“…Additionally, as people with severe intellectual disabilities and people with specific syndromes are surviving well into mid‐life and beyond, health problems that could not be observed before are now being identified (e.g. dementia in people with Down syndrome; Hogg, Moss, & Cooke, 1988; Janicki et al ; 2002; Keller, 1991; Kerr, 1997; Watchman, 2003). Physical and mental health problems can have a significant impact on a person's social and psychological well being, and their overall quality of life (Harris, 1997; Sarafino, 1990).…”