Health Locus of Control in Parents of Children with Leukemia and Associations with Their Life Perceptions and Depression Symptomatology

Tremolada, Marta; Taverna, Lívia; Bonichini, Sabrina; Putti, Maria Caterina; Pillon, Marta; Biffi, Alessandra

doi:10.20944/preprints202003.0045.v1

Cited by 5 publications

(1 citation statement)

References 21 publications

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“…The fact of having a tumor, with its treatment and hospitalization, means that these children are deprived of the opportunity to plan their future and to continue their normal emotional development towards adulthood. Younger patients (aged 8–13 years) have been reported to be more at risk than older ones in their problems’ intensity and psychological symptoms during the first 6 months of treatments, with females and Acute Myeloid Leukaemia patients showing lower current life satisfaction perceptions [ 4 ]. However, this experience can also allow them to acquire earlier a high level of maturity: adolescents with a tumor must make decisions and take on responsibilities that force their developmental trajectory towards an untimely adult maturity, which is generally achieved gradually, thanks to the normal daily experiences in adolescents [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience

Tremolada

Taverna

Bonichini

et al. 2020

Behavioral Sciences

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In the last few years, more children and adolescents healed from leukemia go back to their daily life, even if they can show some psycho-social difficulties. The study adopted semi-structured interviews and a mixed-method approach to examine the narratives of 75 children and adolescents about their return to school post 2-years treatment for leukemia. The aims are to collect their illness experiences, to understand how they feel about school and daily routines and to identify the best socio-demographic and illness predictors of a good re-adaptation to school and daily life. The results show that by increasing age and when the pediatric patient have received a hematopoietic stem cell transplantation, at the stop-therapy time, her/his perception about relationships at school and academic performance decrease, especially if his/her feelings about the disease and follow-up visits are negative.

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Section: Introductionmentioning

confidence: 99%

Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience

Tremolada

Taverna

Bonichini

et al. 2020

Behavioral Sciences

Self Cite

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The Needs of Parents of Children Suffering from Cancer—Continuation of Research

Lewandowska

2022

Children

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Background: Parents experience many healthcare needs when caring for their sick children. Research shows that parents of oncological children have a high level of unmet needs, including psychosocial, emotional, physical, informational, financial, educational, and spiritual needs. To date, little quantitative research has been carried out on the specific needs of parents of children with cancer, which creates uncertainty about what areas should be addressed in care. This study investigated the prevalence of unmet needs among parents of children with cancer. Methods: A population survey was conducted between 2015 and 2020. Caregivers of children diagnosed with cancer were invited to participate in the study to assess their problems and needs. Results: The analysis found that 97% of the participants experienced some level of need for one or more items, and 73% of the respondents reported a moderate or high need for one or more items. In the field of medical information, 70% of respondents had moderate or high needs, 55% of parents reported a moderate or high level of need for help in the psychological or emotional field, and 30% in the financial domain. The prevalence of moderate or high need in the remaining domains ranged from 10% to 15%. Conclusions: Parents of children with cancer experience a high level of needs, especially psychological, emotional, and information. These data suggest that the existing healthcare system does not meet the needs of parents of sick children. The results show the need to investigate the mechanisms by which healthcare providers can use the healthcare system to identify and meet needs.

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The Moderating Effect of Parenting on Adaptation of Children with Leukemia

Tremolada

Taverna

Bonichini

et al. 2021

Hemato

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Parents’ attitudes and practices may support the children’s reactions to treatments for leukaemia and their general adjustment. This study has two aims: to explore parenting depending on the child’s age and to develop and test a model on how family processes influence the psycho-social development of children with leukaemia. Patients were 118 leukemic children and their parents recruited at the Haematology–Oncologic Clinic of the Department of Paediatrics, University of Padua. All parents were Caucasian with a mean age of 37.39 years (SD = 6.03). Children’s mean age was 5.89 years (SD = 4.21). After the signature of the informed consent, the parents were interviewed using the EFI-C from which we derived Parenting dimension and three parental perceptions on the child’s factors. One year later, the clinical psychologist interviewed again parents using the Vineland Adaptive Behavior Scales (VABS). The analyses revealed the presence of a significant difference in parenting by the child’s age: Infants required a higher and more intensive parenting. The child’s coping with medical procedures at the second week after the diagnosis, controlled for parenting effect, impacted upon the child’s adaptation one-year post diagnosis. Specific intervention programmes are proposed in order to help children more at risk just after the diagnosis of developmental delays.

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Health Locus of Control in Parents of Children with Leukemia and Associations with Their Life Perceptions and Depression Symptomatology

Cited by 5 publications

References 21 publications

Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience

Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience

The Needs of Parents of Children Suffering from Cancer—Continuation of Research

The Moderating Effect of Parenting on Adaptation of Children with Leukemia

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