Heart defects and other malformations in the Inuit in Canada: a baseline study

Arbour, Laura; Gilpin, Cathy; Millor-Roy, V.; Platt, Robert W.; Pekeles, Gary; Egeland, Grace M.; Hodgins, Stephen; Eydoux, Patrice

doi:10.3402/ijch.v63i3.17720

Cited by 21 publications

(16 citation statements)

References 26 publications

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“…A Maternity Experiences survey conducted by the Public Health Agency of Canada found that women from NU reported having less information on pregnancy-related topics, but reported more smoking, more abuse, and more symptoms suggesting postpartum depression than other Canadian women 17 . Between 60% and 85% of pregnant women in NU reported smoking during pregnancy, five times the Canadian average 17,95 . Cigarette smoking is the single most important modifiable cause of adverse pregnancy outcomes affecting infant mortality and morbidity 96 .…”

mentioning

confidence: 99%

Canadian Indigenous Womens Perspectives of Maternal Health and Health Care Services: A Systematic Review

Sharma¹,

Kolahdooz²,

Launier³

et al. 2016

Divers Equal Health Care

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Development of policies and interventions to address health disparities between Indigenous and non-Indigenous populations requires a comprehensive understanding of Indigenous people's experiences and perspectives of healthcare services. We systematically reviewed the published literature on Canadian Indigenous women's experiences and perspectives of maternal healthcare during pregnancy, childbirth, and the postpartum period. Major bibliographic databases (including PubMed, CINAHL, EMBASE, SCOPUS, and SSCI) were searched for published studies (1990( -March 2015 in English. Reference lists of identified articles were searched to identify additional articles. 92 articles were retrieved for further review, of which 16 studies were included: 8 on maternal healthcare and/or medical evacuation; 3 on gestational diabetes mellitus; 3 on the impact of policies on maternal health; and 2 on maternal weight changes and/or breastfeeding. The included studies described 1043 participants: Indigenous peoples (n=918) and non-Indigenous peoples (n=125) who were mothers or pregnant women (n=814), healthcare providers or workers in a health-related field (n=132), and fathers, Elders, or other community members (n=97). Availability of healthcare resources, healthcare services' consideration of socio-economic or lifestyle barriers to health, and the impact of colonization on interactions with healthcare providers were main factors that impacted Indigenous women's maternal health experiences. Medical evacuation was often due to limited maternity care options available in remote communities, and was associated with emotional, physical, and financial stress. This review highlights the importance of consistent health policies and practices for maternal health in Canada and providing culturally safe and patient-centered maternity healthcare services within indigenous communities.

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mentioning

confidence: 99%

Canadian Indigenous Womens Perspectives of Maternal Health and Health Care Services: A Systematic Review

Sharma¹,

Kolahdooz²,

Launier³

et al. 2016

Divers Equal Health Care

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“…Since no surveillance system was in place, a baseline chart review of over 2,500 Inuit births taking place in Nunavut and Nunavik (arctic Quebec) between 1989 and 1994 revealed that the overall rate of major malformations was twice the rate of that seen in a Canadian provincial birth defect registry, the Alberta Congenital Anomalies Surveillance System (ACASS) (4). In particular, rates of septal heart defects (ICD-9 code 745) were nearly four times higher than expected.…”

Section: Birth Defectsmentioning

confidence: 99%

The development of a comprehensive maternal–child health information system for Nunavut-Nutaqqavut (Our Children)

Lauson¹,

McIntosh²,

Obed

et al. 2011

International Journal of Circumpolar Health

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Objectives. Nunavut is the most northerly jurisdiction in Canada of which 85% of inhabitants are Inuit. Although most infants are born healthy, Nunavut leads the country for adverse early child health outcomes such as infant mortality, rates of birth defects, prematurity and low birth weight. Public health and community efforts are needed to understand and improve outcomes. Methods. To inform these issues, a combined University of British Columbia/Nunavut Public Health Strategy effort has initiated a comprehensive maternal-child health surveillance system (from 16 weeks gestation to age 5). A diverse group of professional and lay stakeholders were brought together initially to determine local interest. Following this, a series of small working groups were held to decide on potential prenatal, perinatal and early child health variables, to be documented. Results. Over 100 Nunavut participants have now had some role in the development of the system which has been initiated. Pre-existing standard prenatal forms and well-child assessment forms have been modified to include "Nunavut specific" variables of nutrition, food and domestic security, exposures in pregnancy, birth defects, development, chronic diseases of childhood and paternal information. Conclusion. This comprehensive maternal-child health information system has been developed with the extensive input of health care providers and stakeholders, utilizing community and public health systems already in place. Careful assessment of local needs has contributed to database development, privacy protection, potential data utilization for health promotion and plans for dissemination of findings. It is hoped that this will be a user-friendly surveillance system, adaptable to other community and public health systems that will improve the understanding of Aboriginal maternal-child health determinants.

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“…For Inuit-inhabited areas, excess mortality is observed for all major causes of infant death compared to the rest of Canada, including congenital anomalies (risk ratio (RR)=1.6), immaturity-related conditions (RR=3.0), asphyxia (RR=2.4), SIDS (RR=7.2), infection (RR=8.3), and external causes (RR=7.3) [36]. Additional studies indicate that Aboriginal infants suffer from and/or die in disproportionate numbers from congenital anomalies [31,37], respiratory tract infection [30,31,33] and SIDS [30,31,33].…”

Section: Canadamentioning

confidence: 99%

Indigenous Birth Outcomes in Australia, Canada, New Zealand and the United States - an Overview~!2010-01-14~!2010-04-16~!2010-07-06~!

Smylie¹,

Crengle²,

Freemantle³

et al. 2010

TOWHJ

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Objective-To review Indigenous infant mortality, stillbirth, birth weight, and preterm birth outcomes in Australia, Canada, New Zealand and the United States.Methods-Systematic searches of published literature and a review and assessment of existing perinatal surveillance systems were undertaken. Where possible, within country comparisons of Indigenous to non-Indigenous birth outcomes are included.Results-Indigenous/non-Indigenous infant mortality rate ratios range from 1.6 to 4.0. Stillbirth rates, where data are available, are also uniformly higher for Indigenous people. In all four countries, the disparities in Indigenous/non-Indigenous infant mortality rate ratios are most marked in the post-neonatal period. With few exceptions, the rates of leading causes of infant mortality are higher among Indigenous infants than non-Indigenous infants within all four countries. In most cases, rates of small for gestational age and preterm birth were also elevated for Indigenous compared to non-Indigenous infants.Conclusions-There are significant disparities in Indigenous/non-Indigenous birth outcomes in Australia, Canada, New Zealand and the United States. These Indigenous/non-Indigenous birth outcome disparities fit the criteria for health inequities, as they are not only unnecessary and avoidable, but also unfair and unjust. KeywordsIndigenous; birth outcomes; infant mortality; stillbirth; birth weight; and preterm birth; Canada; Australia; New Zealand; United StatesThis is an open access article licensed under the terms of the Creative Commons Attribution Non-Commercial License (http:// creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, provided the work is properly cited.

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Heart defects and other malformations in the Inuit in Canada: a baseline study

Cited by 21 publications

References 26 publications

Canadian Indigenous Womens Perspectives of Maternal Health and Health Care Services: A Systematic Review

Canadian Indigenous Womens Perspectives of Maternal Health and Health Care Services: A Systematic Review

The development of a comprehensive maternal–child health information system for Nunavut-Nutaqqavut (Our Children)

Indigenous Birth Outcomes in Australia, Canada, New Zealand and the United States - an Overview~!2010-01-14~!2010-04-16~!2010-07-06~!

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