Health status and self‐management in patients with inflammatory arthritis—A five‐year follow‐up study after nurse‐led patient education

Grønning, Kjersti; Lim, Siriwan; Bratås, Ola

doi:10.1002/nop2.394

Cited by 11 publications

(8 citation statements)

References 60 publications

(92 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The participants experienced a reduction in symptoms, such as less pain, fatigue, and emotional distress, which indicates the potential of selfmanagement approaches in targeting the negative impact of chronic illnesses. This resonates with ndings from other trials that have found that self-management interventions and nurse-led patient education have led to signi cant improvements in symptoms such as fatigue, pain, sleep problems, anxiety and depression along with coping skills, self-e cacy, illness perception and QoL, with effects lasting over time (22,(42)(43)(44)(45). Regarding absenteeism, only a few were in paid work, but the attitude expressed during the interviews was that the participants prioritised work and tried to not be absent despite the challenges caused by their IA.…”

Section: Discussionsupporting

confidence: 64%

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Blum,

Esbensen,

Østergaard

et al. 2023

Preprint

View full text Add to dashboard Cite

Background Despite continuous improvements in anti-rheumatic pharmacological treatment, people with chronic inflammatory arthritis still report substantial disease impact. Based on the framework for complex interventions, we thus developed INSELMA, a novel nurse-coordinated multidisciplinary self-management intervention for patients with rheumatoid arthritis, psoriatic arthritis or axial spondyloarthritis. Based on individual biopsychosocial assessments, a rheumatology nurse facilitated goal setting and coordinated interdisciplinary support. The aim of this study was to explore the patients’ experience of participating in the six-months feasibility test of the INSELMA intervention. Methods Individual semi-structured interviews were conducted with 15 of the participants after their final follow-up. Thematic analysis was applied. Results The analysis derived four overall themes. 1) A new opportunity at the right time. The participants’ disease impacted all areas of daily life. Participation in INSELMA was experienced as an opportunity to improve symptoms and together reduce long-held challenges they had fought alone, until now. 2) The importance of person-centred goals. The participants found it meaningful to work with their individual goals, which encompassed physical, psychological, and social factors. Having time between consultations to work with goals at home was important. 3) Empathy, partnership and a little nudging from HPs are essential. The empathic nurses’ continuous support and coaching helped participants become aware of their own resources. The participants highlighted having access to support from a physiotherapist and occupational therapist with rheumatology experience as important. 4) I got more than I could have hoped for. Most of the participants experienced decreased symptom load and improvement in physical strength, mobility, sleep, and mood as well as increased energy, knowledge, and self-management ability. The participants expressed new hope for the future with an improved ability to manage their symptoms and work towards new goals. Conclusion The participants found the INSELMA intervention meaningful and feasible. They experienced decreased disease impact and increased activity levels, facilitated by empathy and self-management support from health professionals.

show abstract

Section: Discussionsupporting

confidence: 64%

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Blum,

Esbensen,

Østergaard

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“… 12 (86%) 4 Gronning et al 42 2016 Norway Qualitative study within the published randomized control trial University hospital Adult RA patients last included in the randomized control trial Nurse-led hospital-based patient education program 26 (intervention 15, control 11) PAM of intervention group 73, of control group 70 A small group of which had RA The experiences from the Patients in the nurse-led patient education program were in concordance with the pathway of self-efficacy and patient activation, which many patient education programs are based on 10 (71%) 5 Joplin et al 40 2014 Australia Cohort Mid-North Coast Arthritis Clinic (MNCAC), a community-based rheumatology practice in Coffs Harbour 18 patients with RA Joint ultrasound 60.0 (±15.5) at baseline Very small sample size, PAM was reported as a continuous variable and was not computed to levels PAM-13 scores did not change during the The study, with levels of activation at T1, T2, and T3 of 60.0 (±15.5), 55.7 (±12.0) and 57.8 (±14.8) (p = 0.21), respectively. 7 (50%) 6–8 Gronning et al 41 , 49 follow-up study after 5 years 50 2012 2013, 2019 Norway Randomized control trial University hospital 141 of which a group of patients had RA 101 follow-up 63 of which had RA Nurse-led hospital-based patient education program Reports of the first study include intervention PAM 65.7 (±13.3), control PAM 65.6 (±16.4) Not all patients had RA, the exact number of RA patients was not mentioned, PAM was reported as a continuous variable and was not computed to levels Reported results at 4 and 12 months, then 5 years follow-up. A significant improvement of PAM scores among women with intervention at 12 months, mean change 4.2 (0.0, 8.3, p = 0.048).…”

Section: Resultsmentioning

confidence: 99%

The Patient Activation Measure in Patients with Rheumatoid Arthritis: A Systematic Review and Cross-Sectional Interview-Based Survey

Juffali¹,

Almalag²,

Alswyan³

et al. 2022

PPA

View full text Add to dashboard Cite

Introduction/Objective: The patient activation measure (PAM) is considered a reliable tool for measuring patient activation. This study aimed to systematically review the scientific literature regarding the use of PAM −13 in rheumatology patients and to compare PAM scores in patients with rheumatoid arthritis (RA) following two different practices at a single institution with previously published studies. Methods: The study consisted of a systematic review of articles reporting the PAM-13 in patients with RA, followed by a crosssectional study evaluating PAM scores between standard rheumatology clinics and specialized rheumatology clinics (SRCs). The correlation between PAM levels and other variables, such as demographics, disease characteristics, and treatment, was assessed. Results: Nineteen studies, published between 2012 and 2022, met the inclusion criteria. The studies in this review had inconsistent results and quality, with patient activation in RA ranging from 29 to 76. A total of 197 patients with confirmed RA diagnoses were interviewed (response rate, 88%). Most were female (n=173, 88%) and older than 40 years (n=150, 76%). The average patient activation score was 64.9 (standard deviation, 15.7). Most participants had level 3 and 4 patient activation measures (n=71 [36%] and n=72[37%], respectively). Patients who were attending SRCs also had borderline higher PAM levels. Patients with high PAM scores tended to be older, have active disease, and were taking corticosteroids. Conclusion: Adequate activation of patients was observed from our center, which was higher than that reported in most published literature. The PAM of patients with RA was variable according to the systematic review. Longitudinal interventional studies should be considered to improve activation in patients with low scores.

show abstract

“…Recent studies have shown that patient education can contribute to changing behavior and improving compliance with the prescribed preventive and therapeutic measures [ 9 , 10 ]. These educational interventions include clinical decision support, education, patient-involvement strategies, telephone and email support follow-up [ 11 , 12 ], mobile health technology [ 13 ], and nurse-led educational intervention [ 14 ], significantly improving knowledge, drug adherence, and quality of life in patients with CVD.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of letters to patients with or without Cochrane blogshots on 10-year cardiovascular risk change among women in menopausal transition: 6-month three-arm randomized controlled trial

Petričević

Buljan

Bjelanović

et al. 2022

BMC Med

View full text Add to dashboard Cite

Background Health information and patient education on lifestyle changes may have a positive effect on the prevention of many chronic conditions, especially cardiovascular diseases (CVDs). We performed a parallel, three-arm randomized controlled trial (RCT) of 6-month educational intervention in a form of letters containing a reminder of the participant’s CVD risk with or without Cochrane blogshots to reduce CVD risk among women aged 45–65 with one or more known CVD risk factors. Methods The control group received a letter about their CVD risk at the beginning of the trial. The intervention groups received the initial letter about their CVD risk and remainder letters about their CVD risk every 2 months, with or without Cochrane blogshots: (1) effect of calcium in the prevention of high blood pressure, (2) effect of reducing saturated fat acids in eating habits, and (3) effects of green and black tea in CVD prevention. The primary outcome was CVD risk reduction calculated as the difference between the baseline and 6-month score for a 10-year risk of fatal CVD according to the ACC/AHA guidelines. Results After both interventions, CVD risk reduction was significantly higher compared to the control group (P < 0.001, Kruskal-Wallis H test). The number of participants who decreased their CV risk was 29% (20/70) in the control group, 69% (48/70) in the group receiving the reminder letters, and 70% (49/70) in the group receiving the reminder letters and blogshots. The number needed to treat to achieve risk reduction was 2.41 (95% CI = 1.77 to 3.78) for letters with a CVD risk reminder and 2.50 (1.81 to 4.03) for letters with a reminder and a blogshot. The group receiving reminder letters with Cochrane blogshots had a significant change in the category of CVD risk, mainly from high to moderate and from moderate to low CVD risk category. Conclusions A simple and inexpensive intervention method in a form of letters reminding women about their CVD risk with or without providing additional health information in the form of Cochrane blogshots about interventions for important CVD risk factors may be effective in CVD management and could be considered by primary care providers. Trial registration ClinicalTrials.gov, NCT04601558. Retrospectively registered on October 19, 2020

show abstract

Health status and self‐management in patients with inflammatory arthritis—A five‐year follow‐up study after nurse‐led patient education

Cited by 11 publications

References 60 publications

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

The Patient Activation Measure in Patients with Rheumatoid Arthritis: A Systematic Review and Cross-Sectional Interview-Based Survey

Effectiveness of letters to patients with or without Cochrane blogshots on 10-year cardiovascular risk change among women in menopausal transition: 6-month three-arm randomized controlled trial

Contact Info

Product

Resources

About