Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature

Norrby, Ulla; Nordholm, Lena A.; Andersson‐Gäre, Boel; Fasth, Anders

doi:10.1080/08035250500437499

Cited by 37 publications

(22 citation statements)

References 15 publications

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“…While parents of short children commonly report problems of cognitive development, personality, self-esteem or social relations, their children do so only sporadically. Although some studies assessed behavior and adaptation by both self- and proxy report [26, 38], the correlation between child- and parent-rated HrQoL has yet to be systematically examined.…”

Section: Discussionmentioning

confidence: 99%

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Health-Related Quality of Life of Children and Adolescents with Growth Hormone Deficiency or Idiopathic Short Stature – Part 2: Available Results and Future Directions

et al. 2009

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Research on the health-related quality of life (HrQoL) impact of short stature and its treatment in children and adolescents has developed recently. Based on a PubMed literature search, studies addressing this issue were identified and considerable methodological problems mainly related to the HrQoL instruments used and conflicting results are discussed in this mini review. Additionally, this mini review identifies a need for further research and indicates potential directions.

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Section: Discussionmentioning

confidence: 99%

“…Another study of patients with SS reported higher HrQoL in physical function, bodily pain and general health perceptions compared to groups with chronic illness. Ratings on the dimensions of self-esteem and behavior did not differ from patients with asthma or diabetes [26]. …”

Section: Hrqol Research In Children and Adolescents With Iss And Ghd mentioning

confidence: 99%

Health-Related Quality of Life of Children and Adolescents with Growth Hormone Deficiency or Idiopathic Short Stature – Part 2: Available Results and Future Directions

et al. 2009

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“…Some studies suggest that JIA does not negatively affect HRQOL or psychosocial functioning (6 -9), whereas other studies report that children with JIA have a lower HRQOL compared to healthy children (10 -16) and compared to children with other chronic health conditions (17,18). Although a large number of studies have assessed HRQOL in children with JIA, only a few studies focused on predictors of HRQOL in children with JIA.…”

Section: Introductionmentioning

confidence: 99%

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Haverman¹,

Grootenhuis²,

M³

et al. 2012

Arthritis Care & Research

115

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Objective. Children with juvenile idiopathic arthritis (JIA) experience functional impairment due to joint manifestations of the disease. The aim of our present study was to assess health-related quality of life (HRQOL) and its predictors in a group of children and adolescents with JIA. Methods. The study sample includes all JIA patients (ages 6 -18 years) who consulted a pediatric rheumatologist in Amsterdam, The Netherlands, between February 2009 and March 2010. HRQOL was measured using the Paediatric Quality of Life Inventory 4.0 (ages 6 -18 years). Functional ability was measured using the Childhood Health Assessment Questionnaire, and medical and sociodemographic parameters were assessed. The study sample was compared to a Dutch youth norm population including children with other chronic health conditions. The proportion of children with JIA with an impaired HRQOL (<1 SD) was evaluated and multivariate regression analyses were performed to predict HRQOL outcome. Results. Of the eligible patients, 64.1% (n ‫؍‬ 152) participated. Both children (ages 6 -12 years) and adolescents (ages 13-18 years) with JIA reported a significantly lower HRQOL in almost all domains compared to either healthy controls or children with other chronic health conditions. Approximately half of the children with JIA showed an impaired HRQOL. The main predictors of HRQOL were functional ability, pain, subjective burden of medication use, and school absence. Conclusion. The HRQOL is severely affected in children and adolescents with JIA. These findings underline the necessity to systematically monitor HRQOL in daily clinical practice.

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“…We identified nine papers that looked at QoL in other growth-related conditions treated with growth hormone. [36][37][38][39][40][41][42][43][44] Again these presented a variety of results, but only limited evidence that there is a strong link between QoL and final height gain. Several of the studies called for further research into the links between QoL and short stature and the tool with which this is evaluated.…”

Section: Resultsmentioning

confidence: 99%

Growth monitoring for short stature: update of a systematic review and economic model

Craig

Fayter²,

Stirk³

et al. 2011

Health Technol Assess

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Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature

Abstract: The Swedish version of the CHQ is a reliable and valid instrument. Furthermore, it is recommended to ask children themselves about their health-related quality of life.

Cited by 37 publications

References 15 publications

Health-Related Quality of Life of Children and Adolescents with Growth Hormone Deficiency or Idiopathic Short Stature – Part 2: Available Results and Future Directions

Health-Related Quality of Life of Children and Adolescents with Growth Hormone Deficiency or Idiopathic Short Stature – Part 2: Available Results and Future Directions

Predictors of health‐related quality of life in children and adolescents with juvenile idiopathic arthritis: Results from a web‐based survey

Growth monitoring for short stature: update of a systematic review and economic model

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