Health-related quality of life in inflammatory bowel disease: Psychosocial, clinical, socioeconomic, and demographic predictors

Moradkhani, Anilga; Beckman, Linda J.; Tabibian, James H.

doi:10.1016/j.crohns.2012.07.012

Cited by 129 publications

(107 citation statements)

References 39 publications

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“…In this study, the average values obtained in four domains and overall score are above the expected mean values, and comparing with previous studies (29) , the overall score of IBDQ-32 of this sample was higher. Our positive HRQOL scores may be explained because patients with a hospitalization or a surgery in the past 3 months and patients seen in an urgent context were excluded from this study, since it is known that adverse events, like hospitalizations or surgeries, have a negative impact on patient's quality of life (5) .…”

Section: Discussionsupporting

confidence: 55%

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QUALITY OF LIFE IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE: importance of clinical, demographic and psychosocial factors

Magalhães¹,

Castro²,

Carvalho³

et al. 2014

Arq. Gastroenterol.

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-Context -Inflammatory bowel disease causes physical and psychosocial consequences that can affect the health related quality of life. Objectives -To analyze the relationship between clinical and sociodemographic factors and quality of life in inflammatory bowel disease patients. Methods -Ninety two patients with Crohn's disease and 58 with ulcerative colitis, filled in the inflammatory bowel disease questionnaire (IBDQ-32) and a questionnaire to collect sociodemographic and clinical data. The association between categorical variables and IBDQ-32 scores was determined using Student t test. Factors statistically significant in the univariate analysis were included in a multivariate regression model. Results -IBDQ-32 scores were significantly lower in female patients (P<0.001), patients with an individual perception of a lower co-workers support (P<0.001) and career fulfillment (P<0.001), patients requiring psychological support (P = 0.010) and pharmacological treatment for anxiety or depression (P = 0.002). A multivariate regression analysis identified as predictors of impaired HRQOL the female gender (P<0.001) and the perception of a lower co-workers support (P = 0.025) and career fulfillment (P = 0.001). Conclusion -The decrease in HRQQL was significantly related with female gender and personal perception of disease impact in success and social relations. These factors deserve a special attention, so timely measures can be implemented to improve the quality of life of patients. HEADINGS -Inflammatory bowel diseases. Crohn disease. Ulcerative colitis. Quality of life. Questionnaires.

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Section: Discussionsupporting

confidence: 55%

“…The effect of gender on HRQOL has previously been investigated in IBD, and female gender was found to be significantly associated with a lower HRQOL (3,5,10,29) . Usually, and independently of the reported chronic disease, women´s self-rated quality of life is poorer than that of men (15,34,43,49) .…”

Section: Discussionmentioning

confidence: 99%

QUALITY OF LIFE IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE: importance of clinical, demographic and psychosocial factors

Magalhães¹,

Castro²,

Carvalho³

et al. 2014

Arq. Gastroenterol.

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“…Esos datos, en especial el sexo, es evidente en la mayoría de los estudios internacionales y brasileños (8)(9)(10)(11)(12) . Mientras tanto, autores afirman que esa no sea característica general, pudiendo sufrir variaciones geográficas de localidades de la investigación, así como diferencias de hábitos culturales relacionados al género y los diferentes factores de riesgos que están inherentes (13) .…”

Section: Discussionunclassified

Qualidade de vida de pacientes com doença de Crohn

Lopes

Moura²,

Machado

et al. 2017

eglobal

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Objetivo: Evaluar la calidad de vida de los pacientes con enfermedad de Crohn tratados en la clínica de un Hospital Universitario. <br />Método: Estudio transversal, descriptivo, exploratorio en el Hospital Universitario del Piauí- Brasil, de julio a diciembre de 2015, y con una muestra de 52 pacientes con enfermedad de Crohn. Se aplicó un formulario sociodemográfico y clínico, y el instrumento "Inflammatory Bowel Disease Questionnaire” para evaluar la calidad de vida. <br />Resultados: La mayoría eran mujeres, adultos, auto-declarados morenos, casados, con un ingreso familiar de dos salarios mínimos (392 euros), escuela secundaria completa y no bebían alcohol ni fumaban. Con más de cinco años de tiempo de diagnóstico y están parcialmente en remisión de la enfermedad. No mostraron frecuentemente pérdida de peso, diarrea y dolor abdominal en los últimos tres meses. Los pacientes fueron hospitalizados debido a la enfermedad de Crohn, una cuarta parte de ellos fueron sometidos a resección quirúrgica del intestino y como complicaciones las fístulas estaban más presentes. Como tratamiento medicamentoso utilizan asociación de inmunomoduladores y azatioprina. La mayoría hacía pruebas de laboratorio como control, seguido por colonoscopia y nunca ha abandonado el tratamiento. Presentaron calidad de vida regular y tuvieron respuesta "nunca" como la más puntuada en el instrumento. En los dominios síntomas sistémicos, aspectos sociales y emocionales la calidad de vida ha sido regular y en los síntomas intestinales fue satisfactoria con un promedio de 56,15 puntos.<br />Conclusión: Los pacientes con enfermedad de Crohn presentaron una calidad de vida regular.

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“…Verifica-se igualmente na DII que níveis elevados de stress percebido afetam de modo negativo a QV (Moradkhani et al, 2013;Iglesias-Rey et al, 2014).…”

Section: Perceção Do Stressunclassified

Influência da Personalidade Tipo D na Qualidade de Vida da Doença Inflamatória Intestinal

Amorim¹,

Guerra²

2018

REV IBEROAM DIAGN EV

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ResumoRealizaram-se dois estudos com uma amostra de 208 participantes, pertencentes a uma Associação, com Doença Inflamatória Intestinal: 61% com Doença de Crohn e 39% com Colite Ulcerosa, maioritariamente mulheres (63,9%) e com média de idade 36,7 anos. Avaliaram-se as variáveis independentes em estudo: ansiedade, depressão, stress percebido, alexitimia e personalidade tipo D. A escala de personalidade não estava adaptada para português; no estudo 1, procedeu-se à replicação das análises psicométricas do estudo original. No estudo 2 determinou-se a predição das duas componentes da variável dependente "qualidade de vida". Através de regressões múltiplas hierárquicas, os resultados indicaram que, controlando a alexitimia, depressão e ansiedade são as variáveis com maior contribuição na predição da componente física. Na componente mental, controlando alexitimia e personalidade tipo D, observou-se que a depressão, ansiedade, perceção de stress e idade são preditores significativos. A personalidade tipo D tem maior prevalência nesta patologia do que em populações saudáveis. Palavras-chave: doença inflamatória intestinal, qualidade de vida, personalidade tipo D, alexitimia AbstractTwo studies were performed with a sample of 208 participants, belonging to an Association, with Inflammatory Bowel Disease: 61% with Crohn's Disease and 39% Ulcerative Colitis, mostly women (63,9%) and with 36,7 age mean. The independent variables in studies were evaluated: anxiety, depression, perceived stress, alexithymia and type D personality. The personality scale was not adapted to Portuguese; in study 1, psychometric analyses were performed according to the original study. In study 2 the prediction of the two components of the dependent variable "quality of life" was performed. Through multiple hierarchical regressions, the results have shown that, controlling alexithymia, depression and anxiety are the variables with the highest contribution in predicting the physical component. In the mental component, controlling alexithymia and type D personality, it's observed that depression, anxiety, perceived stress and age are significant predictors. Type D personality has a higher prevalence in this pathology than in healthy populations.Keywords: inflammatory bowel disease, quality of life, type D personality, alexithymia Agradecimento: Este trabalho foi financiado por Fundos Nacionais através da FCT -Fundação para a Ciência e a Tecnologia no âmbito do projecto PEst-OE/PSI/UI0050/2014. Agradecemos ainda a colaboração da Associação Portuguesa de Doentes com Doença Inflamatória Intestinal e em especial ao Dr. Jorge Ascenção e Dra. Vera Coelho.

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Health-related quality of life in inflammatory bowel disease: Psychosocial, clinical, socioeconomic, and demographic predictors

Abstract: Individuals with IBD who report higher perceived stress, lower perceived social support, greater number of relapses, or are female may be at increased risk for decreased HRQOL. Prospective studies should investigate how interventions addressing these factors may lead to improved HRQOL.

Cited by 129 publications

References 39 publications

QUALITY OF LIFE IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE: importance of clinical, demographic and psychosocial factors

QUALITY OF LIFE IN PATIENTS WITH INFLAMMATORY BOWEL DISEASE: importance of clinical, demographic and psychosocial factors

Qualidade de vida de pacientes com doença de Crohn

Influência da Personalidade Tipo D na Qualidade de Vida da Doença Inflamatória Intestinal

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