Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Abstract

Introduction: Hidradenitis suppurativa (HS) is a chronic, inflammatory and painful cutaneous disease which often has a negative influence on patients' quality of life. Dermatology-specific instruments, such as Dermatology Life Quality Index and Skindex, are commonly used to evaluate HS patients' quality of life. However, due to the lack of specific questions, these scales may not be adequate and may not reflect the real problem. Aim: To translate and validate the Polish version of a newly created HS-specific questionnaire-Hidradenitis Suppurativa Quality of Life (HiSQOL). Material and methods: A forward and backward translation was conducted from the original English version of the questionnaire to Polish language according to international standards. The validation was performed on a group of 30 patients suffering from HS, who completed the questionnaire twice with a 4-5 days' interval. Results: The Polish version of HiSQOL questionnaire showed a very good internal consistency (Cronbach α coefficient was 0.96 for total score). Excellent reproducibility with the intraclass correlation coefficient (ICC) of 0.97 was demonstrated. Conclusions: The Polish version of HiSQOL questionnaire has high internal reliability, validity and reproducibility. It can be used as a tool to assess health-related quality of life in the patients suffering from hidradenitis suppurativa.

Hidradenitis Suppurativa Quality of Life 24 (HSQoL-24) now available for Polish patients: creation and validation of the Polish language version

“…Our group conducted similar projects for different QoL instruments, obtaining comparable results. In 2020 we translated and validated the HiSQoL instrument, which became the first HS-specific questionnaire in Polish language [10]. HiSQoL showed excellent internal consistency, with a Cronbach α of 0.966 for total score and 0.87-0.94 for 3 subscales [10].…”

“…In 2020 we translated and validated the HiSQoL instrument, which became the first HS-specific questionnaire in Polish language [10]. HiSQoL showed excellent internal consistency, with a Cronbach α of 0.966 for total score and 0.87-0.94 for 3 subscales [10]. Nevertheless, it is important to underline that HSQoL-24 is more thorough and has a much longer recall period.…”

“…Such a period is thought to be short enough to prevent changes in the actual HS severity and its influence on the patients' QoL, and long enough to avoid repetition patients' answers. Moreover, each patient was also asked to complete Polish versions of the Dermatology Life Quality Index (DLQI) [9] and Hidradenitis Suppurativa Quality of Life (HiSQoL) [10] questionnaires for HSQoL-24 convergent validation.…”

The Use of HSQoL-24 in an Assessment of Quality-of-Life Impairment among Hidradenitis Suppurativa Patients: First Look at Real-Life Data

“…The first HS-specific questionnaire, named Hidradenitis Suppurativa Quality of Life (HiSQOL), was created by Thorlacius et al [28] in 2019. The instrument was subsequently validated and translated into Polish [29,30]. Nevertheless, there is still no study confirming the utility of HiSQOL for implementation in clinical settings on a significant number of patients.…”

Satisfaction with Life and Coping Strategies among Patients with Hidradenitis Suppurativa: A Cross-Sectional Study

“…The General Health Questionnaire (GHQ-28) [23] is a 28-item scale utilized for screening of minor psychiatric and non-psychotic disorders. It is divided into 4 subscales: somatic symptoms (items 1-7); anxiety/insomnia (items 8-14); social dysfunction (items 15-21); and severe depression (items [22][23][24][25][26][27][28]. The GHQ-28 can be scored from 0 to 3 points for each response (total possible score on the ranging from 0 to 84 points) [23].…”