Health-related quality of life and treatment effects on children with functional incontinence, and their parents

Equit, Monika; Hill, Jonathan; Hübner, Andreas; Gontard, Alexander von

doi:10.1016/j.jpurol.2014.03.002

Cited by 43 publications

(29 citation statements)

References 22 publications

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“…We assessed HRQoL in children with NE using a Swedish version of the disease‐specific, cross‐cultural paediatric tool PinQ. The mean total score was similar to most previous studies using the same instrument , but in one study , total scores that were quite a bit higher (37.6) were found. However, 87% of the children included in that study had both day‐ and night‐time wetting, a fact that could account for the higher total scores that were reported.…”

Section: Discussionsupporting

confidence: 56%

“…This instrument has proven to be a reliable and valid tool that quantifies the holistic effect of bladder dysfunction in children and has been recommended for assessing self‐reported HRQoL in children with urinary incontinence . The questionnaire has also been used to measure changes in QoL during therapy . To date, there has been no QoL tool specifically for this group available in the Swedish language.…”

Section: Introductionmentioning

confidence: 99%

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Nocturnal enuresis impaired children's quality of life and friendships

et al. 2017

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Aim: There have not been any continence-specific measurement tools in Swedish that have allowed clinicians to investigate the quality of life (QoL) in children with bladder dysfunction. This study evaluated the QoL in Swedish children with nocturnal enuresis and tested the reliability of a Swedish translation of the Paediatric Incontinence Questionnaire (PinQ).Methods: This prospective study comprised 46 children aged six to 18 years with nocturnal enuresis, who completed the PinQ after it was translated into Swedish. It was completed twice by 33 patients, and these responses were included in the test-retest evaluation.Results: The self-reported mean sum score for the whole group was 26.3 AE 13.37 (range: 5-58), and the most affected domains were social relations with peers and self-esteem. The highest individual scores were four, three or two for 71.7%, 17.4% and 10.9% of the study population, respectively. Cronbach's alpha was 0.87 for the whole questionnaire, indicating good internal consistency. The test-retest stability was excellent, with an intra-class correlation coefficient of 0.76.

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Section: Discussionsupporting

confidence: 56%

Section: Introductionmentioning

confidence: 99%

Nocturnal enuresis impaired children's quality of life and friendships

et al. 2017

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“…Daytime urinary incontinence can lead to shame, teasing, reduced enjoyment of play dates and conflict with school teachers over toilet access during lesson time (Veloso, Mello, Ribeiro Neto, Barbosa, & Silva, 2016). Bowel dysfunction can also negatively affect wellbeing or quality of life (QOL) (Collis et al, 2019;Kovacic et al, 2015) and children with combined bladder and bowel conditions have lower QOL than children with one condition in isolation (Equit, Hill, Hübner, & Von Gontard, 2014).…”

Section: Introductionmentioning

confidence: 99%

Supporting parents of children aged 2–13 with toileting difficulties: Group‐based workshops versus individual appointments

Collis

Kennedy‐Behr

Kearney

2019

Aus Occup Therapy J

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Introduction Toileting is a key activity of daily living and an important milestone in children’s development. Difficulties with this process can cause stress to both child and parents and negatively affect their wellbeing. This study compared the perceived parental competence and child wellbeing of families attending a group‐based workshop on toileting issues with families attending an individual appointment at a continence clinic. Methods All parents attending the workshops and attending the clinic between July 2016 and December 2017 were invited to participate in the study. The children were aged between 2 and 13 years. Three measures were used: 1) Parenting Sense of Competence Scale; (2) the Revised Quality of Life Questionnaire for Children (KINDLR) and (3) Parent self‐assessment of information and support needs. Participants completed all measures at three points: prior to intervention, 1 week and 1 month post‐intervention. Results Data were collected from 89 parents attending the workshops and 46 parents attending the clinic. Children were not assessed. Non‐parametric tests were used to examine between group differences. Within group changes overtime were examined using Friedman’s two‐way analysis of variance. Parents who attended the workshop showed significant increases in parenting sense of competence and perceived child quality of life post‐intervention. Although there were significant differences between and pre‐ and post‐measures for workshop attendees, there were no significant differences found between the two groups indicating that both forms of intervention had beneficial results. Conclusion These results suggest that group‐based workshops can positively impact parents’ perceived competence in managing their child’s toileting issues and wellbeing. Further research is recommended to explore the relationship between parenting competence and child wellbeing and to determine which aspects of the workshops were most beneficial.

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“…Successful treatment leads to an improved quality of life according to the child [13]. Psychological symptoms will resolve by attaining continence, while manifest disorders or clinical symptoms usually do not [2].…”

Section: Introductionmentioning

confidence: 99%