Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention

Lloyd, Jenny; Bjornstad, Gretchen; Borek, Aleksandra; Cuffe-Fuller, Beth; Fredlund, Mary; McDonald, Annabel; Tarrant, Mark; Berry, Vashti; Wilkinson, Kath; Mitchell, Siobhán; Gillett, Annette; Logan, Stuart; Morris, Christopher

doi:10.1136/bmjopen-2020-045570

Cited by 9 publications

(17 citation statements)

References 29 publications

(31 reference statements)

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“…Building on our earlier findings, which established satisfaction with the in‐person programme and programme and workshop participant reports of improved health and wellbeing, the current study demonstrated that it was feasible for trained staff from two different Delivery partner organisations to implement a programme developed by a research team 27,38 . This research suggests that delivering the programme online is a feasible and acceptable mode of delivery and potentially creates more accessibility and reach and may reduce costs.…”

Section: Discussionsupporting

confidence: 58%

“…Delivery partner organisations to implement a programme developed by a research team. 27,38 This research suggests that delivering the programme online is a feasible and acceptable mode of delivery and potentially creates more accessibility and reach and may reduce costs. This study enabled the creation of a promising Implementation Package and logic model.…”

Section: Authors Contributionsmentioning

confidence: 96%

“…37 In line with the findings from our previous study, participants reported that taking part in the programme helped to improve their health and wellbeing, and felt included and part of the group, suggesting that the specific strategies we adopted enabled the online groups to build positive connections. 38 We believe that completing the programme modification work in collaboration with our Family Faculty public involvement group and giving attention to the group processes in the training and delivery manuals were key to maintaining these benefits.…”

Section: Strategic Directionmentioning

confidence: 99%

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Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Garrood,

Bjornstad,

Borek

et al. 2023

Health Expectations

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BackgroundParent carers of disabled children are at increased risk of physical and mental health problems. The Healthy Parent Carers (HPC) programme is a manualised peer‐led group‐based programme that aims to promote parent carer health and wellbeing. Previously, the programme had been delivered in person, with recruitment and delivery managed in a research context. This study explored implementation by two delivery partner organisations in the United Kingdom. Facilitator Training and Delivery Manuals were modified for online delivery using Zoom due to COVID‐19.MethodsThe study methodology utilised the Replicating Effective Programs framework. A series of stakeholder workshops informed the development of the Implementation Logic Model and an Implementation Package. After delivering the programme, delivery partner organisations and facilitators participated in a workshop to discuss experiences of implementing the programme. A wider group of stakeholders, including commissioners, Parent Carer Forums and charity organisations representatives and researchers subsequently met to consider the sustainability and potential barriers to delivering the programme outside the research context.ResultsThis study explored implementation by two delivery partner organisations in the United Kingdom that were able to recruit facilitators, who we trained, and they recruited participants and delivered the programme to parent carers in different localities using Zoom. The co‐created Implementation Logic Model and Implementation Package were subsequently refined to enable the further roll‐out of the programme with other delivery partner organisations.ConclusionsThis study provides insight and understanding of how the HPC programme can be implemented sustainably outside of the research context. Further research will evaluate the effectiveness of the programme and refine the implementation processes.Patient and Public ContributionParent carers, delivery partner organisation staff and service commissioners were consulted on the design, delivery and reporting of the research.

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Section: Discussionsupporting

confidence: 58%

Section: Authors Contributionsmentioning

confidence: 96%

Section: Strategic Directionmentioning

confidence: 99%

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Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Garrood,

Bjornstad,

Borek

et al. 2023

Health Expectations

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“…The potential for peer-to-peer parent support was suggested in the review [ 46 , 48 ] and has been shown to be beneficial in other studies of parents/caregivers caring for children with long-term conditions [ 81 ]. Benefit may result from structured group-based intervention to support the health and well-being of parents/caregivers, as already established for parents/caregivers of disabled children [ 82 , 83 ].…”

Section: Discussionmentioning

confidence: 99%

Parents’/caregivers’ fears and concerns about their child’s epilepsy: A scoping review

et al. 2022

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Background Childhood epilepsy is a serious and common neurological condition and can have life-long consequences and its impact can pervade all aspects of family life. Whilst the medical management of seizures is important, much of the day-to-day home management of epilepsy is invisible to people external to the family, including health care professionals, and parents’/caregivers’ fears and concerns can go unacknowledged and unaddressed by health care professionals. Objective This objective of this review was to examine parents’/caregivers’ fears and concerns regarding their child’s epilepsy, the impact of these fears and concerns on family life, the social and emotional well-being of parents/caregivers and any factors which mitigate these fears and concerns. Design Scoping review using a modified version of Arksey and O’Malley’s framework. Data sources Relevant studies were identified using key search terms in Scopus, Medline, CINAHL and PsychInfo databases in March 2021 with hand checking of reference lists. Search terms were developed using population (parents/caregivers of children aged ≤ 18 years with epilepsy, families); concept (parents’/caregivers’ fears, concerns, anxiety about their child’s epilepsy); and context (any setting). A further search was run in April 2022. Other inclusion criteria: English language empirical studies, 2010–2021. Study appraisal methods A minimum of two reviewers independently screened articles and undertook data extraction and decisions were consensually made. Methodological quality appraisal was undertaken using the Mixed Methods Appraisal Tool v2018. A data extraction table was created to chart all studies. The conduct and reporting of this study followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidance for Systematic reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) (S1 Table). There is no published copy of the review protocol. Main findings The search identified a total of 4077 papers (after duplicates were removed) of which 110 were assessed for eligibility. Twenty-four papers published between 2010–2021 were included in the review and each paper was treated as a separate study. The review findings indicate that parents’/caregivers’ fears and concerns stem from more than their child’s seizures and relate to many wider aspects of family life. These fears and concerns had far-reaching influences on their parenting/caregiving, and on the lifestyle and activities of their child and their family. What was less evident was what parents/caregivers wanted in terms of support or how they thought health professionals could acknowledge and/or allay their fears and concerns. The discussion is framed within the compassion-focused therapy model as a basis for generating new thinking about the impact of these fears and concerns and the need for a new agenda for clinical consultations in childhood epilepsy. Conclusions The review concludes with a proposal that a more compassionate agenda underpins the dialogue between parents/caregivers and clinicians to encompass and mitigate the wider emotional, psychosocial, and societal threats that impact on the parent/caregivers of children with epilepsy.

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“…Parents in our study expressed a preference for anticipatory information to be provided by a peer they could relate to, who had the time to explain things to them using language they understood, who listened to them, supported them to ask questions, and who boosted their confidence in being able to manage mild-to-moderate bronchiolitis at home. Peer-to-peer support for parents of children with long-term conditions has been shown to provide grounded reassurance and support that parents value as it comes from people who have a lived understanding of their situation [ 44 , 45 , 46 ]; this strongly resonates with the value placed on the Parent Champion appreciating the challenges they faced.…”

Section: Discussionmentioning

confidence: 99%

Parents Reaching Out to Parents: An Appreciative, Qualitative Evaluation of Stakeholder Experiences of the Parent Champions in the Community Project

2022

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Background: Bronchiolitis is a seasonal, global acute lower respiratory tract infection caused by respiratory syncytial virus (RSV) and is a leading cause of hospital admission in young children. A peer-led (parents to parents) intervention was implemented to empower parents of children at risk of bronchiolitis and reduce hospital admissions. This paper reported the evaluation that aimed to gain the perspectives and experiences of five key stakeholder groups. Methods: A qualitative remote interview-based design, informed by Appreciative Inquiry was used. Thematic analysis was used. Results: Sixty-five stakeholders participated: parents (n = 43; mothers, n = 42), Parent Champions (n = 9), Children’s Centre Managers (n = 8), Children’s Centre Group Leaders (n = 11), and Core Team (n = 4). An overarching theme ‘Parents reaching out to parents’ was supported by five sub-themes (Raising awareness and sharing knowledge; Creating connection, trust, and confidence; Flourishing in their role as a Parent Champion; Rising to the challenges; and Knowledge is power, prevention is key: the government needs to know this.) Conclusions: Parent-to-parent peer support via the Parent Champions was perceived positively by parents who wanted to learn and improve the lives and health of their children. Parent Champions were successful in delivering information. Considering the socioeconomic burden of bronchiolitis to services and families, the potential for an upstream, relatively low cost, high-reach innovative intervention, as evidenced in this project, seems a valuable opportunity for improving children’s respiratory health.

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Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention

Cited by 9 publications

References 29 publications

Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations

Parents’/caregivers’ fears and concerns about their child’s epilepsy: A scoping review

Parents Reaching Out to Parents: An Appreciative, Qualitative Evaluation of Stakeholder Experiences of the Parent Champions in the Community Project

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