Health-related quality of life in caregivers of individuals with traumatic brain injury from Guadalajara, Mexico

Jc, Arango-Lasprilla; Nicholls, Elizabeth; T, Villaseñor Cabrera; Drew, Allison; Jiménez-Maldonado, Miriam; Ml, Martinez-Cortes

doi:10.2340/16501977-0883

Cited by 44 publications

(58 citation statements)

References 16 publications

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“…For example, one study of both male and female caregivers of civilians with TBI found that QOL as measured with the Life Satisfaction Questionnaire was low [35]. Other studies of TBI caregivers using the 36-Item Short Form Health Survey [36] and the World Health Organization Quality of Life-BREF [14,37] also reported low levels of QOL in informal caregivers of individuals with TBI. Participants rated their overall general health as moderately healthy.…”

Section: Discussionmentioning

confidence: 99%

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

et al. 2016

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Abstract-Families of Veterans with traumatic brain injury (TBI) are often faced with providing long-term informal care to their loved one. However, little is known about how their perceived health and caregiving burden contribute to their quality of life (QOL). The purpose of this descriptive study was to describe perceived health, somatic symptoms, caregiver burden, and perceived QOL and to identify the extent to which these variables are associated with QOL in female partners/ spouses of Veterans with TBI. Participants completed a written questionnaire including the general health subscale of the 12-Item Short Form Survey version 2, the Patient Health Questionnaire-15, Caregiver Reaction Assessment, and Quality of Life Index. Caregivers reported moderate levels of QOL, and over a quarter of the sample reported high levels of somatic symptoms, particularly fatigue and sleep disturbance. Age, perceived general health, somatic symptoms, the five subscales of caregiver burden (self-esteem, disrupted schedule, effect on finances, lack of family support, and effect on health) predicted QOL and explained 64% of its variance (adjusted r 2 = 0.64, F(8,31) = 9.59). However, only somatic symptoms and the caregiver burden subscales of self-esteem and effect on finances were significant predictors in the model. These findings have implications for development of family-centered interventions to enhance the QOL of informal caregivers of Veterans with TBI.

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Section: Discussionmentioning

confidence: 99%

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

et al. 2016

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“…Published literature gives considerable focus on anxiety, coping, burden, depression, health, and resilience in relation to care giving(7, 8, 14, 15), but, with exception (22), offers little attention on positive aspects such as bonding, redeeming family kinship, and mutual learning between caregivers and care-receivers. Arango-Lasprilla et al (23) have shown that in Guadalajara, Mexico (developing country) TBI caregivers suffered lower health-related quality of life (HRQoL) across many domains, including mental and general health. More research is necessary to elucidate which factors are critical in determining the HRQoL.…”

Section: Resultsmentioning

confidence: 99%

“…There are a few ad hoc one-off qualitative studies and reviews e.g. those which described anxiety, needs and well-being of TBI caregivers and care-receivers (9, 12, 23). However, there are no published papers relating simultaneously to the trauma of both the caregivers and the TBI survivors; their interactive-integrative constructs and domains involved, interrelationship and dynamics, and functionalities of the processes of care giving and rehabilitation, and the humane qualitative aspects of the care giving-rehabilitating journey of the survivor and his/her caregivers.…”

Section: Resultsmentioning

confidence: 99%

Mental Trauma Experienced by Caregivers of patients with Diffuse Axonal Injury or Severe Traumatic Brain Injury

et al. 2013

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ContextAs with care giving and rehabilitation in chronic illnesses, the concern with traumatic brain injury (TBI), particularly with diffuse axonal injury (DAI), is that the caregivers are so overwhelmingly involved in caring and rehabilitation of the victim that in the process they become traumatized themselves. This review intends to shed light on the hidden and silent trauma sustained by the caregivers of severe brain injury survivors. Motor vehicle accident (MVA) is the highest contributor of TBI or DAI. The essence of trauma is the infliction of pain and suffering and having to bear the pain (i.e. by the TBI survivor) and the burden of having to take care and manage and rehabilitate the TBI survivor (i.e. by the TBI caregiver). Moreover many caregivers are not trained for their care giving task, thus compounding the stress of care giving and rehabilitating patients. Most research on TBI including DAI, focus on the survivors and not on the caregivers. TBI injury and its effects and impacts remain the core question of most studies, which are largely based on the quantitative approach.Evidence AcquisitionQualitative research can better assess human sufferings such as in the case of DAI trauma. While quantitative research can measure many psychometric parameters to assess some aspects of trauma conditions, qualitative research is able to fully reveal the meaning, ramification and experience of TBI trauma. Both care giving and rehabilitation are overwhelmingly demanding; hence , they may complicate the caregivers’ stress. However, some positive outcomes also exist.ResultsCaregivers involved in caring and rehabilitation of TBI victims may become mentally traumatized. Posttraumatic recovery of the TBI survivor can enhance the entire family’s closeness and bonding as well as improve the mental status of the caregiver.ConclusionsA long-term longitudinal study encompassing integrated research is needed to fully understand the traumatic experiences of caregivers. Unless research on TBI or DAI trauma is given its proper attention, the burden of trauma and injury on societies will continue to exacerbate globally.

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“…How caregivers cope can adversely affect the status of their health (1,11,14,18).As for their health problems, emotional functioning, mental and physical health, many studies (29)(30)(31)(32) clearly note correlations with the recovery outcomes of survivors with TBI in the rehabilitation phase. However, the caregivers in this study reported more problems with physical health than emotional functioning and mental health.…”

Section: Discussionmentioning

confidence: 99%

Coping and Health Problems of Caregivers of Survivors with Traumatic Brain Injury

Chayaput¹,

Utriyaprasit²,

Bootcheewan³

et al. 2014

Aquichan

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Objetivos: Evaluar el afrontamiento y los problemas de salud de los cuidadores en el momento en que el sobreviviente fue dado de alta y un mes después de que el sobreviviente fue dado de alta y determinar las correlaciones entre los datos de carácter personal, afrontamiento y los problemas de salud de los cuidadores y la incapacidad de los sobrevivientes. Método: Ochenta y cinco díadas de supervivientes con lesiones cerebrales traumáticas y sus cuidadores fueron incluidos en la investigación. Los instrumentos utilizados para la recolección de datos fueron la versión tailandesa de la Escala de Medición del Proceso de Afrontamiento y Adaptación – Formato Corto, con 27 ítems, el Cuestionario de Problemas de Salud para los cuidadores y la Clasificación de Escala de Discapacidad para los sobrevivientes. El Modelo de Adaptación de Roy se utilizó como marco conceptual para este estudio. La correlación producto-momento de Pearson se utilizó para el análisis. Resultados: No se encontraron diferencias estadísticas entre los problemas de afrontamiento y de salud en los cuidadores. Los problemas de salud reportados más frecuentemente por los cuidadores fueron dolor de cabeza en el día de alta y ningún problema de salud después de un mes de participación en el cuidado del sobreviviente. El nivel de la discapacidad de los sobrevivientes y el estado civil de los cuidadores se correlacionaron negativamente con el afrontamiento (r = - 0,245 , p = 0,024 , r = - 0,220 , p = 0,043 , respectivamente). Conclusiones: Los resultados demuestran que los cuidadores permanecieron capaces de manejar las dificultades que implica el cuidado de los sobrevivientes en casa con menos problemas de salud. Los cuidadores casados eran propensos a manejar esta carga mejor que otros cuidadores.

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Health-related quality of life in caregivers of individuals with traumatic brain injury from Guadalajara, Mexico

Cited by 44 publications

References 16 publications

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

Perceived health, caregiver burden, and quality of life in women partners providing care to Veterans with traumatic brain injury

Mental Trauma Experienced by Caregivers of patients with Diffuse Axonal Injury or Severe Traumatic Brain Injury

Coping and Health Problems of Caregivers of Survivors with Traumatic Brain Injury

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