Health-related quality of life and caregiver’s burden in patients with chronic diseases: a cross-sectional study

Mirhosseini, Seyedmohammad; Milad, Bazghaleh; Basirinezhad, Mohammad Hasan; Abbasi, Ali; Ebrahimi, Hossein

doi:10.5114/fmpcr.2021.103184

Cited by 4 publications

(4 citation statements)

References 35 publications

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“…This resulted in a decline in their health and quality of life (Zou, 2014). Similar to the current study's findings, the findings of a study done by (Mirhosseini et al, 2021) in Turkey aiming at assessing the QoL of family caregivers of cancer patients revealed that caregivers with chronic conditions reported lower QoL.…”

Section: Discussionsupporting

confidence: 89%

Quality of Life among Caregivers of Patients with Chronic Renal Failure Undergoing Hemodialysis in Duhok City

Naaman

Ahmed

2022

UOD

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BACKGROUND: Caregivers of hemodialysis (HD) patients play a critical role in their care which can influence their quality of life. As a result, the present study aimed to examine the quality of life among hemodialysis caregivers and their relationship with some characteristics of caregivers and patients. SUBJECT AND METHODS: This descriptive cross-sectional survey was directed to assess the quality of life among family caregivers of hemodialysis patients. consecutive sampling was done and included (139) caregivers who had inclusion criteria. The period of data collection was from the 2nd of November 2021 to the 10th of February 2022. The Short Form 36 questionnaire was used to collect data. a p-value of < 0.05 was statistically significant. RESULTS: Of 139 caregivers, the mean quality of life, physical and mental component scores were 59.49 ± 22.13, 63.2 ± 25.5, and 52.7 ±27.8 respectively. The scores of the physical functioning domain had the highest score (75.4 ± 24.74), while the Energy/Fatigue domain obtained the lowest score (46.19±25.86). There was a significant negative correlation between age and the quality of life (r=-0.3858, P<0.0001). Additionally, the quality of life was higher among younger, male, single, educated, and employed caregivers at a p-value (<0.0001, =0.0003, <0.0001, =0.0022, and =0.0091) respectively. CONCLUSION: Caregivers of hemodialysis patients had a satisfactory total quality of life score. Energy/Fatigue and mental health, on the other hand, were the most affected domains. These findings emphasize the necessity of addressing the mental health of caregivers, as well as providing them with financial and psychological support

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Section: Discussionsupporting

confidence: 89%

Quality of Life among Caregivers of Patients with Chronic Renal Failure Undergoing Hemodialysis in Duhok City

Naaman

Ahmed

2022

UOD

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“…A recent study showed that caregiver’s educational level inversely correlated with the caring burden level. 21 Our study showed that half of the caregivers have a college degree and report a low income. This is similar to the findings of another recent study.…”

Section: Discussionmentioning

confidence: 57%

Assessment of Type II Diabetes Patients’ Caregivers’ Burnout Level: A Cross-Sectional Study in Taif, Saudi Arabia

Alsaedi

Almalki

Alqurashi

et al. 2022

DMSO

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Background Diabetes mellitus type II (T2D) is a chronic condition that requires significant change in the family behavior and is associated with psychosocial conflicts for both patients and their family environment. The aim of this study is to assess burnout among relatives caring for patients with T2D. Methods This cross-sectional study with random sampling was conducted on 501 caregivers of patients with T2D between April and September 2021 at Prince Mansour armed forces hospital in Taif city, Saudi Arabia. Data collection tool was a modified version of the caregiver stress self-assessment questionnaire. Data analysis was then carried out using t -test and chi-square test (SPSS v20). Results The mean patient age was 64.4+12.0 years, female predominant with longstanding T2D. Metformin was the most prescribed T2D medication. The caregivers’ mean age was 34.9+12.4 years, male predominant, and around 45% of them report low level of education and income; 63.9% of the caregivers report little to no stress. Compared with caregivers with mild/moderate stress and moderate/severe stress, caregivers with little to no stress were more likely to be younger in age (P <0.001), male (P = 0.464), single (P = 0.035), patient’s offspring (P = 0.490), caring for T2D patients with younger age (P = 0.058) and shorter T2D duration (P = 0.074), patients who were less likely to use a wheelchair (P = 0.008), patients who were less likely to be prescribed a complex insulin regimen and with better glycemic control parameters (both P >0.05), and patients with higher HDL level (P = 0.037). Conclusion There were no correlations between the caregivers’ levels of stress and the T2D patients’ HbA1c levels. There was a significant positive correlation between a caregiver’s stress score and the caregiver’s age. Future studies are needed to assess other caregivers’ parameters and their relation to metabolic control of T2D patients.

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“…The Novak and Guest’s Caregiver Burden Inventory (CBI) was used to examine the caregiver care burden, which has been used in the context of chronic diseases [ 37 ]. This questionnaire contains 24 items and five dimensions, which include time dependence care burden (5 items), developmental care burden (5 items), physical care burden (4 items), social care burden (5 items), and emotional care burden (5 items).…”

Section: Methodsmentioning

confidence: 99%

Effectiveness of a supportive care program via a smartphone application on the quality of life and care burden among family caregivers of patients with major depressive disorder: a randomized controlled trial

Minaei-Moghadam,

Manzari,

Vaghee

et al. 2024

BMC Public Health

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Background The majority of patients with major depressive disorder require care that has generally affected caregivers’ lives. Providing care could cause negative experiences as a care burden and deteriorate quality of life. However, there is a lack of evidence about caregiver training-based informatics and its impact on the caregiver’s life. Methods This experimental study was carried out in Mashhad, Iran. A total of 60 primary family caregivers of patients with major depressive disorder were included in the study between February and July 2021. The quadruple block randomization method was used to allocate the participants into control and intervention groups. In the intervention group, family caregivers used the application with weekly phone calls for one month. The app contains the most important points of patient care and has the possibility of communicating with the nurse. The Novak and Guest Care Burden Inventory and the short form of the World Health Organization Quality of Life Questionnaire were completed before and after the intervention. Data analysis was performed using chi-squared tests, independent sample t tests, and analysis of covariance. Results At baseline, the mean scores of care burden and quality of life were homogeneous between the two groups. After the intervention, the mean scores of care burden and quality of life were significantly reduced and improved in the intervention group compared with the control group (p < 0.001). Conclusions Using the application with the ability to communicate with the caregiver, along with educational support, helps to strengthen the relationship between the family caregiver and the nurse. Despite the effectiveness of the present intervention, before including this form of implementation of support in care programs, it is necessary to evaluate its other positive aspects in future studies. Trial registration Iranian Registry of Clinical Trials (IRCT), IRCT20210202050222N1. Registered on 05/02/2022.

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Health-related quality of life and caregiver’s burden in patients with chronic diseases: a cross-sectional study

Cited by 4 publications

References 35 publications

Quality of Life among Caregivers of Patients with Chronic Renal Failure Undergoing Hemodialysis in Duhok City

Quality of Life among Caregivers of Patients with Chronic Renal Failure Undergoing Hemodialysis in Duhok City

Assessment of Type II Diabetes Patients’ Caregivers’ Burnout Level: A Cross-Sectional Study in Taif, Saudi Arabia

Effectiveness of a supportive care program via a smartphone application on the quality of life and care burden among family caregivers of patients with major depressive disorder: a randomized controlled trial

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