2019
DOI: 10.1037/pas0000743
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Health-related quality-of-life assessment in dementia: Evidence of cross-cultural validity in Latin America.

Abstract: All health-related quality-of-life (HRQL) measures for dementia have been developed in high-income countries and none were validated for cross-cultural use. Yet, the global majority of people living with dementia reside in low- and middle-income countries. We therefore investigated the measurement invariance of a set of self- and informant-report HRQL measures developed in the United Kingdom when used in Latin America. Self-reported HRQL was obtained using (DEMQOL) at a memory assessment service in the United … Show more

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Cited by 7 publications
(4 citation statements)
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References 87 publications
(118 reference statements)
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“…The IIC shows the level of sensitivity of a mastery item (y-axis) and how the sensitivity varies depending on whether individuals have below average, average, and above average mastery (x-axis) [37]. In general, an item in the mastery scale was considered for inclusion if the item offered (a) greater discrimination parameters (i.e., steeper slopes), (b) broader range of difficulty parameters spread across the full continuum of mastery trait, and (c) higher levels of item information-along the range of measured mastery trait [38].…”
Section: Discussionmentioning
confidence: 99%
“…The IIC shows the level of sensitivity of a mastery item (y-axis) and how the sensitivity varies depending on whether individuals have below average, average, and above average mastery (x-axis) [37]. In general, an item in the mastery scale was considered for inclusion if the item offered (a) greater discrimination parameters (i.e., steeper slopes), (b) broader range of difficulty parameters spread across the full continuum of mastery trait, and (c) higher levels of item information-along the range of measured mastery trait [38].…”
Section: Discussionmentioning
confidence: 99%
“…The most commonly used specific HRQoL instruments were Pediatric Quality of Life Inventory (PedsQL), the European Organization for Research and Treatment of Cancer Quality of Life Core Questionnaire (EORTC QLQ-C30), the St. George's Respiratory Questionnaire (SGRQ), the Patient-Reported Outcomes Measurement Information System (PROMIS), The Oral Health Impact Profile (OHIP), and MOS-HIV. We noticed that there were still many diseases that have not developed their specific HRQoL instruments [ 43 ]. Small but significant changes in disease progression may be missed, which requires further study.…”
Section: Discussionmentioning
confidence: 99%
“…Cronbach's alpha for the 31‐item proxy scale was (0.90) for the overall score and similar for both subscales (functioning 0.90 and emotion 0.85). The DEMQOL and DEMQOL‐proxy have been validated in different clinical settings as well as cultures 18,30‐33 …”
Section: Methodsmentioning
confidence: 99%