Health-related Quality of Life in Patients with Inflammatory Bowel Disease Measured with the Short Form-36: Psychometric Assessments and a Comparison with General Population Norms

Bernklev, Tomm; Jahnsen, Jørgen; Lygren, Idar; Henriksen, Magne; Vatn, Morten H.; Moum, Bjørn

doi:10.1097/01.mib.0000179467.01748.99

Cited by 208 publications

(159 citation statements)

References 43 publications

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“…Bernklev et al 116 also report SF-36 scores among IBS patients and compares these with French population norms, finding IBS to significantly adversely affect scores, but no overall QoL values are reported.…”

Section: Quality Of Lifementioning

confidence: 99%

Faecal calprotectin testing for differentiating amongst inflammatory and non-inflammatory bowel diseases: systematic review and economic evaluation

Waugh

Cummins²,

Royle³

et al. 2013

Health Technology Assessment

236

201

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Section: Quality Of Lifementioning

confidence: 99%

Faecal calprotectin testing for differentiating amongst inflammatory and non-inflammatory bowel diseases: systematic review and economic evaluation

Waugh

Cummins²,

Royle³

et al. 2013

Health Technology Assessment

236

201

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“…However, disease activity was not accounted for, and a comparative sample without IBD was not available. Two other studies drawing from community samples, one using a population-based cohort and one using volunteers from a self-help IBD organization, reported clinically significant reductions in quality of life across several domains relative to normative values in the general population 23,24 . None of these studies had a community comparison group without IBD to control for differences that might be attributable to life stage or other factors unrelated to IBD.…”

Section: Introductionmentioning

confidence: 99%

“…Research involving community-based IBD samples has produced mixed conclusions regarding the negative impact of the disease on psychological functioning [22][23][24] . A study that used health records to identify 400 cases, concluded that those with IBD had only minor impairment overall in quality of life domains including general physical symptoms, social functioning, and emotional wellbeing 22 .…”

Section: Introductionmentioning

confidence: 99%

Stress Coping, Distress, and Health Perceptions in Inflammatory Bowel Disease and Community Controls

Graff

Walker

Clara

et al. 2009

American Journal of Gastroenterology

108

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Psychological health and IBD 2Background: This study compares a community IBD sample with a matched non-IBD community sample on psychological functioning and health perceptions. Methods:Participants in the population-based Manitoba IBD Cohort Study (n=388) were directly compared with sex, age, and region-matched controls from a national random-sample health survey on aspects of psychological health, coping, and perceived general health. Results:The IBD sample overall had lower psychological wellbeing and mastery, and higher distress than the non-IBD controls (p < 0.02). Those with IBD used avoidant coping significantly more often, and active coping modestly more often than the non-IBD sample; both had similar levels of 'self-soothing' behaviors. Crohn's disease and ulcerative colitis participants had similarly poor levels of functioning along these dimensions compared to the non-IBD sample, as did those with active disease (p < 0.01). However, those with inactive disease were similar to the non-IBD sample, and had modestly higher mastery levels. While nearly half of the non-IBD group reported chronic health conditions, those with IBD were threefold more likely to report poorer health (OR 3.07, 95% CI 2.10-4.47). Psychological factors explained a greater amount of variance in perceived health for the IBD than the non-IBD sample. Conclusions:Those with IBD have significantly poorer psychological health than those without IBD and view their general health status more negatively, although adaptive stress coping strategies were similar. However, when disease is quiescent there is little detriment to functioning. Active disease should be a flag to consider psychological needs in the care of the IBD patient.Psychological health and IBD 3

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“…7 Disease-specific QOL was assessed with the Inflammatory Bowel Disease Questionnaire (IBDQ). 5,8 evaluation structure…”

Section: Patient Selection and Characteristicsmentioning

confidence: 99%

“…Many patients experience long remissions. The functional, psychological, and social impact of UC on the life of patients influences disease course 3 and induces an impaired quality of life (QOL) 4,5 as well as psychological distress. 6 The one Internet-based disease management intervention on IBD that we know of was carried out by Cross and Finkelstein and aimed at enhancing therapy adherence by asking patients to report weekly on disease-related issues to the physician using a simplified laptop that was installed at their house.…”

Section: Introductionmentioning

confidence: 99%

Prototype evaluation of a self-management Internet diary for patients with ulcerative colitis

Snoei

Bodegraven²,

Oldenburg³

et al. 2009

PPA

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Objective: To evaluate content, navigation, usability, and impact measurability of a prototype Internet-based self-management intervention for patients with ulcerative colitis. Material and methods: Analysis of 52 Internet diaries that were used in a six-month test trial. Analysis was done using an evaluation framework for eHealth applications that incorporates goals from theory and empirical studies on living with chronic illness, the software design industry, and health services research. Results: Content of the diary covered the intended functions of the Internet-based self-management intervention. The evaluation led to several refinement suggestions concerning navigation, usability, and impact measurability of the Internet diary. Conclusion: Psychosocial, medical, and scientific content as well as interface and design are equally important in the development of effective eHealth interventions.

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Health-related Quality of Life in Patients with Inflammatory Bowel Disease Measured with the Short Form-36: Psychometric Assessments and a Comparison with General Population Norms

Abstract: We have shown that HRQOL in a Norwegian population-based cohort of patients with IBD, measured with the SF-36, is lower than that of a Norwegian reference population. In general, the SF-36 was found to have satisfactory psychometric properties in this IBD population.

Cited by 208 publications

References 43 publications

Faecal calprotectin testing for differentiating amongst inflammatory and non-inflammatory bowel diseases: systematic review and economic evaluation

Faecal calprotectin testing for differentiating amongst inflammatory and non-inflammatory bowel diseases: systematic review and economic evaluation

Stress Coping, Distress, and Health Perceptions in Inflammatory Bowel Disease and Community Controls

Prototype evaluation of a self-management Internet diary for patients with ulcerative colitis

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