Health - Related Quality of Life in Transfusion - Dependent Thalassemia Major Patients and Associated Factors in Dubai , UAE , 2011

Mahdy, N Hasan; Wasfy, A; Faisal, Waleed

doi:10.5742/mejpa.2014.92525

Cited by 2 publications

(1 citation statement)

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“…(Table 3). In an experimental study of (86) school age Iranian children with thalassemia major it was found that the thalassemia major had a strong negative impact on emotional aspect of children more than social, and school achievement aspect (14) .Additional support was found study of (269) UAE children;It was conducted to assess the physical and psychosocial health of thalassemia children.The study result indicated that there were the most affected dimensions with emotional being affected more than any dimension by social, physical, and school achievement (15) . The results of the present study revealed that there were no significant differences between children response and information of their parents regarding the overall children psychosocial aspect of thalassemia, these findings revealed that majority of thalassemic children had always suffered problem of overall psychosocial status.…”

Section: Discussionmentioning

confidence: 90%

Psychosocial Aspects of School Age Children with Thalassemia Major in Al-Najaf Al-Ashraf

Ebrahimy

Kahtan

Salma

2016

Kufa Jour. Nurs. Sci.

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Background: Thalassemia major is a prevalent hereditary disease in Mediterranean region, the assessment of physical aspect of school age children, especially in those with chronic illness such as thalassemia is particularly important.Objectives: this study aims to assess psychosocial aspects of school age children with thalassemia major. And found out the magnitude association between psychosocial aspects and their demographic characteristics and their clinical characteristics. Methodology: A Non Probability "purposive" sample of (100) school age children with thalassemia major and their parents are included in the present study. The study was conducted in the period of September 2nd 2014 to August2nd2015 in Al Najaf Al Ashraf â„ Al-Zahra Maternal and Child Teaching Hospital / Thalassemia center. Researcher constructed special questioner to achieve objectives of the present study. Validity of the study instrument was determined through the panel of experts and the reliability of the study questionnaire was determined through Alpha correlation coefficient was computed for the determination of the internal consistency reliability which was ±= 0.87 for the standardized alpha of the internal scale of the assessment of child psychosocial aspects and ±= 0.91 for standardized Alpha of the internal scale of the assessment of parents proxy information. Data analyses through use descriptive (frequency and percentage) and inferential statistical analysis procedures (t-test , chi squire, and P- value) were used to data analysis. Results: The present study results indicated that there was a significant relationship between thalassemia major and their psychosocial aspects. Also non-significant differences between child and their parent's responses regard to the overall psychosocial aspects. Conclusions:. The study concluded that the majority of the study sample of thalassemic children had negative impact on psychosocial aspects. In addition, the emotional domain is the most affected one, followed by the social domain, and then the school domain. Recommendations: The study recommends that a psychologist and sociologist in the center thalassemia is a must be present to help in providing a link between patients, school, the families, and the physicians. And health oriented by mass media in providing information to population about thalassemia and other inherited diseases.

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Section: Discussionmentioning

confidence: 90%