six months of completing pediatric care, however this has not been studied in sickle cell (SCD). We hypothesized that longer transfer gaps are associated with increased resource utilization. Transfer gaps were defined as the time between the last pediatric and first adult visits. We estimated the association between varying transfer gaps and the rate of inpatient, emergency department (ED), and outpatient visits using negative binomial regression. Healthcare utilization was evaluated in a mid-south comprehensive program for a follow-up period of up to eight years (2012-2020) and also restricted to the first two years of adult healthcare. In total, 183 young adults (YAs) with SCD (51% male, 67% HbSS/HbSβ0-thalassemia) transferred to adult healthcare between 2012-2018. YAs with transfer gaps ≥6 months compared to <2 months had 2.01 (95%CI: 1.31, 3.11) times the rate of hospitalizations in the 8-year follow-up and 1.89 (95%CI: 1.17, 3.04) when restricted to the first two years of adult healthcare. In the first two years of adult care, those with transfer gaps ≥6 months compared to <2 months, had 1.75 (95%CI: 1.10, 2.80) times the rate of ED encounters. Those with gaps ≥2 to <6 months compared to <2 months had 0.71 (95%CI: 0.53, 0.95) times the rate of outpatient visits. Among YAs with SCD, a longer transfer gap was associated with increased inpatient and decreased outpatient encounters in adult healthcare and more ED encounters in the first two years of adult healthcare. Strategies to reduce transfer gaps are needed.

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Section: Discussionmentioning

confidence: 99%