Healthcare providers’ awareness of the information needs of their cardiac rehabilitation patients throughout the program continuum

Ghisi, Gabriela Lima de Melo; Grace, Sherry L.; Thomas, Scott; Evans, Matt; Sawula, Heather; Oh, Paul

doi:10.1016/j.pec.2013.12.020

Cited by 41 publications

(22 citation statements)

References 35 publications

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“…Patients desired less information on their pathology and on how to self-manage it, whereas they continued to desire medical information related to medical treatment and complications of the disease. This preference for medical information compared with lifestyle information has been identified in previous research [21,22,[33][34][35][36] and deserves attention by health practitioners. Research continuously shows that patients fail to adhere correctly to medical advice or to change their unhealthy behaviors [37][38][39]; thus, it is essential to help them understand what they can do to self-manage their health condition and to prevent complications.…”

Section: Discussionmentioning

confidence: 59%

“…Research in this field found that patients with acute coronary syndrome, myocardial infarction, and heart failure judge all types of information as important, with a preference for information on medication (names, dosage and side effects), risk factors (especially how to modify incorrect behaviors), and physiology (knowing how to manage signs and symptoms) [18][19][20][21]. However, the majority of researches has been conducted using a crosssectional methodology; few studies have been conducted using a longitudinal approach and there is still a lack of knowledge about how the specific need for health information changes as the disease progresses.…”

Section: Introductionmentioning

confidence: 99%

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What hypertensive patients want to know [and from whom] about their disease: a two-year longitudinal study

Cappelletti¹,

Greco

Maloberti

et al. 2020

BMC Public Health

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Background: This study explored both the evolution of the information needs and the perceived relevance of different health information sources in patients with essential hypertension. It also investigated the relationships between information needs and the perceived relevance of information sources with socio-demographic and clinical variables. Methods: Two hundred and two patients with essential arterial hypertension were enrolled in the study and evaluated at baseline and during three follow-ups at 6, 12 and 24 months after baseline. Patients had a mean age of 54.3 years [range 21-78; SD = 10.4], and 43% were women. Repeated measures ANOVA, Bonferroni post hoc tests, and Cochran's Q Test were performed to test differences in variables of interest over time. Results: It was observed a significant reduction in all the domains of information needs related to disease management except for pharmacological treatment and risks and complications. At baseline, patients reported receiving health information primarily from specialists, general practitioners, relatives, and television, but the use of these sources decreased over time, even if the decrease was significant only for relatives. Multiple patterns of relationships were found between information needs and the perceived relevance of sources of information and socio-demographics and clinical variables, both at baseline and over time. Conclusions: The findings showed a general decrease in both the desire for information and the perceived relevance of different information sources. Hypertensive patients appeared to show little interest in health communication topics as their disease progressed. Understanding patients' information needs and the perceived relevance of different information sources is the first step in implementing tailored communication strategies that can promote patients' self-management skills and optimal clinical outcomes.

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Section: Discussionmentioning

confidence: 59%

Section: Introductionmentioning

confidence: 99%

What hypertensive patients want to know [and from whom] about their disease: a two-year longitudinal study

Cappelletti¹,

Greco

Maloberti

et al. 2020

BMC Public Health

View full text Add to dashboard Cite

show abstract

“…It serves as a significant part of disease management and secondary prevention, which can help patients understand the therapies and comply with the recommended health behaviors 11,12. Findings from recent studies presented the benefits of patient education in improving self-management abilities and quality of life while reducing healthcare costs 12,13…”

Section: Introductionmentioning

confidence: 99%

The Chinese version of the Coronary Artery Disease Education Questionnaire-II (CADEQ-II): translation and validation

Chen¹,

Geng²,

Wang³

et al. 2018

PPA

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ObjectivesIt is necessary to assess disease-related knowledge in patients with coronary artery disease (CAD) for tailored patient education; however there is a lack of a well-validated measurement in China. The objective of this study was to translate and validate a Chinese version of the Coronary Artery Disease Education Questionnaire-II (CADEQ-II).MethodsThe Chinese version of CADEQ-II was translated and culturally adapted. Then, it was tested for psychometric properties through a convenient sampling. Content validity was examined based on a panel of five experts. The item difficulty index and item discrimination index were calculated to assess the item difficulty and item discrimination. Internal consistency reliability was measured with the Cronbach’s alpha coefficient. Criterion-related validity was established through comparing scores in patients with different education levels. Construct validity was assessed through confirmatory factor analysis (CFA).ResultsThe Chinese version of the CADEQ-II was finalized after deleting three items and modifying two items from the original version. Three hundred and sixteen participants completed the whole questionnaire. Content validity index of the whole questionnaire was 0.87. The Cronbach’s alpha coefficient of the overall questionnaire was 0.907. The significant difference of the knowledge scores among patients with different education levels supported criterion-related validity. CFA confirmed the proposed four-factorial structure of the questionnaire.ConclusionThe Chinese version of CADEQ-II had an acceptable reliability and validity among Chinese patients with CAD. It could be used to develop individualized health education for Chinese patients with CAD. Also, it could serve as a suitable outcome measurement to evaluate the effectiveness of education interventions related to CAD.

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“…One recent study has been conducted with the aim of investigating how patients’ information needs change over the course of a six-month long cardiac rehabilitation program, but it is still a cross-sectional study. It found that patients were significantly more interested in information about emergency/safety at the beginning of the program, while information about general/social concern and risk factors was preferred at the middle [ 25 ]. However, the adoption of a cross-sectional design is not appropriate for studying change over time.…”

Section: Introductionmentioning

confidence: 99%

A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome

et al. 2016

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BackgroundResearch has shown that the provision of pertinent health information to patients with cardiovascular disease is associated with better adherence to medical prescriptions, behavioral changes, and enhanced perception of control over the disease. Yet there is no clear knowledge on how to improve information pertinence. Identifying and meeting the information needs of patients and their preferences for sources of information is pivotal to developing patient-led services. This prospective, observational study was aimed at exploring the information needs and perceived relevance of different information sources for patients during the twenty-four months following an acute coronary syndrome.MethodsTwo hundred and seventeen newly diagnosed patients with acute coronary syndrome were enrolled in the study. The patients were primarily men (83.41 %) with a mean age of 57.28 years (range 35–75; SD = 7.98). Patients’ needs for information and the perceived relevance of information sources were evaluated between 2 and 8 weeks after hospitalization (baseline) and during three follow-ups at 6, 12 and 24 months after baseline. Repeated measures ANOVA, Bonferroni post hoc tests and Cochran’s Q Test were performed to test differences in variables of interest over time.ResultsResults showed a reduction in information needs, but this decrease was significant only for topics related to daily activities, behavioral habits, risk and complication. At baseline, the primary sources of information were specialists and general practitioners, followed by family members and information leaflets given by physicians. Relevance of other sources changed differently over time.ConclusionThe present longitudinal study is an original contribution to the investigation of changes in information needs and preferences for sources of information among patients who are diagnosed with acute coronary syndrome. One of the main results of this study is that information on self-disease management is perceived as a minor theme for patients even two years after the event. Knowledge on how patients’ information needs and perceived relevance of information sources change over time could enhance the quality of chronic disease management, leading health-care systems to move toward more patient-tailored care.Electronic supplementary materialThe online version of this article (doi:10.1186/s12875-016-0534-8) contains supplementary material, which is available to authorized users.

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Healthcare providers’ awareness of the information needs of their cardiac rehabilitation patients throughout the program continuum

Abstract: These findings could inform evaluation and improvement of CR education programming, to ensure programs are meeting patient information needs across all stages of recovery.

Cited by 41 publications

References 35 publications

What hypertensive patients want to know [and from whom] about their disease: a two-year longitudinal study

What hypertensive patients want to know [and from whom] about their disease: a two-year longitudinal study

The Chinese version of the Coronary Artery Disease Education Questionnaire-II (CADEQ-II): translation and validation

A longitudinal study on the information needs and preferences of patients after an acute coronary syndrome

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