Health‐related quality of life measured by the Short Form 36 in immune thrombocytopenic purpura: a cross‐sectional survey in China

Abstract

QoL was impaired in patients with ITP, especially in the acute patients. The platelet count and the feeling of fear about bleeding had a detrimental impact on QoL.

Patterns of Inpatient Care for Newly Diagnosed Immune Thrombocytopenia in US Children’s Hospitals

“…Although the existing PHIS data set does not include the results of laboratory or radiologic studies, the ongoing PHIS+ project will augment PHIS with laboratory and radiology results data for children seen in the ambulatory and inpatient departments of 6 participating hospitals. 12 14,15 Our mini-validation study using our institutional data suggest that oral symptoms (oral petechiae, oral purpura, gum bleeding) and epistaxis are common in patients ultimately hospitalized with ITP, but it is not known how these symptoms drive admission decision-making on a national level. At our institution during the study period, the great majority of newly diagnosed ITP patients with platelets ,20 000 seen in our ED were admitted to the hospital for intravenous therapy, regardless of symptoms.…”

Health-related quality of life in adult patients with chronic immune thrombocytopenia in Serbia

“…Highly significant negative correlations were noticed between all domains of HRQoL and HDRS and HARS scores (p50.001). The impact of CIT on HRQoL has not been investigated enough [3][4][5][6][7][8][9]. Our study is the first one testing anxiety and depression in an CIT cohort using Hamilton scales.…”

“…These signs and symptoms of the disease and treatment side effects can then affect various domains of health-related quality of life (HRQOL), including emotional and functional health, work life, social and leisure activities, as well as reproductive health. All of these can affect many areas of patient everyday life and overall wellbeing [3][4][5][6][7][8][9]. However, the majority of individuals with CIT have a good prognosis, so the most beneficial treatment should not only focus on the platelet count but also on improving their HRQoL.…”

Is traditional rural lifestyle a barrier for quality of life assessment? A case study using the Short Form 36 in a rural Chinese population

“…Consumers, including those living in rural areas, request a wider scope and improved quality of health services. There has been increasing consensus about the importance of including subjective accounts of health in monitoring medical care outcomes in China [2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17].…”

“…The majority of such instruments have originated from western countries and are more reflective of urbanized living contexts [2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17]. Despite the rapid urbanization and massive rural-to-urban migration, a large number of rural residents in China, especially the elderly and frail, are still living traditional rural lifestyles.…”