Health status development in a cohort of preterm children

Theunissen, N.C.M.; den-Ouden, A.Lya; Meulman, Jacqueline J.; Koopman, Hendrik M.; Verloove-Vanhorick, S.P.; Wit, Jan-Maarten

doi:10.1067/mpd.2000.108446

Cited by 15 publications

(7 citation statements)

References 27 publications

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“…Although in early years there is a high rate of readmission to hospital, 22 particularly among those with chronic lung disease, 23 24 health effects tend to lessen as the years go by. 25 26 We found that similar proportions of mainstream ELGA and control teenagers visited their general practitioner and were readmitted to hospital, although more of those in special schools had been admitted. On the basis of parent reports, however, teenagers born very preterm still tend to have more health problems that limit day to day activities, both at school and with friends, and that also impact on parents and the family.…”

Section: Discussionmentioning

confidence: 76%

Health and school performance of teenagers born before 29 weeks gestation

Johnson¹,

Bowler²,

Yudkin³

et al. 2003

Archives of Disease in Childhood - Fetal and Neonatal Edition

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Objective: To ascertain the health and school performance of teenagers born before 29 weeks gestation (extremely low gestational age (ELGA)) and to compare those in mainstream school with classroom controls. Methods: Three geographically defined cohorts of babies born in 1983 and 1984 were traced at the age of 15-16 years. Their health, abilities, and educational performance were ascertained using postal questionnaires to the teenagers themselves, their parents, their general practitioners, and the teachers of those in mainstream school. Identical questionnaires were sent to classroom controls. Results: Of the 218 teenagers surviving to the age of 16 years, information was obtained on 179. Of these, 29 were in special schools and 150 in mainstream school, 10 of whom had severe motor or sensory impairment. Using the Child Health Questionnaire, parents of teenagers in mainstream school reported a higher incidence of problems than controls in physical functioning (difference in mean scores 9.0 (95% confidence interval (CI) 4.9 to 13.1)) and family life (difference in mean scores for family cohesion 7.0 (95% CI 1.6 to 12.4)). In all areas of learning, teachers rated the ability of the ELGA teenagers in mainstream school lower than the control group. Parents of teenagers in special schools reported a higher rate of problems in most areas. Conclusions: One in six ELGA survivors at age 16 years have severe disabilities and are in special schools. Most ELGA survivors are in mainstream school and are coping well as they enter adult life, although some will continue to need additional health, educational, and social services.

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Section: Discussionmentioning

confidence: 76%

Health and school performance of teenagers born before 29 weeks gestation

Johnson¹,

Bowler²,

Yudkin³

et al. 2003

Archives of Disease in Childhood - Fetal and Neonatal Edition

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“…One review of young adult outcomes of preterm birth [13] identified several correlates of HRQL, including weight for gestational age [15-17]; demographic and environmental factors such as parental stress [18] and SES [4,19]; physical factors, such as level of handicap [3,4,20,21] and psychological factors such as coping strategies, self-efficacy and internalizing and externalizing behavior [22,23]. The second aim of our study was to evaluate the relative importance of such correlates of HRQL at age 19.…”

Section: Introductionmentioning

confidence: 99%

Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight

Verrips

Brouwer

Vogels

et al. 2012

Health and Quality of Life Outcomes

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BackgroundThe purpose was, first, to evaluate changes in health-related quality of life (HRQL) in a cohort of very low birth weight (VLBW; <1500 g.) or very preterm (< 32 weeks of gestation) children between ages 14 and 19, and second, to identify correlates of HRQL at age 19.MethodsHRQL was assessed using the Health Utilities Index Mark 3 (HUI3). In order to explore correlates of HRQL, we performed a hierarchical regression analysis.ResultsSurviving VLBW children (n = 959) from a 1983 Dutch nation-wide cohort were eligible; 630 participated both at age 14 and 19; 54 at age 19 only. The mean HRQL score decreased from 0.87 to 0.86. The HRQL of 45% was stable, 25% were better and 30% were worse. A regression model showed internalizing problems were related most strongly to HRQL.ConclusionsIn the transition from adolescence to young adulthood, HRQL in Dutch VLBW children was stable at the group level but varied at the individual level. HRQL was negatively associated with internalizing problems and also with physical handicaps. Long-term follow-up studies on the impact of VLBW on HRQL are all the more called for, given the growing number of vulnerable infants surviving the neonatal period.

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“…Children between 13 and 18 years have been most frequently studied , but younger children have been largely neglected. Especially young children's self-ratings are rarely included in studies (Fekkes et al, 2000;Theunissen et al, 2000). Part of the reason is that children do not share adult views about the cause, aetiology and treatment of illness (Koopman, Baars, Chaplin, & Zwinderman, 2004).…”

Section: Introductionmentioning

confidence: 96%

DISABKIDS smiley questionnaire: the TAKE 6 assisted health‐related quality of life measure for 4 to 7‐year‐olds

Chaplin

Koopman

Schmidt

2008

Clin Psychology and Psychoth

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The DISABKIDS Smiley TAKE 6 was developed to meet the need for a research instrument to measure the health-related quality of life (HrQoL) of children 4-7 years old. TAKE 6 is a European generic assisted-report questionnaire with a proxy version. The items of TAKE 6, scored using a five-point Likert scale, cover a single HrQoL domain. Child and parent focus groups identified the statements which, following a European pilot study, were reduced to six items. A field study of 435 children with a chronic disease in seven European countries revealed that the questionnaire had good reliability (inter-class correlation 0.69), had convergent validity with the KINDL-R (child quality of life questionnaire-revised) (rho 0.60) and satisfactory construct validity showing separation between severity and different medical conditions. The questionnaire was understandable by young children and could be completed within two minutes.

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Health status development in a cohort of preterm children

Cited by 15 publications

References 27 publications

Health and school performance of teenagers born before 29 weeks gestation

Health and school performance of teenagers born before 29 weeks gestation

Long term follow-up of health-related quality of life in young adults born very preterm or with a very low birth weight

DISABKIDS smiley questionnaire: the TAKE 6 assisted health‐related quality of life measure for 4 to 7‐year‐olds

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