Health-Related Behaviors: A Study Among Former Young Caregivers

Shifren, Kim; Chong, Alexandra

doi:10.1007/s10804-011-9140-0

Cited by 20 publications

(23 citation statements)

References 61 publications

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“…Variations in nomenclature were evident across studies. The term ''young carer,'' was used, consistent with the British and Australian research, (Nichols et al 2013;Kavanaugh 2014;Kavanaugh et al 2015), while the majority used ''young caregivers'' (Shifren 2001;Shifren and Kachorek 2003;Keigher et al 2005;NAC/UHF 2005;Siskowski 2006;Shifren and Chong 2012;Nichols et al 2013), with ''caregiving youth'' also embraced by several researchers (Siskowski et al 2007;Cohen et al 2012). Shifren and Chong (2012) addressed the lack of consistency in defining child caregivers across studies: ''Currently, no general consensus exists for the operational definition of young caregivers… (p.…”

Section: Defining Caregiving Youthmentioning

confidence: 99%

“…Williams et al (2009) simply said that young caregivers are children who are the ages of minors, while Kavanaugh (2014) referred to young carers as under 19. Shifren and colleagues (Shifren 2001(Shifren , 2008Shifren and Kachorek 2003;Shifren and Chong 2012) used individuals who were caregivers aged 21 years and younger.…”

Section: Agementioning

confidence: 99%

“…Child caregivers were also defined by their relationship to the care recipient-often their parent (Keigher et al 2005;Bauman et al 2006;Nichols et al 2013;Kavanaugh 2014). Grandparents (Beach 1997;Lackey and Gates 2001;NAC/UHF 2005;Shifren 2008;Hamill 2012) adult relatives (Diaz et al 2007;Shifren and Kachorek 2003;Shifren and Chong 2012), and siblings (NAC/UHF 2005) were also listed as care recipients. Jacobson and Wood (2004) broadly referred to care recipients as family members or friends, although their sample included a large majority (80 %) of children caring for their parents.…”

Section: Relationship and Geographic Proximity To Care Recipientmentioning

confidence: 99%

See 2 more Smart Citations

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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With over 43 million family caregivers living in the United States, families are the largest providers of informal care in this country. Despite the extensive caregiving literature about prevalence, characteristics of care providers and care recipients, risks to caregivers' health and well-being, economic costs, impact on personal and family well-being, evidence-based interventions, and model community-based programs and supports for adult caregivers, gaps exist, specifically relating to caregiving youth, i.e., children under the age of 18 years. With no previous comprehensive review to assess what is known about US youth caregivers, a scoping review, focusing on mapping the key concepts, including the main sources and types of evidence available, was undertaken. By drawing conclusions about the overall state of research activity and identifying research gaps and priorities in the existing literature, this study provides a baseline assessment of youth caregiver research published in peer-reviewed journals from 1996 to 2015. A total of 22 articles were included in the analysis. Beyond inconsistencies with naming and defining young/youth caregivers, the review found significant knowledge gaps in crucial areas including SES status of families who rely on caregiving youth, the role of race, ethnicity and culture, support across schools, communities and medical professions, and the lack of caregiving programs and polices inclusive of youth under 18. The results underscore the need for further inquiry, including longitudinal study, into the lives and experiences of caregiving youth, informing the development of youth caregiver focused supports and polices across the US.

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Section: Defining Caregiving Youthmentioning

confidence: 99%

Section: Agementioning

confidence: 99%

Section: Relationship and Geographic Proximity To Care Recipientmentioning

confidence: 99%

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Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

et al. 2015

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“…Affected children either do not perceive themselves as carers at all and, therefore, deny corresponding questions, or they, or their parents, consciously make false statements due to fear of adverse consequences, but also due to shame. In addition, different definitions make comparison of data difficult , and there is still no precise definition as to when an assisting child becomes a caring child . Despite these restrictions, some data are available.…”

Section: Introductionmentioning

confidence: 99%

The prevalence of young carers – a standardised survey amongst school students (KiFam‐study)

Metzing

Ostermann

Robens

et al. 2019

Scandinavian Caring Sciences

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Scand J Caring Sci; 2020; 34: 501-513 The prevalence of young carersa standardised survey amongst school students (KiFam-study)Background: Children and adolescents who provide care, assistance or support for a chronically ill family member are called young carers. While there is a growing body of research about their specific situation, needs and impact of caring, only very few studies provide information on prevalence rates. Objectives: The aim was to provide prevalence data for young carers in Germany, and to describe and quantify the nature and extent of their help. Design: A cross-sectional study. Settings: Data collection took place between 2016 and 2017 in 44 secondary schools (fifth to 13th grade) in North Rhine-Westphalia, Germany. Participants: A total of 6313 students aged from 10 to 22 years participated in this study. They represent 0.5% of the basic population. Methods: Based on the results of a preliminary qualitative study, a standardised electronic questionnaire was developed, which comprised four subject areas: socio-demographic information, general daily aids, health-related quality of life and chronic illness within the family. Statistical analyses included chi-square tests for nominal data and univariate analyses of variance for metrical data together with 95% confidence intervals. Results: 19.6% (n = 1238) of all respondents state that someone in their family needs help due to a chronic illness. Nevertheless, not all of them are involved in caring activities. The prevalence of those defined as young carers in this study is 6.1% (n = 383), 64% are girls. They take on a wide range of activities. In addition to domestic work, they help their ill relatives with mobility, dressing and undressing, medication, feeding, personal hygiene and with intimate care. Conclusions: The data provide a good insight into the situation of young carers. The prevalence rate is higher than expected. It refers to the social relevance of this topic and the need for further investigations.

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“…At present, 3.6-5.5 million young adults (i.e. 18-25 years old) provide care to family members with chronic illnesses [2][3].…”

Section: Introductionmentioning

confidence: 99%

Undergraduate caregivers for individuals with chronic conditions: Stressors and needs

Mn¹,

Ld²,

Pb³

et al. 2017

Phys Med Rehabil Res

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Health-Related Behaviors: A Study Among Former Young Caregivers

Cited by 20 publications

References 61 publications

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States

The prevalence of young carers – a standardised survey amongst school students (KiFam‐study)

Undergraduate caregivers for individuals with chronic conditions: Stressors and needs

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