Health-Related Quality of Life in Caregivers of Individuals With Dementia From Colombia

Arango‐Lasprilla, Juan Carlos; Lehan, Tara; Drew, Allison; Moreno, Alexander; Deng, Xiaoyan; Lemos, Mariantonia

doi:10.1177/1533317510382287

Cited by 27 publications

(26 citation statements)

References 26 publications

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“…Notably, reported fatigue exceeded that reported in the general population and caregivers of persons living with other chronic illness. 44–50 Third, caregivers with clinically significant fatigue consistently reported worse depressive symptoms, burden, health risk behaviors, and sleep quality.…”

Section: Discussionmentioning

confidence: 97%

“…53 Cameron et al also reported fatigue in caregivers of survivors of acute respiratory distress syndrome from six to 53 months (average 23 months) post-ICU discharge. 54 Similar to the caregivers of persons living with other chronic conditions, such as dementia, 44–46 post-stroke, 47 psychiatric diagnoses (e.g., schizophrenia), 48 and cancer, 49,50 fatigue may be an important yet under-recognized problem experienced by caregivers of ICU survivors. More research is needed to better understand and manage fatigue in this caregiver population.…”

Section: Discussionmentioning

confidence: 99%

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Fatigue in Family Caregivers of Adult Intensive Care Unit Survivors

Choi

Tate

Hoffman

et al. 2014

Journal of Pain and Symptom Management

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Context Family caregivers are a vital resource in the recovery of intensive care unit (ICU) survivors. Of concern, the stress associated with this role can negatively affect caregiver health. Fatigue, an important health indicator, has been identified as a predictor of various illnesses, greater use of health services, and early mortality. Examining the impact of fatigue on caregivers’ physical health can assist in identifying critical time points and potential targets for intervention. Objectives To describe self-reported fatigue in caregivers of ICU survivors from patients’ ICU admission to ≤ two weeks, two- and four-months post-ICU discharge. Methods Patient-caregiver pairs were enrolled from a medical ICU. Caregiver fatigue was measured using the Short-Form-36 Health Survey Vitality subscale (SF-36 Vitality). Caregiver psychobehavioral stress responses included depressive symptoms, burden, health risk behaviors, and sleep quality. Patient data included self-reported physical symptoms and disposition (home vs. institution). Results Forty seven patient-caregiver pairs were initially enrolled. Clinically significant fatigue (SF-36 Vitality ≤ 45) was reported by 43% to 53% of caregivers across the time points and these caregivers reported worse scores in measures of depressive symptoms, burden, health risk behaviors and sleep quality, and patients’ symptom burden. In 26 caregivers with data for all time points (55% of the total sample), SF-36 Vitality scores showed trends of improvement when the patient returned home and greater impairment when institutionalization continued. Conclusion In caregivers of ICU survivors, fatigue is common and potentially linked with poor psychobehavioral responses. Worsening fatigue was associated with greater symptom distress and long-term patient institutionalization.

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Section: Discussionmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 99%

Fatigue in Family Caregivers of Adult Intensive Care Unit Survivors

Choi

Tate

Hoffman

et al. 2014

Journal of Pain and Symptom Management

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“…As a result they will suffer from physical health problems such as chronic backache, musculoskeletal pain, reduce social activities, poor mental health, cardiovascular problems and poor sleep [6,7,8] . Previous studies have shown that these symptoms will give an impact on their quality of life [9,10,11] . The existence of formal social support was widely available in country like Japan, USA and UK, which gave helps to most of dementia caregivers.…”

Section: Imentioning

confidence: 99%

Informal Social Support and Caregiver Burden of Caregivers of Elderly with Dementia

NurFatihah¹,

M.A²

2013

IOSR-JHSS

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“…La literatura sobre cuidadores familiares tiene suficientemente registradas las consecuencias negativas de la sobrecarga del trabajo derivado de las tareas del cuidado, indicando que dicha labor aumenta los riesgos ante diversos padecimientos físicos y emocionales, incluyendo sentimientos de soledad, depresión, ansiedad, fatiga, estrés y sobrecarga (Arango-Lasprilla, Lehan, Drew, Moreno, Deng, & Lemos, 2010;Marziali, McCleary & Streiner, 2010;López & Crespo, 2007). Sin embargo, es mucho menor el conocimiento acerca de las motivaciones que los cuidadores tienen para iniciar y mantener su labor a pesar de las dificultades que ello implica (Kita & Ito, 2013).…”

Section: Introductionunclassified

Escala de abnegación en cuidadores familiares de adultos mayores.

Guedea¹,

Díaz‐Loving²

2015

AN PSICOL-SPAIN

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Resumen: La literatura sobre cuidadores familiares de adultos mayores señala que la abnegación es un atributo característico en quien asume el rol del cuidado aún a expensas del deterioro de la propia salud física y/o emocional; sin embargo, no se ha desarrollado un instrumento psicométrico que posibilite el estudio de la abnegación en muestras grandes de cuidadores y que genere evidencia que se pueda integrar a modelos comprehensivos del bienestar en cuidadores. Con el marco teórico y empírico de la etnopsicología mexicana, se diseñó una escala de abnegación que se aplicó a dos muestras de cuidadores (n1=115; n=351), mediante un muestreo no probabilísti-co. Análisis factoriales exploratorios revelaron dos dimensiones que explican 60% de la varianza del atributo: Auto-modificación para evitar tensiones familiares y Auto-sacrificio para satisfacer necesidades familiares. Análi-sis factoriales, vía ecuaciones estructurales, confirmaron el modelo de medida sometido, de acuerdo a los siguientes índices de bondad de ajuste: SRMR = .039, RMSEA = .062, CFI = .971, GFI = .975, NFI = .950. La escala mostró propiedades de validez y confiabilidad adecuadas, indicando factores culturalmente relevantes y conceptualmente claros. Palabras clave: Abnegación; adultos mayores; cuidadores familiares; validación; etnopsicología.Title: Elder´s Family Caregiver Abnegation Scale. Abstract: Literature about family caregivers of the elderly identify abnegation as a main attribute in those who assume the caregiving role. This characteristic comes at the expense of their own physical and/or emotional health; however, no psychometric instruments have been developed that study abnegation within large caregiver samples which can in turn generate evidence that could be integrated into comprehensive models of well-being in caregivers. Aided by the theoretical frame and empirical background of Mexican ethnopsychology, an abnegation scale was designed and applied to two caregivers samples (n1=115; n2=351), using non probabilistic sampling. Exploratory factor analysis revealed two dimensions that explained 60% of test variance: Self-modification to avoid familiar tension and Selfdenial to meet family needs. Factor analysis through structural equation modeling confirmed the submitted measure model, in accordance to the following goodness of fit indexes: SRMR = .039, RMSEA = .062, CFI = .971, GFI = .975, NFI = .950. The scale showed adequate validity and reliability properties, indicating culturally relevant and conceptually clear factors.

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Health-Related Quality of Life in Caregivers of Individuals With Dementia From Colombia

Cited by 27 publications

References 26 publications

Fatigue in Family Caregivers of Adult Intensive Care Unit Survivors

Fatigue in Family Caregivers of Adult Intensive Care Unit Survivors

Informal Social Support and Caregiver Burden of Caregivers of Elderly with Dementia

Escala de abnegación en cuidadores familiares de adultos mayores.

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