HealthPROMISE: Utilization of Patient Reported Outcomes to Measure Quality of Life in Inflammatory Bowel Disease

Atreja, Ashish; Otobo, Emamuzo; Chang, Helena; Keefer, Laurie; Rogers, Jason; Ullman, Thomas; Ramireddy, Karthik; Metcalfe, James; Deorocki, Allyssa; Berde, Ed; Zlatopolsky, Rivelle; Kohli, Akshay; Choksi, Pavan; Itzkowitz, Steven H.; Colombel, J.F.; Sands, Bruce E.

doi:10.2196/iproc.8452

Cited by 4 publications

(5 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Due to the integration, researchers believe that in-person office visits can focus more on quality of care (QoC) as opposed to eliciting symptom history, allowing for more meaningful goal-focused discussions [37]. In their trial with 320 participants, the results showed fatigue and tension as the most important drivers of QoL [41], with QoL having significantly improved for study patients as compared to controls after 575 days of follow-up [39].…”

Section: Resultsmentioning

confidence: 99%

“…This study also noted that many participants had trouble remembering details of their action plans and that there were mixed results regarding timing, repetition, and technical aspects of the platform [84]. HealthPROMISE continued to have 75% adherence after 6 months of follow-up [37,41]. Participants of the Young Constant Care trial completed 74% of total desired survey entries [55].…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review

Yin¹,

Hachuel²,

Pollak³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

Background Digital health is poised to transform health care and redefine personalized health. As Internet and mobile phone usage increases, as technology develops new ways to collect data, and as clinical guidelines change, all areas of medicine face new challenges and opportunities. Inflammatory bowel disease (IBD) is one of many chronic diseases that may benefit from these advances in digital health. This review intends to lay a foundation for clinicians and technologists to understand future directions and opportunities together. Objective This review covers mobile health apps that have been used in IBD, how they have fit into a clinical care framework, and the challenges that clinicians and technologists face in approaching future opportunities. Methods We searched PubMed, Scopus, and ClinicalTrials.gov to identify mobile apps that have been studied and were published in the literature from January 1, 2010, to April 19, 2019. The search terms were (“mobile health” OR “eHealth” OR “digital health” OR “smart phone” OR “mobile app” OR “mobile applications” OR “mHealth” OR “smartphones”) AND (“IBD” OR “Inflammatory bowel disease” OR “Crohn's Disease” (CD) OR “Ulcerative Colitis” (UC) OR “UC” OR “CD”), followed by further analysis of citations from the results. We searched the Apple iTunes app store to identify a limited selection of commercial apps to include for discussion. Results A total of 68 articles met the inclusion criteria. A total of 11 digital health apps were identified in the literature and 4 commercial apps were selected to be described in this review. While most apps have some educational component, the majority of apps focus on eliciting patient-reported outcomes related to disease activity, and a few are for treatment management. Significant benefits have been seen in trials relating to education, quality of life, quality of care, treatment adherence, and medication management. No studies have reported a negative impact on any of the above. There are mixed results in terms of effects on office visits and follow-up. Conclusions While studies have shown that digital health can fit into, complement, and improve the standard clinical care of patients with IBD, there is a need for further validation and improvement, from both a clinical and patient perspective. Exploring new research methods, like microrandomized trials, may allow for more implementation of technology and rapid advancement of knowledge. New technologies that can objectively and seamlessly capture remote data, as well as complement the clinical shift from symptom-based to inflammation-based care, will help the clinical and health technology communities to understand the full potential of digital health in the care of IBD and other chronic illnesses.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review

Yin¹,

Hachuel²,

Pollak³

et al. 2019

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…Providers received reminder/alerts about patient status. Patients who used the HealthPromise platform had improved quality of life measures at 6-month follow-up [16].…”

Section: Remote Monitoringmentioning

confidence: 98%

“…Of the mobile health platforms that have been clinically studied, there have been mixed results on their impact on clinical outcomes (Table 1). A few studies have demonstrated improvement in quality of life (HealthPromise [16] and Constant Care [21]), while others found no differences (UC HAT [14] and TELE-IBD [19]). One study demonstrated improvement in disease activity (TECCU [13]), while others found no improvement (UC HAT [14], MyIBDCoach [17], TELE-IBD [19]).…”

Section: Clinical Outcomesmentioning

confidence: 99%

Advances in Mobile Health for Inflammatory Bowel Disease

Spartz

DeDecker

et al. 2022

Diagnostics

View full text Add to dashboard Cite

Mobile health has the potential to transform the management of chronic illnesses, expanding treatment from a purely clinic-based approach to a more patient-centered delivery of care. For patients with inflammatory bowel disease (IBD), a condition characterized by a relapsing and remitting course, adoption of mobile health strategies can promote improved quality of care delivery and clinical outcomes. Benefits of mobile health applications for IBD include tracking symptoms to guide disease management, coordinating data exchange across clinical care providers, increasing communication between patients and the care team, and providing educational materials to increase patient engagement and satisfaction. In this review, we present the current offerings for telemedicine systems and mobile applications designed for patients with IBD and discuss the potential advantages and limitations of utilizing mobile health in the care of these patients.

show abstract

“…41 In addition, early results from a study of the HealthPROMISE mobile phone application, which tracks patient QOL and symptoms and provides visual data in real time that are integrated with electronic health records, have shown that the application significantly increased patients' QOL. 48,49 Conclusions IBD can have severe and lifelong physical and psychosocial implications for patients. After a T2T approach was found to be beneficial for patients with other chronic conditions (eg, rheumatoid arthritis and diabetes), a T2T approach including ongoing monitoring to adapt to individuals' needs as quickly and effectively as possible, while keeping QOL at the forefront, has been recommended for IBD patients, and recent evidence suggests this approach facilitates rapid treatment optimization to improve patient outcomes.…”

Section: Future Directionsmentioning

confidence: 99%

Treat-to-Target Approach in Inflammatory Bowel Disease: The Role of Advanced Practice Providers

Drescher¹,

Lissoos²,

Hajisafari³

et al. 2019

The Journal for Nurse Practitioners

View full text Add to dashboard Cite

Updated therapeutic guidelines for inflammatory bowel disease call for effective disease assessment, early intervention, and personalized patient care using a treat-to-target (T2T) approach. The ongoing, intensive monitoring of a T2T strategy is best facilitated by a multidisciplinary team, but the increased demand on health care systems impedes implementation. Therefore, advanced practice providers have a growing role in bridging the gap between T2T recommendations and clinical practice. Advanced practice providers can effectively facilitate patient-care team communication, deliver patient education, perform in-clinic and remote monitoring of symptoms and treatment response, and assist patients with self-management.

show abstract

HealthPROMISE: Utilization of Patient Reported Outcomes to Measure Quality of Life in Inflammatory Bowel Disease

Cited by 4 publications

References 0 publications

Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review

Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review

Advances in Mobile Health for Inflammatory Bowel Disease

Treat-to-Target Approach in Inflammatory Bowel Disease: The Role of Advanced Practice Providers

Contact Info

Product

Resources

About