Health promotion and screening for people with an intellectual disability

Awan, Hassan; Chauhan, Umesh

doi:10.1177/1755738016682982

Cited by 3 publications

(2 citation statements)

References 13 publications

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“…There is a great need to identify their support needs as they age (Bigby, 1997; Ryan & McQuillan, 2005), to overcome barriers to end‐of‐life care (Friedman et al, 2012), and to enhance end‐of‐life care provision in intellectual disability community services (Todd et al, 2020). In comparison with the general population, people with intellectual disabilities have worse health outcomes and tend to die at a younger age than those without intellectual disabilities (Awan & Chauhan, 2017), but they are often shielded from learning about their own deaths when they are ill (Kirkendall et al, 2017; McCarron et al, 2017; Tuffrey‐Wijne et al, 2020) and left out of bereavement and funeral rites (Raji et al, 2003). After concluding that people with intellectual disabilities are more likely to have complicated grief reactions, O'Riordan et al (2022) recommended death education for this population.…”

Section: Introductionmentioning

confidence: 99%

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying

Diaz

Bickenbach

Sabariego

et al. 2023

Research Intellect Disabil

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BackgroundA paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and dying.MethodA scoping review of primary research and methodological papers published between January 2008 and March 2022 was conducted. The PRISMA‐ScR checklist was followed.ResultsWe identified 25 articles utilising four data collection methods: interviews, focus groups, the Nominal Group Technique, and participant observation. Data collection trends were identified, including accommodations for participants with intellectual disabilities, visual media used as a facilitator, and reporting of distress protocols. Most participants had mild to moderate intellectual disabilities.ConclusionsThe included studies demonstrate a flexible approach that relies on the use of multiple methods. Future research must adequately report study characteristics to ensure transparency and reliability.

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Section: Introductionmentioning

confidence: 99%

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying

Diaz

Bickenbach

Sabariego

et al. 2023

Research Intellect Disabil

View full text Add to dashboard Cite

show abstract

“…An individual's communication impairments can be a barrier to accessing healthcare, but a lack of accessible information for this population only increases this challenge (Ouellette‐Kuntz et al, 2005; Williamson et al, 2017). There is also a lack of flexible administrative procedures and awareness of transportation issues that contribute to systemic barriers to healthcare for this population (Awan & Chauhan, 2017).…”

Section: Introductionmentioning

confidence: 99%

Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities

Diaz,

Angus,

Bickenbach

2023

Research Intellect Disabil

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BackgroundPeople with intellectual disabilities are often left out of research on important topics. This exploratory study investigated their views on barriers and facilitators to accessing care at end of life, both at home and in a hospice setting.MethodThis qualitative study used reflexive thematic analysis. Two focus groups were held via Zoom with a total of four participants.ResultsThree themes were produced: Unsettling Transitions, Maintaining Familiarity, and Respecting People's Wishes. Keeping things as unchanged as possible at end of life was highlighted as an ideal. Respecting people's wishes and education were highlighted as facilitators to good end of life care.ConclusionsThe themes identified in this study highlight the fears and wishes of this population with regards to receiving quality end of life care. Training for staff and families, as well as advanced care planning, could focus on enhancing facilitators and decreasing barriers for this population.

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Perspectives on delivering health promotion for the intellectual disability population

Anderson¹,

Wickham

2022

Br J Nurs

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The qualitative study reported in this article set out to develop an understanding of how staff supporting individuals with intellectual disabilities deliver health promotion in their practice. The aim was to determine how social care managers working within an intellectual disability care setting in Ireland perceived health promotion and their role within it. Semi-structured interviews were conducted to collect the data. Participants perceived health promotion to be a priority for this population group that should be tailored to meet individual needs. Study participants recognised that they have a role in supporting and providing health promotion for this population, but also that they themselves required more training and education on the issue. Health promotion enablers identified in the study for this client group need to be enhanced and ways to reduce the barriers to access identified. The results reflect observations reported in the literature and indicate a need to prioritise health promotion with this population by establishing policies and practices in the organisation to promote it. A requirement for relevant training and education for social care managers—and other staff, as appropriate—was identified, as were areas for further research.

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Health promotion and screening for people with an intellectual disability

Cited by 3 publications

References 13 publications

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying

Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities

Perspectives on delivering health promotion for the intellectual disability population

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