Health Promotion Toolkit: An Approach for Empowering Families Caring For Children with Developmental Disabilities in Tabuk

Ghoneim, A. A.

doi:10.3889/oamjms.2018.265

Cited by 7 publications

(3 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In our study, the intervention group's care burden lessened. Studies have reported a negative correlation between parental stress and family empowerment ( 41 ). Caregivers can be empowered through informal resources, such as family, friends, and support groups, to reduce the care burden ( 4 ).…”

Section: Discussionmentioning

confidence: 99%

Effectiveness of a peer group-based online intervention program in empowering families of children with disabilities at home

Wakimizu

Matsuzawa²,

Fujioka³

et al. 2022

Front. Pediatr.

View full text Add to dashboard Cite

BackgroundThe empowerment of families raising children with disabilities (CWD) is crucial in maintaining their health. We developed an evidence-based, family empowerment intervention program focusing on social resource utilization and reducing care burden.ObjectiveThis study aimed to determine the program's effectiveness in promoting family empowerment.MethodsWe compared an intervention group that started the online intervention program a week after initial evaluation and a group that received delayed intervention (waitlist-controlled group) at three time points: initial (T1), post-course (T2), and follow-up (T3). The required sample size was 52.ResultsThere were 60 participants who applied to the program. One participant dropped out due to scheduling issues, and the others were assigned to either the intervention group (n = 29) or the waitlist-controlled group (n = 30). Those who responded to the baseline questionnaire (T1: 26 from the intervention group; 29 from the waitlist-controlled group) comprised the final sample. Among them, 20 members of the intervention group and 20 of the waitlist-controlled group attended all four sessions (completion rates of 77% and 69%, respectively). The attendance rate for sessions 1–4 was 94%, 89%, 81%, and 83%, respectively. The participant numbers in each session ranged from 5 to 18 per month. The baseline outcome score did not differ between the groups. The primary outcome, family empowerment, measured using the family empowerment scale (FES), was significantly higher at T2 for the intervention group than in the waitlist-controlled group and was sustained in the sensitivity analysis. The intervention group's FES, in the family relationships (FA) and relationships with service systems (SS) subdomains, increased significantly, unlike involvement with the community (SP). The intervention group experienced lower care burden and higher self-compassion, especially in the isolation and over-identification items of the self-compassion scale-short form (SCS-SF). The intervention group's FES (total, FA, SS) and SCS-SF (total, common humanity, isolation) changed significantly between T1 and T2, and all, except common humanity, were sustained up to T3; this group's FES (SP) and SCS (negative score, over-identification) changed significantly between T1 and T3. The waitlist-controlled group's FES (total, FA) and SCS (total) changed significantly and were sustained between T2 and T3.ConclusionsThe developed intervention program promotes family empowerment in families of CWD.Clinical Trial RegistrationThis study is registered as a clinical trial in the UMIN Clinical Trials Registry (https://center6.umin.ac.jp/cgi-open-bin/ctr/ctr_view.cgi?recptno=R000050422, UMIN000044172).

show abstract

Section: Discussionmentioning

confidence: 99%

Effectiveness of a peer group-based online intervention program in empowering families of children with disabilities at home

Wakimizu

Matsuzawa²,

Fujioka³

et al. 2022

Front. Pediatr.

View full text Add to dashboard Cite

show abstract

“…A number of nursing interventions have demonstrated utility in supporting families of children with DD. Health promotion toolkits (e.g., assessment and monitoring guides, education sessions) designed for children with DD can promote family empowerment and relieve stress by supporting parental self-efficacy and self-esteem ( Ghoneim, 2018 ). Nurses can support and empower families affected by childhood DD by employing interventions such as the Family Strengths Oriented Therapeutic Conversation (e.g., developing a nurse-patient-family relationship, welcoming family illness stories and beliefs, recognizing resilience, and offering information), which can improve parents’ quality of life and satisfaction with health care services ( Svavarsdottir et al, 2020 ).…”

Section: Discussionmentioning

confidence: 99%

Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities

Matthews

Puplampu

Gelech

2021

Global Qualitative Nursing Research

View full text Add to dashboard Cite

The stressors experienced by families caring for children and youth with developmental disabilities (DD) impact quality of life for all family members. Families employ creative practices to cope and thrive in the midst of such challenges. This study sought to understand the adaptive practices, tactics, and strategies engaged in by parents. We interviewed 39 parents of 46 children and youth with DD in Canada. Thematic analysis elucidated three categories of adaptations and twelve tactics and strategic actions at three ecological levels: within the system—adapting with everyday tactics and strategies; within our family—constructing spaces of care; within myself—adjusting perceptions of adversity. Our critical interpretation highlights an ecology of parental labor across varying psychosocial and health care service contexts in which parents strive to make a good life for their children and families. Nurses can empower and enhance their well-being by conducting holistic assessments and targeted family nursing interventions.

show abstract

“…Education and empowering the mothers during follow up help them not only to cope with their infants, but also enable them to give home care to their infants. Plan of mothers' education is to promote their independency and nurses are responsible for supporting, educating, and enhancing mothers coping with their infant [14] . Provide an educational program for mothers before discharge for increase their knowledge [15] .…”

Section: Introductionmentioning

confidence: 99%

Effect of mothers’ empowerment program on premature infants’ attachment and weight gain

Khalafallha¹

2022

Int. J. Res. Paediatric Nurs.

View full text Add to dashboard Cite

Empowerment program help mothers to increase readiness of weight gain and attachment for premature infants after discharge which in turn are a critical issue to decrease potential adverse consequences. Aim of the current study was to evaluate the effect of mothers' empowerment program on premature infants' attachment and weight gain. In order to represent the current research, the design of quasi-experimental was implemented. The study was conducted at Center for Social and Preventive Medicine in premature outpatient clinic in the Cairo University Specialized Pediatric Hospital (CUSPH). A convenience sample of 60 premature infants and their mothers was participated in the current study; mothers and their preterm infants were split into two equal groups: 30 as a control group and 30 as a study group. The data was collected using the following tools: a structured interview questionnaire sheet, mother's knowledge assessment questionnaire (pre/posttest), practices observational checklists, maternal postnatal attachment scale and standardized weight growth chart. The results revealed that, the mothers in the study group who received empowerment program had a higher overall mean score of knowledge and practices rather than mothers in the control group. There were statistically significant differences were detected for infant's weight in the study group before and after empowerment program rather than infants in the control group. As well as, there were statistically significant differences were detected for attachment scale in the study group before and after empowerment program rather than a control group. As well as the mothers who received the empowerment program there were increased weight and attachment for their premature infants.

show abstract

Health Promotion Toolkit: An Approach for Empowering Families Caring For Children with Developmental Disabilities in Tabuk

Cited by 7 publications

References 27 publications

Effectiveness of a peer group-based online intervention program in empowering families of children with disabilities at home

Effectiveness of a peer group-based online intervention program in empowering families of children with disabilities at home

Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities

Effect of mothers’ empowerment program on premature infants’ attachment and weight gain

Contact Info

Product

Resources

About