Health of mothers of children with intellectual disability or autism spectrum disorder: a review of the literature

Fairthorne, Jenny; Klerk, Nick de; Leonard, Helen

doi:10.18103/mra.v0i3.204

Cited by 25 publications

(23 citation statements)

References 55 publications

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“…In addition, compared with parents of neuro-typical children, caregivers' levels of anxiety and depression were found to be more likely to satisfy criterion for clinical mood disorder (Gallagher, Phillips, Oliver, & Carroll, 2008). That caregiving stress is associated with poorer psychological functioning was also demonstrated in two recent meta analyses (Easter, Sharpe, & Hunt, 2015;Hayes & Watson, 2013) and review studies (Cousino & Hazen, 2013;Fairthorne, de Klerk, & Leonard, 2015). The stress of caring for a child with a DD has also been linked with alterations in a variety of health relevant, physiological parameters.…”

Section: Introductionmentioning

confidence: 92%

The psychophysiological impact of childhood autism spectrum disorder on siblings

Lovell

Wetherell

2016

Research in Developmental Disabilities

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Objective: The negative impact of caring for a child with autism spectrum disorder (ASD) on parents' psychophysiological functioning has been widely evidenced. However, siblings, who also face emotional, social and physical challenges associated with having a brother/sister with ASD, have been less widely studied. This study examined the psychophysiological impact of childhood ASD on Siblings of children with ASD experience greater emotional problems and overall depressive symptoms compared with a control group. Interventions that enhance social support, as well as helping siblings better understand the behaviour problems of their brother/sister with ASD, might be effective for alleviating depressive symptoms.

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Section: Introductionmentioning

confidence: 92%

The psychophysiological impact of childhood autism spectrum disorder on siblings

Lovell

Wetherell

2016

Research in Developmental Disabilities

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“…From the perspective of mothers, experiences are often positive (Horsley & Oliver, ). However, some report anxiety and distress, lack of partner support, loss of employment with financial consequences, and ability to respond effectively to the needs of siblings (Fairthorne, De Klerk, & Leonard, ). While there has been a focus on families and mothers, there has been less attention on the issues and concerns experienced by fathers of children with ID, an assertion made by Hornby in in a review and analysis concerning fathers of children with disabilities.…”

Section: Introductionmentioning

confidence: 99%

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

Marsh

Brown

McCann

2020

Policy Practice Intel Disabi

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As a result of societal changes and expectations, mothers have returned to paid employment, with fathers now more involved in the daily lives of their children with and without disabilities. Globally, fathers are providing more care for their children with intellectual disabilities (ID), a role traditionally expected of mothers. The research interest in the role of fathers in the lives of their child with ID is growing, yet much of the wider evidence has focused on the views and experiences of mothers as care givers. The aim of this systematic review was to identify the views and experiences of fathers parenting children with ID. A total of 14 studies were included in the review. Four themes were identified including emotional impact, mental health and coping, systems of support, and hopes and fears. There is a need for further research on the needs of fathers and how they can be supported to play a fuller role in the lives of their child with ID. Implications for policy, practice, and future research are also discussed.

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“…In a previous review [12], we found that mothers of children with Down syndrome generally had better health than mothers of children with other intellectual disabilities. In turn, mothers of children with intellectual disabilities other than Down syndrome, generally had better health than mothers of children with ASD [especially ASD without ID] (Figure 1).…”

Section: Maternal Health By the Child's Diagnosis Or Sub-type And Thementioning

confidence: 85%

“…For example, using linked data, we demonstrated that in the years after their child's birth, mothers of children with ASD or ID had higher rates of psychiatric disorders than other mothers [9,10]. Furthermore, we also identified health differentials in mothers of children with different sub-types of ASD or ID [12]. Using the12 Item Short Form Health Survey (SF-12), parents of children with ASD without ID were also reported as experiencing lower QoL and more stress than parents of children with ASD with ID [7].…”

Section: Introductionmentioning

confidence: 86%

Risk and protective factors for the health of primary care-givers of children with autism spectrum disorders or intellectual disability: a narrative review

Fairthorne¹,

Mori²,

Leonard³

2018

J Autism

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Background: Primary care-givers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have poorer health and quality of life than primary care-givers of typically developing children. We aimed to review original research which described factors impacting the health of primary care-givers of children with ASD or ID and to discuss how these factors might influence care-giver health. Methods: We searched electronic databases and retrieved 33 relevant research articles. Results: Factors impacting primary care-giver health included child behaviour, support and diagnostic issues. We explain how these factors might impact care-giver health and how they might act differentially in care-givers of children with different types of ASD or ID. Interventions to moderate one or more risk factors could pave the way for improved primary care-giver health.

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Health of mothers of children with intellectual disability or autism spectrum disorder: a review of the literature

Abstract: Background:The deficits associated with intellectual disability (ID) and autism spectrum disorder (ASD) place a burden on their co-residing families which may impact maternal health.

Cited by 25 publications

References 55 publications

The psychophysiological impact of childhood autism spectrum disorder on siblings

The psychophysiological impact of childhood autism spectrum disorder on siblings

The Views and Experiences of Fathers of Children with Intellectual Disabilities: A Systematic Review of the International Evidence

Risk and protective factors for the health of primary care-givers of children with autism spectrum disorders or intellectual disability: a narrative review

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