Health-related Quality of Life Improves in Children and Adolescents with Inflammatory Bowel Disease After Attending a Camp Sponsored by the Crohnʼs and Colitis Foundation of America

Shepanski, Melissa A.; Hurd, Linda B.; Culton, Keri; Markowitz, Jonathan E.; Mamula, Petar; Baldassano, Robert N.

doi:10.1097/00054725-200502000-00010

Cited by 84 publications

(79 citation statements)

References 35 publications

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“…Depending on the questionnaire used, different classifications in quality of life can be reported in the same population. Shepanski et al (20) evaluated the health-related quality of life of 71 children and adolescents with IBD using the IMPACT-35 instrument, which consists of 35 questions divided into six domains (symptoms of inflammatory bowel disease, systemic symptoms, emotional functioning, social functioning, body image, treatment and interventions). On the other hand, Loonen et al (12) measured the quality of life in children and adolescents with IBD using a generic instrument the TNO-AZL Children's Quality of Life questionnaitre(TACQOL), and concluded that they have impaired their quality of life, with damage in motor function and autonomy of these patients.…”

Section: Discussionmentioning

confidence: 99%

Assessment of quality of life of patients with inflammatory bowel disease residing in Southern Brazil

Cohen

Bin

Fayh

2010

Arq. Gastroenterol.

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-Context -Chronic diseases have an impact on the quality of life of the individuals. Objective -To evaluate the quality of life of adults with inflammatory bowel disease by the inflammatory bowel disease questionnaire certified for Portuguese language. Methods -We interviewed 50 individuals from both genders aged from 18 to 60 years old, with Crohn's disease and ulcerative colitis, regardless of disease activity. Results -The average age of the sample was 42.2 ± 13.6 years old, the disease length was 98.8 ± 74.3 months, and 72% of patients had Crohn's disease and 14% presented disease activity. There was no significant difference in questionnaire scores of patients with different inflammatory bowel disease when they are in the remission phase (172.0 ± 42.4 and 173.6 ± 28.2 for ulcerative colitis and Crohn's disease, respectively, P = 0.886). When compared to scores of patients who were in crisis, it was found that they have a lower quality of life that patients in remission (123.8 ± 44.5 and 173.3 ± 31.5 for patients in crisis and remission, respectively, P = 0.001). Conclusion -It was noticed that the quality of life of patients with inflammatory bowel disease did not differ among patients with Crohn's disease or ulcerative colitis, when patients are in remission. The main aspect which determines the loss of quality of life would be being at the stage of disease activity. HEADINGS -Inflammatory bowel diseases. Crohn disease. Proctocolitis. Quality of life.

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Section: Discussionmentioning

confidence: 99%

Assessment of quality of life of patients with inflammatory bowel disease residing in Southern Brazil

Cohen

Bin

Fayh

2010

Arq. Gastroenterol.

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“…A special summer camp proved to be helpful for children with IBD 68 . The 9-16 year old children had no formal IBD educational classes but many informal conversations among the campers and between campers and counselors about their illness.…”

Section: Individual Cbt-like Treatmentmentioning

confidence: 99%

Psychological Aspects and Psychotherapy of Inflammatory Bowel Diseases and Irritable Bowel Syndrome in Children

Praško¹,

Jelenová²,

Mihál³

2010

Biomed Pap Med Fac Univ Palacky Olomouc Czech Repub

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“…Shepanski et al 97 found that adolescents that attended a summer IBD camp experienced improved social functioning, improved total QOL, and better acceptance of IBD symptoms. This may act to normalize the illness experience.…”

Section: Social Supportmentioning

confidence: 99%

Strategies to improve quality of life in adolescents with inflammatory bowel disease

Karwowski

Keljo

Szigethy

2009

Inflammatory Bowel Diseases

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Inflammatory bowel disease (IBD), which encompasses Crohn's disease (CD) and ulcerative colitis (UC), are chronic and debilitating conditions with unpredictable courses and complicated treatment. Pediatric IBD carries implications that extend beyond the health of the gastrointestinal tract. When these lifelong illnesses are diagnosed during adolescence, a critical developmental period, the transition to adulthood can be even more turbulent. Like other chronic diseases of childhood, patients with IBD are at risk for depression, anxiety, social isolation, and altered self-image, which can all negatively affect health-related quality of life (HRQOL). The review will draw from pertinent adult and pediatric literature about HRQOL over the past 10 years using a PubMed literature search to summarize instruments with which HRQOL is measured, and address factors that affect HRQOL in adolescents and young adults with IBD. Psychosocial interventions that have been utilized to improve quality of life in this population will also be covered. Identifying patients with impaired quality of life is of paramount importance, as is implementing strategies that may improve HRQOL, so that they may have an easier transition to adulthood while living with IBD.

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Health-related Quality of Life Improves in Children and Adolescents with Inflammatory Bowel Disease After Attending a Camp Sponsored by the Crohnʼs and Colitis Foundation of America

Cited by 84 publications

References 35 publications

Assessment of quality of life of patients with inflammatory bowel disease residing in Southern Brazil

Assessment of quality of life of patients with inflammatory bowel disease residing in Southern Brazil

Psychological Aspects and Psychotherapy of Inflammatory Bowel Diseases and Irritable Bowel Syndrome in Children

Strategies to improve quality of life in adolescents with inflammatory bowel disease

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