Health-related quality of life in a population-based sample of people with                 multiple sclerosis in Stockholm County

Gottberg, Kristina; Einarsson, Ulrika; Ytterberg, Charlotte; Cuesta, Jesús de Pedro; Fredrikson, Sten; Koch, Lena von; Holmqvist, Lotta Widén

doi:10.1177/1352458505070660

Cited by 59 publications

(76 citation statements)

References 29 publications

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“…Chronic and progressive diseases like MS seem to particularly modify an individual's QoL. This is confirmed by studies conducted in Sweden, Germany, Spain, the United States and Canada [13][14][15][16][17]. However, because of cultural and social differences and the organization of the health care system, the results of these studies cannot be directly linked to MS patients in Poland [18].…”

Section: Introductionsupporting

confidence: 61%

Quality of life in Polish patients with multiple sclerosis

Mitosek-Szewczyk

Kułakowska

Bartosik-Psujek

et al. 2014

Advances in Medical Sciences

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Section: Introductionsupporting

confidence: 61%

Quality of life in Polish patients with multiple sclerosis

Mitosek-Szewczyk

Kułakowska

Bartosik-Psujek

et al. 2014

Advances in Medical Sciences

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“…15,21,[32][33][34][35][36] In one study employing both the SIP and the SF-36, the SIP was shown to have stronger associations with the Multiple Sclerosis Functional Composite (MSFC) and EDSS than the SF-36. 34 Using the SIP, our objective was to determine the relative influence of physical disability and cognitive impairment in predicting HRQOL in a large sample of MS patients.…”

mentioning

confidence: 99%

Cognition and Physical Disability in Predicting Health-Related Quality of Life in Multiple Sclerosis

Hoogs

Kaur

Smerbeck

et al. 2011

International Journal of MS Care

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Many studies have shown that multiple sclerosis (MS) has a significant impact on patient healthrelated quality of life (HRQOL), but the relative contributions of physical versus cognitive disability are not well established. Most studies have relied on HRQOL outcomes that depend largely on patient mood, life satisfaction, and personal happiness. The Sickness Impact Profile (SIP) is a measure of HRQOL known for its relatively strong emphasis on task completion and activities of daily living. As such, the SIP may be less influenced by depression. We sought to determine the relative influence of physical disability and cognition, above and beyond demographic and disease variables, in predicting HRQOL. Patients (n = 132) and healthy controls (n = 26) underwent complete neuropsychological evaluation using the Minimal Assessment of Cognitive Function in MS (MACFIMS) battery and a series of self-report measures assessing depression, fatigue, and HRQOL. The SIP was also administered. Correlation analysis and group comparisons revealed significant associations between cognition and HRQOL outcomes. Logistic regression models comparing the Expanded Disability Status Scale (EDSS) and cognitive tests in predicting poor physical HRQOL retained both EDSS and Symbol Digit Modalities Test (SDMT) performance, while models predicting poor psychosocial and poor overall HRQOL retained only the SDMT. These findings support cognition as a significant predictor of overall HRQOL, psychosocial HRQOL, and, interestingly, physical HRQOL. Int J MS Care. 2011;13:57-63.

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“…[6][7][8][9] So far, however, there has been no report of any long-term longitudinal study in the UK, although two British population surveys described follow-up of 1 year. 1,10 A recent study from Sweden reported a deterioration over 4 years in HRQoL of women of all ages, and in younger men.…”

Section: Introductionmentioning

confidence: 99%

Temporal change in health-related quality of life: a longitudinal study in general practice 1999–2004

Hazell

Morris²,

Linehan³

et al. 2009

Br J Gen Pract

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BackgroundIn order to assess and plan for changing healthcare needs, the lack of available information regarding temporal changes in the health-related quality of life of a population must be addressed. AimThis paper aims to describe such changes over 5 years in a general population. Design of studyLongitudinal postal questionnaire study. Setting UK general practice. MethodThis was a longitudinal postal questionnaire study in two general practice populations, using the generic instrument EQ-5D to measure health-related quality of life. Individuals were included if they responded to three postal surveys in 1999, 2001, and 2004 and there were three consecutive values of EQ-5Dindex available between 1999 and 2004. ResultsA total of 2498 subjects were included in the study. After adjustment for potential confounders (including ageing), health-related quality of life declined significantly over the observation period. The change in EQ-5Dindex was from 0.79 to 0.74 and for EQ-5Dvas 76.8 to 73.3 (P for both trends <0.001). ConclusionHealth-related quality of life deteriorated in these populations over 5 years. In an era of improvements in mortality, this has important implications for the use of health-related quality of life data in healthcare planning and resource allocation.Keywords chronic disease; EQ-5D; health related quality of life; temporal trend. INTRODUCTIONTo assess the changing health needs of a population and to evaluate the extent to which patients' healthrelated quality of life (HRQoL) benefits from health care, it is generally agreed that a systematic structured approach is needed.1 For this purpose, generic HRQoL measures such as EQ-5D have been developed. 2In contrast to disease-specific instruments, these can compare quality of life in populations, regardless of disease.EQ-5D has been used in cross-sectional studies in both general populations 3-5 and those with specific morbidities.6-9 So far, however, there has been no report of any long-term longitudinal study in the UK, although two British population surveys described follow-up of 1 year.1,10 A recent study from Sweden reported a deterioration over 4 years in HRQoL of women of all ages, and in younger men. 11 METHODThe aim of this study was to compare the temporal changes in health-related quality of life in three postal surveys. This study formed part of a larger long-term epidemiological study looking at a

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Health-related quality of life in a population-based sample of people with multiple sclerosis in Stockholm County

Cited by 59 publications

References 29 publications

Quality of life in Polish patients with multiple sclerosis

Quality of life in Polish patients with multiple sclerosis

Cognition and Physical Disability in Predicting Health-Related Quality of Life in Multiple Sclerosis

Temporal change in health-related quality of life: a longitudinal study in general practice 1999–2004

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