Health risk behaviors in adolescents and emerging adults with congenital heart disease: psychometric properties of the Health Behavior Scale-Congenital Heart Disease

Abstract

We found that the HBS-CHD is a valid and responsive questionnaire to assess health behaviors in patients with CHD.

Substance Use, Dental Hygiene, and Physical Activity in Adult Patients with Single Ventricle Physiology

“…Health behaviors were measured using two instruments: the Health Behavior Scale‐Congenital Heart Disease (HBS‐CHD) and the Godin Leisure‐Time Exercise Questionnaire (GLTEQ). The HBS‐CHD is a comprehensive tool for measuring and detecting potentially health‐compromising behaviors in patients with CHD . It comprises 25 questions of health risk behavior that are particularly relevant for afflicted patients, as they may worsen their outcomes: smoking (3 items); alcohol use (4 items); drug use (including sleeping pills) (7 items); dental hygiene (4 items); and physical activity levels (7 items) .…”

“…In the present study, we considered the use of more than 10 cigarettes per day as an arbitrary marker of heavy smokers. The final version of the HBS‐CHD is published as annex to the article that extensively describes the development and psychometric evaluation of the scale . The scale has been found to have good to excellent content validity, with an Average Scale Content Validity Index of 0.81 and a multirater Kappa coefficient of 0.78.…”

“…The construct validity was demonstrated by confirming five out of six predefined hypotheses. Furthermore, the HBS‐CHD was able to detect clinical changes in the health behavior over time, as shown by a good to excellent Guyatt's Responsiveness Index, ranging from 0.95 to 1.58 …”

Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease — International Study (APPROACH-IS): Rationale, design, and methods

“…Construct validity confirmed in cardiovascular patient populations [55] Confirmed in cardiovascular patient populations [55] Confirmed in cardiovascular patient populations [55] Scores from 1 (no problems) to 3 (extreme problems) on five dimensions; score from 0 (worst imaginable health (continued on next page) 337 Stability not yet confirmed [44] Confirmed in adolescents with congenital heart disease [44] Substance use risk score (0-100); dental hygiene risk score (0-100); physical exercise score (0-∞); total health risk score (0-100) Quality of life Patient self-report Linear Analog Scale (LAS)…”

“…This information generates four risk scores: a substance use risk score (0-100), a dental hygiene risk score (0-100), a physical exercise score (0-∞), and a total health risk score (0-100). A higher risk score represents an unhealthier behavior [44].…”