Health-related quality of life of patients after mechanical valve replacement surgery for rheumatic heart disease in a developing country

Mangnall, Linda J Thomson; Sibbritt, David; Fry, Margaret; Windus, Melanie; Gallagher, Robyn

doi:10.1136/heartasia-2014-010562

Cited by 11 publications

(17 citation statements)

References 24 publications

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“…In our study, all patients perceived that their HRQoL was impaired pre-operatively with a mean (±SD) score of 3.47 ± 0.59 on a global scale, and 3.49 ± 0.59, 3.43 ± 0.64, 3.44 ± 0.69 in the emotional, physical and social domains respectively. Our findings are similar to that reported in a study done by Mangnall et al [ 10 ] which showed that preoperatively all mean HRQoL eight domains scores were much lower than the reference population with severe impairment in the general health and physical function domains. Similarly, Joshi et al [ 39 ] reported that the HRQoL was impaired in all eight domains with the lowest scores in the general health and physical function domain before surgery (15.61 ± 1.30), which improved after surgery (22.95 ± 0.45).…”

Section: Discussionsupporting

confidence: 92%

“…In sub-Saharan Africa, patients present late in hospital with advanced stage of RHD requiring interventions such as heart valve replacement (HVR) [ 7 – 9 ]. Effectiveness of surgical interventions such as HVR has been traditionally assessed based on morbidity and mortality outcomes [ 10 , 11 ]. However, the impact of these interventions on the patient’s perspective assessed by patient-reported outcome measures (PROMs) is as well an important component of effectiveness as the symptomatic and functional status improvement [ 12 , 13 ].…”

Section: Introductionmentioning

confidence: 99%

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Health related quality of life of patients following mechanical valve replacement surgery for rheumatic mitral stenosis in Tanzania

Mutagaywa

Chillo

Khamis

et al. 2023

J Cardiothorac Surg

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Background The assessment of outcomes of interventions based on the patient’s perspective using patient-reported outcome measures (PROMs) has been increasingly highlighted in clinical practice. However, health related quality of life (HRQoL), one of the common constructs measured by PROMs remain unknown among patients after heart valve replacement (HVR) in Tanzania. Objectives To assess the HRQoL amongst patients operated on for rheumatic mitral stenosis at Jakaya Kikwete Cardiac Institute (JKCI). Methods A prospective study of patients operated on due to rheumatic mitral stenosis at JKCI from January 2020 to April 2021 was undertaken. The HRQoL was assessed by using the MacNew questionnaire, addressing three domains (physical, emotional, and social function); the score ranges from 0 to 7. We categorized HRQoL as low (mean score ≤ 4.9), moderate (5–6) and high (> 6). We analysed several sociodemographic and clinical variables for HRQoL. Results Out of 54 patients, there were 34 females and 20 males. Their mean (± SD) age was 37.98 (± 12.58) years. The reliability of translated Kiswahili version of MacNew was good. The mean (± SD) global scores were 3.47 ± 0.59, 4.88 ± 0.71 and 6.14 ± 0.50 preoperatively, at 3 months and 6 months respectively (p-values < 0.001 preoperatively vs. 3 months, preoperatively vs. 6 months and at 3 months vs. 6 months). The median of individual mean difference HRQoL score pre-operatively and at 6 months was 2.67. The preoperative and 6 months mean difference HRQoL scores were higher among patients with vs. without atrial fibrillation (2.95 ± 0.59 vs. 2.45 ± 0.53, p = 0.003) and those on anticoagulants (preoperatively) vs. not on anticoagulants (3.14 ± 0.58 vs. 2.57 ± 0.57, 0.009). The mean difference HRQoL scores were similar for sociodemographic and other clinical parameters, including those with stroke vs. without stroke. Conclusion Six months after HVR the overall MacNew HRQoL scores improved markedly. This improvement in HRQoL was regardless of the presence of comorbidities (e.g. stroke and atrial fibrillation) which underscores the importance of considering valvular surgery if they fit the criteria. Clinicians and researchers in low-resource settings should collaborate to promote the utilization of PROMs in the routine care of patients.

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Section: Discussionsupporting

confidence: 92%

Section: Introductionmentioning

confidence: 99%

Health related quality of life of patients following mechanical valve replacement surgery for rheumatic mitral stenosis in Tanzania

Mutagaywa

Chillo

Khamis

et al. 2023

J Cardiothorac Surg

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“… 75 For example, Thomson Mangnall et al ’s 75 study with Indigenous Fijian participants (aged 12-55 years) substituted the example ‘Moderate activities, such as bowling, vacuuming, playing golf’ for ‘Moderate activities, such as moving a table, sweeping the floor, swimming, or gardening’. 75 Written authorisation was obtained for these changes from the SF-36v2 international licencer. However, considerable doubt still remains as to the relevancy of the concepts and dimensions in relation to Indigenous populations.…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

et al. 2023

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ObjectiveTo identify and describe (1) which health-related quality of life (HRQoL) measures have been used with Indigenous children/youth (aged 8–17 years) within the Pacific Rim; and (2) studies that refer to Indigenous health concepts in the use of child/youth HRQoL measures.DesignA scoping review.Data sourcesOvid (Medline), PubMed, Scopus, Web of Science and CINAHL were searched up until 25 June 2020.Eligibility criteriaEligible papers were identified by two independent reviewers. Eligible papers were written in English, published between January 1990 and June 2020 and included an HRQoL measure used in research with Indigenous child/youth populations (aged between 8 and 17 years) in the Pacific Rim region.Data extraction and synthesisData extracted included study characteristics (year, country, Indigenous population, Indigenous sample size, age group), HRQoL measure characteristics (generic or condition-specific measure, child or adult measure, who completed the measure(s), dimensions, items and response scale of measure) and consideration of Indigenous concepts (created for Indigenous population, modified for Indigenous population, validated for Indigenous population, reliability in Indigenous populations, Indigenous involvement, reference to Indigenous theories/models/frameworks).ResultsAfter removing duplicates, 1393 paper titles and abstracts were screened, and 543 had full-text review for eligibility. Of these, 40 full-text papers were eligible, reporting on 32 unique studies. Twenty-nine HRQoL measures were used across eight countries. Thirty-three papers did not acknowledge Indigenous concepts of health, and only two measures were specifically created for use with Indigenous populations.ConclusionsThere is a paucity of research investigating HRQoL measures used with Indigenous children/youth and a lack of involvement of Indigenous peoples in the development and use of HRQoL measures. We strongly recommend explicit consideration of Indigenous concepts when developing, validating, assessing and using HRQoL measures with Indigenous populations.

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“…Some patients report lower levels of HRQOL following medical procedures, due to postoperative pain, sleep disturbance, memory problems, and disrupted social interactions by the surgery [ 5 ]. On the other hand, among patients with advanced heart failure, surgical treatment might decrease or eliminate symptoms, and significantly improve physical functioning and decrease need for pharmacotherapy, leading to an improvement in overall wellbeing and quality of life [ 6 ].…”

Section: Introductionmentioning

confidence: 99%

Predictors of long-term HRQOL following cardiac surgery: a 5-year follow-up study

Gražulytė

Norkienė

Kazlauskas

et al. 2021

Health Qual Life Outcomes

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Background The study aimed to evaluate the long-term change of health-related quality of life (HRQOL) and to identify predictors of HRQOL 5 years after cardiac surgery. Methods Consecutive adult patients, undergoing elective cardiac surgery were enrolled in the study. HRQOL was measured using the Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36) questionnaire before and 5-years after cardiac surgery. A multivariate latent change modeling approach was used for data analysis. Results 210 participants (30.5% female) were reached at 5-year follow-up and included in final data analysis. The study revealed, after controlling for gender effects, a significant long-term positive change, in physical functioning (PF, Mslope = 19.79, p < 0.001), social functioning (SF, Mslope = 17.27, p < 0.001), vitality (VT, Mslope = 6.309, p < 0.001) and mental health (MH, Mslope = 8.40, p < .001) in the total sample. Lower education was associated with an increase in PF (Mslope = 24.09, p < 0.001) and VT (Mslope = 8.39, p < 0.001), more complicated surgery (other than the coronary artery bypass graft (CABG) predicted increase in general health (GH, Mslope = 6.76, p = 0.005). Arrhythmia was a significant predictor for lower pre- and post-operative VT and SF. Conclusions Overall HRQOL in our sample improved from baseline to five years postoperatively. Further studies including larger patient groups are needed to confirm these findings.

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Health-related quality of life of patients after mechanical valve replacement surgery for rheumatic heart disease in a developing country

Cited by 11 publications

References 24 publications

Health related quality of life of patients following mechanical valve replacement surgery for rheumatic mitral stenosis in Tanzania

Health related quality of life of patients following mechanical valve replacement surgery for rheumatic mitral stenosis in Tanzania

Health-related quality of life measures used with Indigenous children/youth in the Pacific Rim: a scoping review

Predictors of long-term HRQOL following cardiac surgery: a 5-year follow-up study

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