Health-Related Quality of Life in Pediatric Minor Injury

Stevens, Martha W.; Hainsworth, Keri R.; Weisman, Steven J.; Layde, Peter M.

doi:10.1001/archpediatrics.2011.694

Cited by 19 publications

(12 citation statements)

References 55 publications

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“…The instrument has been identified as a suitable measure for outcome assessment of children after trauma [ 18 , 29 ], however psychometric evaluation and confirmation of utility within a pediatric injury population remains limited [ 18 ]. To our knowledge, only one other study exists that examines the validity of the PedsQL™ for assessing outcomes in pediatric injury patients [ 30 ]. Our findings are consistent with this previous research, which showed the PedsQL™ to be a suitable instrument for use among injured children.…”

Section: Discussionmentioning

confidence: 99%

“…Our findings are consistent with this previous research, which showed the PedsQL™ to be a suitable instrument for use among injured children. In 2012, Stevens et al recruited in an emergency department setting and collected PedsQL™ data two weeks post injury [ 30 ]. Our study builds on these authors’ finding as it includes children recruited in both the emergency department as well as hospital in-patient units and collects PedsQL™ data one month post injury.…”

Section: Discussionmentioning

confidence: 99%

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Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population

Kruse

Schneeberg

Brussoni

2014

Health Qual Life Outcomes

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BackgroundThe purpose of this study was to determine the construct validity of the PedsQL™ health related quality of life (HRQoL) instrument for use among injured children and to examine the impact of using different modes of administration, including paper and pencil, online and telephone.MethodsTwo hundred thirty-three participants (aged 0 – 16) were recruited from hospital wards and the emergency department of a pediatric hospital in a large urban center in British Columbia, Canada. Data used to evaluate the construct validity of the PedsQL™ were collected from participants at the time of seeking injury treatment (baseline) to capture a retrospective measure of pre injury health, and one month post injury. Data used to compare different modes of administration (n = 44) were collected at baseline. To assess construct validity repeated measures analysis of variance (rANOVA) was used to determine whether the PedsQL™ tool was able to discriminate between patients pre and post injury while investigating possible interaction by category of length of stay in hospital. The impact of different modalities of administering the PedsQL™ on item responses was investigated using Bland-Altman plots.ResultsrANOVA showed significant differences in PedsQL™ total score between baseline and one month post injury (p < .001), and differences in mean total score at one month post injury by category of injury severity (p < .001). There was also significant interaction by category of injury severity for the change in PedsQL™ total score from baseline to one month (p < .001). Pearson’s correlations were highly significant across three modalities of survey administration: paper and pencil, computer and telephone administration (range: .92 to .97, p < .001). Bland-Altman plots showed strong consistency.ConclusionThe PedsQL™ instrument is able to discriminate between pre and post injury HRQoL, as well as HRQoL post injury for injuries of varying severity. These findings are an indication that this instrument has good construct validity for the purpose of evaluating HRQoL of injured children. Data collected via paper-pencil, online and telephone administration were highly consistent. This is important as depending on the setting, clinical or research, different modalities of completing this instrument may be more appropriate.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population

Kruse

Schneeberg

Brussoni

2014

Health Qual Life Outcomes

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“…In some non-elective clinical settings including oncology [9] and paediatrics [10], methods for measurement of PROs have been established, but little is currently known about the feasibility of PRO data collection in emergency general surgery and optimal methods for achieving this. The aim of this study, therefore, was to examine methods for PRO data collection within a non-trauma emergency surgery setting.…”

Section: Introductionmentioning

confidence: 99%

Investigating the collection and assessment of patient-reported outcome data amongst unplanned surgical hospital admissions: a feasibility study

Mason

Blencowe

McNair

et al. 2015

Pilot Feasibility Stud

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BackgroundRandomised controlled trials (RCTs) in surgery can be challenging to conduct, and trials in the emergency surgical setting when patients have unplanned hospital admissions are particularly difficult. One area of challenge is capturing baseline patient-reported outcome (PRO) data. This study examined the feasibility and optimal methods for the collection of baseline and follow-up PRO data in the setting of unplanned surgical hospital admissions.MethodsClinically stable adult patients with unplanned admissions through the day and night under the care of general surgeons at two acute NHS trusts were approached during working week days and asked to complete validated PRO measures (European Quality of Life-5 Dimension, Short Form-12, and Gastrointestinal Quality of Life Index) on admission and 6 weeks following discharge. Feasibility of PRO data collection was determined by the proportions of admitted patients eligible and recruited and by questionnaire-response rates at baseline and follow up. Reasons for non-recruitment and non-completion of questionnaires were sought and recorded.ResultsThere were 276 admissions, of whom 235 (85.1 %) were eligible. Reasons for ineligibility were the following: age under 18 years old (n = 5, 1.8 %), non-surgical presenting complaint (n = 6, 2.2 %) and clinical instability (n = 30, 10.9 %). One hundred and sixty-six patients (70.6 %) were recruited (98 female, 59.0 %); median age 53, range 19–100). Common reasons for non-recruitment included patients being discharged home before approached by researchers (n = 29, 12.3 %) or declining participation because they felt unwell (n = 15, 6.4 %). The most common reason for admission to the hospital was abdominal pain (n = 120, 72.3 % recruited patients), of whom 50 (30.1 %) required operative intervention. Baseline PRO data was obtained from 153 patients (93.3 %), and 74 (48.4 %) returned follow-up questionnaires.ConclusionsCollection of baseline PRO data amongst unplanned admissions in general surgery is feasible. Methods for optimising retention and follow up are needed.

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“…Clinical markers, rates of recidivism and mortality are inadequate to properly assess the burden of injury and effectiveness of treatment. [ 61 ] HRQOL has been proposed as a complementary outcome measure. As a patient (or proxy) reported outcome, HRQOL reflects the patient's measure of physical, mental and social well-being.…”

Section: Quality Indicators By Phase Of Carementioning

confidence: 99%

Quality care in pediatric trauma

Simpson

Rivara

Pham

2012

Int J Crit Illn Inj Sci

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Infrastructure, processes of care and outcome measurements are the cornerstone of quality care for pediatric trauma. This review aims to evaluate current evidence on system organization and concentration of pediatric expertise in the delivery of pediatric trauma care. It discusses key quality indicators for all phases of care, from pre-hospital to post-discharge recovery. In particular, it highlights the importance of measuring quality of life and psychosocial recovery for the injured child.

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Health-Related Quality of Life in Pediatric Minor Injury

Abstract: To evaluate the feasibility, reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL) in the first 2 weeks after pediatric emergency department care of minor injury.

Cited by 19 publications

References 55 publications

Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population

Construct validity and impact of mode of administration of the PedsQL™ among a pediatric injury population

Investigating the collection and assessment of patient-reported outcome data amongst unplanned surgical hospital admissions: a feasibility study

Quality care in pediatric trauma

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