Health-related quality of life in adolescents with congenital heart disease

Abstract

Type of congenital heart disease and initial diagnosis did not seem to affect the perception of health-related quality of life, corroborating findings of several studies. Surgical interventions and the use of medication can improve previous clinical status, and therefore it seems to be beneficial in terms of Psychological Well-Being. The presence of clinical symptoms was the variable that caused the largest impact on the perception of health-related quality of life, possibly because of the impairment they bring to the daily lives of these patients.

Functional limitations and educational needs among children and adolescents with heart disease

“…Similarly, our results also showed that disparities in being able to do things other children do may increase with age. As children with CHD age, cognitive deficits and functional limitations may become more apparent and lead to lower physical and psychosocial quality of life . However, interventions shown effective among other CSHCN, such as structured computerized training programs, mindfulness training, occupational therapy, aerobic exercise, and special education services may prevent or mitigate functional limitations in children with heart disease and improve educational and social outcomes.…”

Determinants of quality of life in children and adolescents with CHD: a systematic review

“…1 In the literature, there are an increasing number of studies elaborating even further the notions of mortality and morbidity by considering real-time data for reported long-term physical functioning, quality of life, health perceptions, and psycho-social well-being. [2][3][4][5][6][7][8] In addition, there is evidence that the presence of CHD can have a direct impact on the child's physical, motor, cognitive, and neurological development; 1 however, the conflicting results from current research, concerning quality-of-life issues in children with CHD, reveal a lack of methodological and conceptual rigour. 1 Nevertheless, despite any limitations, a number of studies try to identify determinants of quality of life in this heterogeneous group of patients with cardiac malformations including acyanotic, cyanotic, and obstructive heart defects.…”

“…[2][3][4][5][6][7][8] In addition, there is evidence that the presence of CHD can have a direct impact on the child's physical, motor, cognitive, and neurological development; 1 however, the conflicting results from current research, concerning quality-of-life issues in children with CHD, reveal a lack of methodological and conceptual rigour. 1 Nevertheless, despite any limitations, a number of studies try to identify determinants of quality of life in this heterogeneous group of patients with cardiac malformations including acyanotic, cyanotic, and obstructive heart defects. [9][10] Congenital heart defect refers to a wide spectrum of simple, moderate, and complex lesions, caused by abnormal heart development during endometrial life.…”

Quality of life of Malaysian children with CHD

“…Although the presence of cyanotic heart disease was associated with poorer psychosocial health in this study, data from other studies are conflicting. 21,28 These mixed findings may be due to the lack of uniformity in reporting severity of disease and the heterogeneous complexity of surgery. Unlike others, we did not find an association with socio-economic status 3,17,2,24 or need for medications.…”