Health-Related Quality of Life Instruments for Children With Cochlear Implants: Development of Child and Parent-Proxy Measures

Hoffman, Michael F.; Quittner, Alexandra L.

doi:10.1097/aud.0000000000000631

Cited by 30 publications

(38 citation statements)

References 47 publications

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“…Severe-to-profound hearing loss, even in the era of cochlear implantation, leads to a cascading set of challenges for young children, including problems with visual attention and development 5of behavioral control. These issues likely affect children’s daily functioning at home and at school, and their overall health-related quality of life (Hoffman, Cejas, & Quittner, 2016). Currently, cochlear implant teams do not focus on these other dimensions of development and thus, may not be positioned to address them.…”

Section: Discussionmentioning

confidence: 99%

Comparisons of visual attention in school-age children with cochlear implants versus hearing peers and normative data

Hoffman

Tiddens²,

Quittner

2018

Hearing Research

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Children with CIs continue to display deficits in visual attention when compared to their hearing peers. Despite improvements in oral language, these problems have critical implications for academic performance and social competence. Currently, cochlear implant teams do not focus on these other dimensions of development and thus, may not be positioned to address them. Assessment of attention and behavior should be incorporated into routine, annual visits soon after implant surgery, and remediation of these deficits should be included in early intervention programs.

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Section: Discussionmentioning

confidence: 99%

Comparisons of visual attention in school-age children with cochlear implants versus hearing peers and normative data

Hoffman

Tiddens²,

Quittner

2018

Hearing Research

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“…Eleven met 15 or more of the 32 checklist criteria, including greater coverage of information on sampling, data collection and analysis than other papers. Four studies (three of these being those identified as meeting a high number of criteria on the COREQ) reported following FDA guidelines for measure development [19,21,46,52] and a further study (also highly detailed) mentioned following the COREQ guidelines for reporting [20]. Twenty of the 37 papers stated that they had ethical approval for the qualitative study, with twelve mentioning gaining informed consent (or assent) from research participants.…”

Section: Strengths In Reportingmentioning

confidence: 99%

A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People

Husbands

Mitchell

Coast

2020

Patient

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Background Qualitative research is recommended in concept elicitation for patient-reported outcome measures to ensure item content validity, and those developing measures are encouraged to report qualitative methods in detail. However, in measure development for children and young people, direct research can be challenging due to problems with engagement and communication. Objectives The aim of this systematic review was to (i) explore the qualitative and adapted data collection techniques that research teams have used with children and young people to generate items in existing measures and (ii) assess the quality of qualitative reporting. Methods Three electronic databases were searched with forward citation and reference list searching of key papers. Papers included in the review were empirical studies documenting qualitative concept elicitation with children and young people. Data on qualitative methods were extracted, and all studies were checked against a qualitative reporting checklist. Results A total of 37 studies were included. The quality of reporting of qualitative approaches for item generation was low, with information missing on sampling, data analysis and the research team, all of which are key to facilitating judgements around measure content validity. Few papers reported adapting methods to be more suitable for children and young people, potentially missing opportunities to more meaningfully engage children in concept elicitation work. Conclusions Research teams should ensure that they are documenting detailed and transparent processes for concept elicitation. Guidelines are currently lacking in the development and reporting of item generation for children, with this being an important area for future research.

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“…Undoubtedly, the HRQoL of children aroused the interest of researchers due to its emphasis on the components of children's healthy well-being and, particularly, the influence treatment had on the quality of life (QoL) (Berger & Karabenick, 2016;Karimi & Brazier, 2016). This historical perspective helped to explain how this ambitious and research effort notion remained consistent (Hoffman, Cejas, & Quittner, 2018).…”

Section: Importance Of the Problemmentioning

confidence: 99%

Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions

Rosa¹,

Angulo²

2020

IES

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This study aimed to evaluate two objectives: first, the health-related quality of life (HRQoL) and socio-demographic characteristics of children with cochlear implants (CIs) or hearing aids (HAs) on the Kid-KINDLR_children_7-13 questionnaire, and second to analyze parental background factors and the perceptions of their children with CIs or HAs on the Kid_Kiddo-KINDLR_Parents_ 7-17 questionnaire. The data consisted of 89 children with CIs and 63 children with HAs and their 89 parents, respectively. The characteristics of children and the parental factors included demographic and audiological variables. Student’s t-test and one-way ANOVA were used to analyze the two objectives. Children with CIs exhibited a perception of better HRQoL in comparison with children with HAs. Among other differences, children with CIs or HAs and their parents were significantly distinct in the variable Setting (t = 2.921, p < 0.010). Moreover, parents of children with CIs or HAs were significantly different among them in some background factors (i.e., age, socioeconomic status, and learning). Children with CIs and their parents demonstrated a perception of better HRQoL than children with HAs and their parents. These findings added to the existing knowledge about the benefits of CIs for children with hearing loss. Parents of children with CIs noted the significance of social and emotional development as a marker of well-being in their children’s lives.

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Health-Related Quality of Life Instruments for Children With Cochlear Implants: Development of Child and Parent-Proxy Measures

Cited by 30 publications

References 47 publications

Comparisons of visual attention in school-age children with cochlear implants versus hearing peers and normative data

Comparisons of visual attention in school-age children with cochlear implants versus hearing peers and normative data

A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People

Children with Hearing Loss Health-Related Quality of Life and Parental Perceptions

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