Health transition after lung transplantation – a grounded theory study

Lundmark, Martina; Erlandsson, Lena‐Karin; Lennerling, Annette; Almgren, Matilda; Forsberg, Anna

doi:10.1111/jocn.13269

Cited by 14 publications

(27 citation statements)

References 23 publications

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“…A majority of the recipients were partly recovered and despite the presence of numerous symptoms still reported well‐being and good general health. In a previous qualitative study the LuTRs described several symptoms and complications, yet experienced health . Furthermore, the most frequent symptoms were not always the most distressing ones, thus both symptom frequency and burden must be measured posttransplant.…”

Section: Discussionmentioning

confidence: 99%

Recovery, symptoms, and well‐being one to five years after lung transplantation – A multi‐centre study

Lundmark

Lennerling

Almgren

et al. 2018

Scandinavian Caring Sciences

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Background In recent years, survival after lung transplantation has remained largely unchanged despite improvements in short‐and intermediate‐term survival, indicating the need to identify factors associated with recovery and long‐term survival. Very little is known about how lung recipients recover after lung transplantation and whether such factors are related to symptom distress and well‐being. This constitutes the rationale of the study. Aim The aim was to explore symptom prevalence and distress as well as the degree of self‐reported perceived recovery and well‐being 1–5 years after adult lung transplantation. Method This multicentre, cross‐sectional nationwide study includes 117 lung recipients due for follow‐up at 1 year (n = 35), 2 years (n = 28), 3 years (n = 23), 4 years (n = 20) and 5 years (n = 11). Three different self‐assessment instruments were utilised; The Postoperative Recovery Profile, the Organ Transplant Symptom and Well‐Being Instrument, and the Psychological General Well‐Being Instrument. Ethical approval of the study was obtained. Results Few (5.7%) lung recipients were recovered 1–5 years after lung transplantation and 27.6% were not recovered at all. No relationship was identified between present lung function and self‐reported recovery or well‐being. There was a strong relationship between recovery and well‐being. It is possible to be partly recovered and experience good health. The most prevalent symptoms were tremor 66%, breathlessness 62%, and decreased libido 60%, while the symptoms perceived as most distressing were embarrassment about appearance, decreased libido, and poor appetite. Limitations The cross‐sectional design prevents identification of any causal relationships. Patient loss due to transplant mortality and inclusion difficulties resulted in a fairly small sample. Conclusion Our findings suggest the need for changes in follow‐up care such as systematic measurement of the degree of self‐reported recovery and symptoms. This entails self‐management support tailored to the recipients' symptom‐management and health‐management requirements.

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Section: Discussionmentioning

confidence: 99%

Recovery, symptoms, and well‐being one to five years after lung transplantation – A multi‐centre study

Lundmark

Lennerling

Almgren

et al. 2018

Scandinavian Caring Sciences

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“…Bodily pain and other side effects are important problems after organ transplantation, persisting in up to half of the lung patients for several years after receiving the transplant. 7,25 This in turn may affect also the NoK to lung patients, who experienced a greater burden of care (CBS), greater anxiety (HADS), and more stress (IES) in this study than NoK to heart patients. Despite thoughts about or actual experience of complications, it is possible to experience good health without being fully recovered after LTx.…”

Section: T a B L E 2 Health Status Of The Patients Measured By Means mentioning

confidence: 90%

“…In the present study, most of the patients, especially the lung patients, were affected by pain and discomfort (based on the results for the EQ‐5D). Bodily pain and other side effects are important problems after organ transplantation, persisting in up to half of the lung patients for several years after receiving the transplant . This in turn may affect also the NoK to lung patients, who experienced a greater burden of care (CBS), greater anxiety (HADS), and more stress (IES) in this study than NoK to heart patients.…”

Section: Discussionmentioning

confidence: 99%

“…This in turn may affect also the NoK to lung patients, who experienced a greater burden of care (CBS), greater anxiety (HADS), and more stress (IES) in this study than NoK to heart patients. Despite thoughts about or actual experience of complications, it is possible to experience good health without being fully recovered after LTx . It is therefore important to promote health by supporting the patients in their daily life and not forget that also NoK may need information, support and relief.…”

Section: Discussionmentioning

confidence: 99%

“…Despite thoughts about or actual experience of complications, it is possible to experience good health without being fully recovered after LTx. 25 It is therefore important to promote health by supporting the patients in their daily life and not forget that also NoK may need information, support and relief. Stress is a condition or circumstance that may be managed by the patients' ability to cope.…”

Section: T a B L E 2 Health Status Of The Patients Measured By Means mentioning

confidence: 99%

See 2 more Smart Citations

Psychosocial aspects before and up to 2 years after heart or lung transplantation: Experience of patients and their next of kin

Ågren

Sjöberg

Ekmehag

et al. 2017

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Perspectives of solid organ transplant recipients on medicine-taking: Systematic review of qualitative studies

Tang

Kerklaan

Wong

et al. 2021

American Journal of Transplantation

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Medicine-taking has a paramount role in minimizing graft loss and maximizing health outcomes in solid organ transplant recipients; however, medication regimens are complex and challenging. [1][2][3] These include immunosuppressants and medications to manage comorbidities such as cardiovascular disease, diabetes, and prevent potentially life-threatening transplant complications such as infections over a lifetime. 1,4 The World Health Organization defines adherence as "the extent to which a person's behaviortaking medication, following a diet, and/or executing lifestyle changes, corresponds with agreed recommendations from a

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Health transition after lung transplantation – a grounded theory study

Cited by 14 publications

References 23 publications

Recovery, symptoms, and well‐being one to five years after lung transplantation – A multi‐centre study

Recovery, symptoms, and well‐being one to five years after lung transplantation – A multi‐centre study

Psychosocial aspects before and up to 2 years after heart or lung transplantation: Experience of patients and their next of kin

Perspectives of solid organ transplant recipients on medicine-taking: Systematic review of qualitative studies

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