Health related quality of life amongst people affected by leprosy in South Ghana: A needs assessment

Bello, Ajediran I; Dengzee, Sylvester A; Iyor, Fidelis T

doi:10.47276/lr.84.1.76

Cited by 16 publications

(8 citation statements)

References 1 publication

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Psychologically, they were looked at negatively by the society due to their visible deformity [ 30 , 51 ]. These findings were parallel to studies conducted in Ghana in 2013, India in 2017, and Indonesia in 2020 [ 36 , 45 , 52 ]. Moreover, fully recovered PwL, or those who had finished the MDT regimen, also had a low quality of life score [ 53 ].…”

Section: Resultssupporting

confidence: 85%

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

Achdiat

Ariyanto

Simanjuntak

2021

Dermatology Research and Practice

View full text Add to dashboard Cite

Background. Leprosy is a chronic infectious disease for which effective therapy has been long since invented. Thus, the morbidity has been decreased as technology has advanced, but the permanent disability has continuously generated stigma for centuries. The stigma causes the emergence of a poor psychological impact on people with leprosy (PwL). These impacts make new PwL reluctant to get appropriate therapy for their initial symptoms and are, thus, troublesome in accomplishing the goals of the leprosy elimination program. The aim of this review is to provide the history of psychological impact amongst PwL in countries across the globe. Methods. This is a literature review study. A keyword-based search was conducted in digital libraries. Articles reporting on PwL’s psychology and related issues, such as quality of life, opportunity of building a marriage, and getting hired, were included. The data were presented based on a leprosy history timeline with cutoff points, namely, the invention of promin (1941) and multidrug treatment (1970). Results. In total, 38 studies were included in this review. These studies showed that PwL’s knowledge towards leprosy has been increasing; nevertheless, their attitude is still lacking. The emotional response was described by various negative feelings that had persistently occurred. These poor psychological impacts were followed by poor treatment-seeking behavior and resulted in low quality of life. Conclusions. From year to year, the PwL’s knowledge about leprosy has been getting better; nevertheless, their attitude towards the disease is still poor. The emotional response, social participation, and quality of life of PwL are persistently poor due to the persistent stigma.

show abstract

Section: Resultssupporting

confidence: 85%

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

Achdiat

Ariyanto

Simanjuntak

2021

Dermatology Research and Practice

View full text Add to dashboard Cite

show abstract

“…People affected by Hansen’s disease are susceptible to develop neuropathy and physical disabilities and to suffer social ramifications, such as discrimination, social stigma, and impaired quality of life (QoL). 1–3 Some studies have shown that leprosy patients receive a low QoL score compared with the general population. 1,4–6…”

Section: Introductionmentioning

confidence: 99%

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Borges-de-Oliveira

Rocha-Leite

Araújo-de-Freitas

et al. 2015

Int J Psychiatry Med

View full text Add to dashboard Cite

show abstract

“…mental institutions. 27,36–38 At the same time Premkumar 39 found that leprosy sanatoria, with time, significantly contributed to new knowledge and treatments of the disease as research could be better coordinated. Lack of information and education for patients, relatives, and the community and healthcare providers was understood in this study to be the main reason for stigmatization.…”

Section: Discussionmentioning

confidence: 99%

Health-related stigma related to leprosy: What can be learned from nurses in Ghana?

Bergman

Britton

Kneck

2017

Nordic Journal of Nursing Research

View full text Add to dashboard Cite

The aim of the study was to describe nurses' experiences of how stigma affected the care and health of patients with leprosy. Health-related stigma exists worldwide and affects patients, relatives and caregivers. Mere word 'leprosy' is often met with disgust, shame and fear. Knowledge of health-related stigma is important for developing care in different parts of the world. The study has a qualitative, descriptive design. Seven semi-structured individual interviews were conducted with nurses working at a hospital specializing in leprosy care. The study was carried out in the central region of Ghana. Data were analysed using qualitative content analysis. The findings are presented as one theme, 'Increased knowledge and holistic interventions are important in care for patients with leprosy', and three sub-themes: 'knowledge and beliefs are intimately interlaced with leprosyrelated stigma', 'information is important but not enough to change behaviours and attitudes' and 'long-term interventions in a social context'. We conclude that caring for patients with leprosy involved long-term interventions, not at least in relation to education on a society level as well as concerning patients' abilities to learn a skill to make an income in order to be less dependent on healthcare facilities.

show abstract

Health related quality of life amongst people affected by leprosy in South Ghana: A needs assessment

Cited by 16 publications

References 1 publication

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

A Literature Review: The History of Psychological Impact of Illness amongst People with Leprosy (PwL) in Countries across the Globe

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Health-related stigma related to leprosy: What can be learned from nurses in Ghana?

Contact Info

Product

Resources

About